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Does IC cause death?

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  • Does IC cause death?

    I am curious about whether or not IC causes death. If you know, could you please respond. Thankyou.

  • #2
    Welcome to the ICN network. To answer your question, No IC does not cause death. IC can be life altering and at times can be a real nuisance. I have had IC for 29 years now and was diagnosed when I was 16 years old. I have had a full, complete life. You have to watch your eating habits and until you can find a treatment that works for you, you many times look for the next bathroom.

    Read through the handbook on this site and you will get a lot of info. Ask whatever you need. We are all here for you.

    Jolene grouphug

    "Life is what happens when you are making other plans" John Lennon

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    • #3
      The way my URO. put it is "You won't die from this but you will have it for the rest of your life!" then he told me of treatments..I was dignosed last July but know I have had it for years.. Elmiron is helping me. I still get flares and I am still learning things about IC..
      All the best!
      God brought me to it, He will bring me through it!!!

      Diagnosed 2003
      by cysto/hydro
      Elmiron took almost a year- made me sick, caused diarrhea
      Pyridium -Made me sick
      Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
      Tried DMSO instill- had 5 out of 6
      Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
      Cysto/hydro April 6th 2011-- on expansion only hold one cup
      IBS/ IC
      High blood pressure meds and Crestor
      Metformin (prediabetic)
      Sinequan (depression)


      • #4
        Hi Vi,

        To my knowledge, it may annoy you to death but clinically and physically it cannot kill you. I especially know about the annoyance part. lmao
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


        • #5
          Thanks guys. I have not been diagnosed, but am wondering if I have it. Just Curious.


          • #6
            I hope you get an answer soon about whether or not you have IC, I believe that the sooner you get treatment, the better off you are. Good Luck


            • #7
              Hi and welcome to the boards. Ic does not cause death. I have had it since 1985 and had a couple of remissons. Now I am in a mini remisson. Please see a uro who is knowedable in ic and knows the treatments. Please keep us posted.
              Hang in there , There is hope.
              There is hope. Prayer works.

              Love, Debbie


              • #8
                I will keep you posted. Thanks for everything.


                • #9

                  When my former doctor told me not to worry 'cause IC doesn't cause death I told him, "maybe not mine, but yours". You can guess that we didn't have a very good patient/doctor relationship.



                  • #10
                    omg lmao lmao thats so funny and I can only bet most of us had thought it
                    'The will of God will never take you where the Grace of God will not protect you.'


                    • #11
                      I haven't even went to the Doctor's yet to be tested. I'm going to look into it tho'... I'd better do it soon. Do I go to my regular doctor to get contacts? or find a specialist?


                      • #12
                        My suggestion would be to see your regular doctor and ask for a referral. I think it's good to have a primary care physician who is up to date on what's going on. This is especially true if you're taking any medications at all.

                        Warm hugs,

                        Stay safe

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                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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