I too am new to this forum. I started having pelvic sensitivity 11072006. I have not been able to wear clothes that put pressure on my abdominal/pelvic area. I have not worn jeans since 11/06. I have always had frequent urination as long as I could remember--but never painful or real urgent. Over the last couple of months I have not only felt sensitive/tender, but also inflammed and irritated in that area. A lot of times the pain is in the center of my pelvic area--my bladder. But I also have sudden shooting pains off and on in the whole pelvic area (also from rectum to pelvic). I tend to get more bloated too. It seems to get worse at night, with fitted clothes, standing for long periods of time, and it is even a little uncomfortable in the shower. I have had atleast 4 ultrasounds done which are normal. At first my GYNO thought it was a UTI and gave me Macrobid and did a pelvic exam--when she noticed my bladder was very senstive. The Macrobid did nothing and so she stated I may have IC.
I went to urologist 010307 and he did a urodynamic test which determines how much your bladder can hold and mine held very little--hence he said I had a overactive bladder. But he said a lot of women have that. I really don't think that this was a good test (error friendly), although because I always do have to go to the bathroom after I drink a little water, I went along with it. My bladder has never caused pain. He then told me that the only way for me to determine if I have IC was to do a cystoscopy with hydrodistension and a biopsy of the bladder wall.
012507 I had the cystoscopy w/hydro and 4 biopsies. I was under anesthia, but when I woke up, I was in severe pain--the worst ever--my bladder was going into spasms. I went home with a catheter, and once I got home and took some Percocet, the pain was better. I got the cath out the next day. After the surgery, when I went to use the bathroom, my bladder had a stinging pain right before I could urinate--it was coming from my bladder--very uncomfortable!! I was worried and miserable. The nurse said my bladder probably just needed time to heal from biopsies--I have never had burning or any pain during urination until after surgery.
Path Report---BLADDER POST WALL:superficial edema and congestion
BALDDER RIGHT LATERAL WALL: superficial edema and congestion.reactive epithelial changes. Notes: special stains(AFB) performed on specimens do not show increased mast cells or ulcerations. The histologic changes here do not support nor exclude IC.
I was very upset because I believed, based on what my urologist said that this biopsy was either going to let me know if I have IC--one way or another, which I am learning is not true.
Result: My urologist said that my bladder under hyro definitely looked like I had IC, but there is no evidence of IC from the biopsy. So he said he would just treatment for an overactive bladder for now, and act like I don't have IC. He put me on Vesicare for OAB and Macrobid. I don't feel good about the whole process at all or the doctor. I feel like he just doesn't know what to do and isn't informed enough about IC. I am still having a stinging painful feeling in my bladder now, before I urinate and just in general. It is not as bad as it was after my surgery, but I worried I made evrything worse.
I am in pain everyday--some days are better than others. The only thing that helps me is a heating pad.
Just saw my GYNO again 021507 and bladder was sensitive on pelvic examination. She said this is NOT a gynecological issue--it is strictly your bladder. I have an appt with another urologist 032107.
Am I taking the right steps? I am so worried all the time? I don't want this pain to affect my work and my relationship. Has anyone experienced the pelvic/bladder sensitivity to wearing clothes? Please help! Thanks
I went to urologist 010307 and he did a urodynamic test which determines how much your bladder can hold and mine held very little--hence he said I had a overactive bladder. But he said a lot of women have that. I really don't think that this was a good test (error friendly), although because I always do have to go to the bathroom after I drink a little water, I went along with it. My bladder has never caused pain. He then told me that the only way for me to determine if I have IC was to do a cystoscopy with hydrodistension and a biopsy of the bladder wall.
012507 I had the cystoscopy w/hydro and 4 biopsies. I was under anesthia, but when I woke up, I was in severe pain--the worst ever--my bladder was going into spasms. I went home with a catheter, and once I got home and took some Percocet, the pain was better. I got the cath out the next day. After the surgery, when I went to use the bathroom, my bladder had a stinging pain right before I could urinate--it was coming from my bladder--very uncomfortable!! I was worried and miserable. The nurse said my bladder probably just needed time to heal from biopsies--I have never had burning or any pain during urination until after surgery.
Path Report---BLADDER POST WALL:superficial edema and congestion
BALDDER RIGHT LATERAL WALL: superficial edema and congestion.reactive epithelial changes. Notes: special stains(AFB) performed on specimens do not show increased mast cells or ulcerations. The histologic changes here do not support nor exclude IC.
I was very upset because I believed, based on what my urologist said that this biopsy was either going to let me know if I have IC--one way or another, which I am learning is not true.
Result: My urologist said that my bladder under hyro definitely looked like I had IC, but there is no evidence of IC from the biopsy. So he said he would just treatment for an overactive bladder for now, and act like I don't have IC. He put me on Vesicare for OAB and Macrobid. I don't feel good about the whole process at all or the doctor. I feel like he just doesn't know what to do and isn't informed enough about IC. I am still having a stinging painful feeling in my bladder now, before I urinate and just in general. It is not as bad as it was after my surgery, but I worried I made evrything worse.
I am in pain everyday--some days are better than others. The only thing that helps me is a heating pad.
Just saw my GYNO again 021507 and bladder was sensitive on pelvic examination. She said this is NOT a gynecological issue--it is strictly your bladder. I have an appt with another urologist 032107.
Am I taking the right steps? I am so worried all the time? I don't want this pain to affect my work and my relationship. Has anyone experienced the pelvic/bladder sensitivity to wearing clothes? Please help! Thanks
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