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Does this sound like IC?????

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  • Does this sound like IC?????

    While watching TV three nights ago, I experienced sharp pains that seemed to be vaginal. I'd get a really painful one and then it'd go away. As the night went on, it became more frequent and sleeping that night was very difficult. I'm a tummy sleeper and that was definitely out of the question. My husband said I moaned as if in pain many times throughout the night. I awoke about every two hours to pee because of the pressure on my bladder. It didn't hurt to pee, and in fact it relieved the pain.........until my bladder would begin filling again. The area over the bladder was hypersensitive to touch. I ended up going to the emergency room the next night after first presenting to a prompt care facility. The doc at the prompt care advised me to go to the ER because I needed testing to rule out diverticulitis. After all was done and over, 5 hours later, diverticulitis was ruled out and they didn't know what was causing the intense pain I was having. I was sent home with Vicodin and am now wondering if I should go to my regular doc or skip him and head to a urologist. Yesterday the pain was off and on all day long and I can best describe it as feeling like what bladder spasms must feel like. Can anyone help me??? I'm 51 and 4 years menopausal, which was natural. I don't have an appendix or a gallbaldder, so it's not either of those. The prompt care doc ruled out female organ problems by doing a pelvic exam. I'm sorry to go on so long, but I need advice...........

  • #2
    Hi there! Did they do a urinalysis to rule out a UTI?? If you haven't gotten any relief, I would go to my regular doctor or a uro to discuss what's going on. I had urethral spasms (ouch) and my doc gave me Ditropan (this was before we got the diagnosis of IC, we thought it was just urethral spasms period) and that worked wonderfully for the spasms.

    There could be so many things, it would definitely be best to head to a doctor and go from there. And the sooner you go, the sooner you can figure out what's going on and start whatever treatment is necessary to make you feel better as soon as possible!!!

    Hugs,
    Tracey
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

    Comment


    • #3
      I agree about testing for a UTI or Kidney infection.
      God grant me the serinity to withstand the days ahead!!!

      My myspace link...
      www.myspace.com/patricia_luvs_matt


      Patricia

      In Memory of My Father (Lawerence) 1/25/2007

      Procedures:
      Interstim Sept 2001
      1st InterStim Removal May 2005
      2nd Interstim Implanted May 2005
      2nd InterStim Removed March 2007
      Hysterectomy 1999
      Tubes Tied 1997
      C-Section 1996


      Me and my kids


      Taylor (my daughter) Me and my daughter My son Cody and Taylor

      Comment


      • #4
        I'm very sorry you are suffering like this. In my opinion(i'm no doctor!) I would try to get into a urologist ASAP. If it's going to be a while, like with most specailist, I would go to your gp and leave a urine sample like the other ladies suggested to rule out uti. Also, in the mean time otc pyridium(Uristat, Azo Standard) can bring releif to some of us. For me it is a miracle! Good luck to you!

        Erika
        IC diagnosed officially via cysto/urodynamics 1/26/07

        Grade II Endometriosis diagnosed via lap 12/11/07

        "Fall down seven times, Stand up eight."

        "Life is a tragedy for those who feel and a comedy for those who think."

        Current Treatments:
        Interstim Since 5/25/07!
        Birth Control

        Comment


        • #5
          I agree with the others... make sure you were/are tested for a urinary tract infection, and if you don't have one, then it's time to see your doctor. If your insurance requires referrals, you'll probably have to go to your regular doctor first, but it sounds like you may end up at a urologist. They can rule out a bunch of stuff... IC is in part a diagnosis of exclusion, so you may not get a diagnosis immediately. Be prepared for that, it's normal... frustrating as all heck, but normal
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            Thank you all for your help! I did forget to include in my story that they did rule out a UTI. They didn't do a KUB (kidneys,ureter,bladder xray), which I thought was odd, but of course at the time being so uncomfortable, I didn't think to ask why they didn't do one. My urine was clear according to the ER. I've put a call into my regular doc and am 'patiently' waiting for them to call me back this afternoon.

            Again, thanks to you all! I'll keep you posted...........

            Comment


            • #7
              I went to my regular doc today and he thinks I am suffering from IC and has now referred me to a urologist. He also gave me an anti-spasmodic called Levbid that I'm hoping will kick in soon and hold me over until I get to the uro.

              One more question..............does this condition come and go? I have the pain still, but much less intense than when it started a week ago. Is this IC's pattern? Thanks!

              Comment


              • #8
                Well, to be honest, it's different for everyone, That makes it hard to say yes, it always does this or that etc. Maybe it's "lightening up" because you have been eating foods that aren't too aggrivating to your bladder?? Um, under less stress? It does most times cycle in "flares", when the bladder is angry about something, it can last for a week or so or even just a few days - in the range of you are very very aware that your bladder etc is there, then it can start to calm down and feel better with some TLC Most of us have flares from something we've eaten or drank, hormones are another aggrivator, stress, etc...

                Have you looked at the IC Diet? That is something you can try for yourself. It can be a very helpful tool in managing symptoms, it was a life-saver for me! Especially in the beginning, which most of us agree is the worst time - the time prior to diagnosis. It can be VERY helpful. Here's link to it in the handbook:
                http://www.ic-network.com/handbook/diet.html

                If it is IC, sounds like maybe you've "caught" it quickly - sounds like you have a good doctor - and can get on the road to feeling better! There are lots of medications and lots of combinations of those medications that can work really well - sometimes it's trial and error in finding the right one for you. I wish when I went in to see my doc for the spasms we would have started investigating IC right then, *sigh* Oh well, doing great now (knock on wood - no point in jinxing myself, hee hee), thanks to the diet and finding the magic bullet of med combos for me!

                Keep us posted as to how you're doing!!!

                Hugs,
                Tracey
                Hugs,
                Tracey
                How do you eat an elephant? One bite at a time...

                Harry arrived 2/23/09!



                *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                IC Diet Cheat Sheet:
                http://www.ic-network.com/diet/2009icdietlist.pdf



                Dx's:
                IC dx'd Nov 2004
                Lymphocytic Colitis dx'd July 2005
                Possible IBS
                Current IC Meds
                Vistaril 25mg in the evening
                Previous IC Meds taken:
                Cystoprotek - 2 caps 2x's a day
                Elmiron, 100mg 3x's a day
                Ditropan, 5 mg 3x's a day
                Others:
                Wellbutrin 150mg 2x's a day for Anxiety/IBS
                Pepcid 40mg a day for GERD
                Zytrec for Nasal Allergies
                Align Probiotic daily for IBS

                Comment


                • #9
                  Originally posted by ljg7094 View Post
                  I went to my regular doc today and he thinks I am suffering from IC and has now referred me to a urologist. He also gave me an anti-spasmodic called Levbid that I'm hoping will kick in soon and hold me over until I get to the uro.

                  One more question..............does this condition come and go? I have the pain still, but much less intense than when it started a week ago. Is this IC's pattern? Thanks!
                  There is no pattern for IC. Sometimes I can go for days without any symptoms, maybe even a week or so. Then sometimes I have symptoms almost daily. Sometimes the symptoms are worse than other times...no patterns. IC is a lifelong desease that has not cure, but treatment is effective for a lot of us. Some have a harder time finding treatment that works for them. It seems like I know "my desease" now and I can live with IC without it changing my life. I just know that I need to be a girl scout...be prepared.
                  TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                  My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                  Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                  Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                  I post to encourage and offer total support for rescue instillations.
                  Find me on facebook: L. Clark Thomas
                  Louann

                  Comment


                  • #10
                    My symptoms generally come and go like L. Thomas posted above. Sometimes they go away completely for days at time, other days mild symptoms that can be well-controlled by my meds, and I recently had a complete 2 month remission! Unfortunately that remission has ended, but I sure enjoyed my vacation from IC!

                    Comment


                    • #11
                      My suggestion, like Tracey's, is to give the diet a try. It shouldn't hurt and just may help relieve your symptoms. You'll especially want to eliminate such things as coffee, tea, fruit juices, citrus, and tomatoes.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #12
                        I think that IC is different for everyone. Like my Gastroenterologist said to me, IC is like irritable bowel but of the bladder. And he said that it is unfortunate that there is no cure, and that urologists seem to be still in the dark ages when it comes to knowing much about the bladder and it's function according to my GI doc, and from what I have seen with my uro docs, he is right about that.

                        Also, I just thought I would add, just because the prompt doc did a pelvic exam does not rule out that the problem could still be gyne related. My mother in law had a ovarian cyst that was as big as a grapefruit and the gyne did not detect it during the pelvic exam. Maybe an ultrasound would show if anything could be going on there. That is just a thought.

                        Also, if you have any urogynecologists in your area, maybe it would be good to see one of them as they specialize in the uro area as well as the gyne area. Good Luck and hope you get better soon.
                        Jen

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