im new

[amandac]

hi, my name is amanda. I was diagnosed with vulvadynia in oct and now im on lidocane cream and a premarin cream trial.
I occasionally have frequency, particulary after applying the lido cream, and urgancy. i have dipped my urine at work (im a pedi icu rn) and had a few UAs done...everytime i have red blood cells in my urine. i was sent to a gyno that specializes in endomietrosis (which i have) and he did a cath, but they didn't get enough urine! and we didn't see eye to eye so i haven't been back to him. I did though get referred to a gastroenterologist for my chronic pelvic pain and was worked up for heirshprung's disease by lots of testing ending with rectal biopsy's, which was thankfully neg, but i was diagnosed with IBD-C. i was put on meralax, which i don't need to take anymore (YIPPY). But i continue to have horrible gas (i can make my boxer dog leave the room...they are gassy dogs) and bloating to the point that i look preggers. its so uncomfortable...i am more regular than ever before, but its still uncomfortable.
i recently saw my vulvadynia gyn last week and told her about the frequency, she wasn't sure what it was about and sort of blew it off. she attibutes the occasional burning with urinating with the vulvadynia.
Should i push more for more testing for IC? oh i should also mention that we think my mom had it...she has had the dye(?) thing done. When i was sexually active i had severe pelvic pain and after it felt like i was peeing liquid fire for a few pees. i would hate to go after. and even being a nurse and having a "nurse bladder" when i gotta go, i gotta go!!

any feedback would be welcome!!
Thanks in advance!

Amanda

[leelee88]

Just having frequency does not mean you have IC, Do you have any other symptoms, Like pain, burning? If you do not want to get a hydro done you could have a pottasium test done and if it burns really bad , that could be a good sign you might have IC.. I would talk more to your dr though and try ruling out other things