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  • Not sure

    Since my hysterectomy in May thing have gone down hill fast. Never could get hormones in control-still working on that. Anyway, had my first UTI in late October. Two rounds of anitbiotic and still had minor symptoms of UTI-twitching feeling in pelvis area. Things got worse-stabbing pain in bladder, pins and needle feeling, zaps, and urethra burning and pain. I went to a urologist and he assured me this was just urethra atrophy. (I did have years of incontinence before my hysterectomy-that is better now) He said I had probably been low on estrogen for a long time and that those tissues were just thin and sensitive. He has me using Premarin cream three times a week vaginally and every night on the urethra area. I also began using oral Premarin around that time (two months ago). Well, I had to go off the oral Premarin recently (nausea, dizziness, and tics) so am on generic Estradiol which I can tell is not enough. (will talk with my Gyn about that this week)
    My bladder symptoms seem a little better. No zaps, or pins and needles, or stabbing pain in the bladder area for about two weeks now, but the urethra pain is with me 24/7. So, I guess my question is: Could this really be urethra atrophy? or does it look like IC. My urologist told me IC never crossed his mind and he does treat patients with IC. However, it is discouraging to wake every morning with pain. I don't have pain at night and not with intercourse. I can't tell food makes any difference except for maybe coffee. Sometimes my pain is worse when I drink it sometimes not. So, I just don't drink it anymore. I also don't know whether to go back on the oral Premarin. Maybe that was what was helping. I would hope the nausea etc. would go away eventually. If I had IC would my symptoms be getting worse instead of somewhat better? Sorry I am rambling. I just don't know what to think and I am so tired of not feeling normal.

  • #2

    It could be IC. I don't know much about urethral atrophy. Maybe you could try the premarin with an anti-nausea med to see if that makes your symptoms better. You could also try the IC diet and see if you have an improvement in your symptoms (you can learn more about the IC diet in the Patient Handbook online here). If you and your doc can't pinpoint anything else that is causing your symptoms, it might not hurt to have either a potassium sensitivity test or a cysto/ hydro to see if you truly do have IC.
    Good luck, I hope you can find relief.



    "A heart is not judged by how much you love; but by how much you are loved by others."
    ~ The Wizard of Oz

    "If I ever go looking for my heart's desire again, I won't look any further than my own
    back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


    • #3
      Your symptoms could well be IC, but I'm not a doctor -- and there are things that can mimic IC. I say, keep seeing your urologist, and like Claudia says, keep after him if you don't get relief. It might be a good idea to have the tests she mentioned to see if you have IC (you can read up on both in the patient handbook).

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.