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  • Not an UTI

    So in Septemeber I have been getting what we thought were UTI's but all cultures have come back negative. This week I have had intense flank pain and bladder spasms. My CT was negative for stones and UA and cultures were negative, except for some microscopic blood. I was on 3 days of Cipro, until the culture came back negative. On Friday I went back to the doctor's because of the bladder pain, frequency, urgency, only passing small amount of urine. The doctor wasn't sure at first but after discussing how my endometriosis feels completely different, he decided to try me on FLomax and to get an Urology consult this week. I am still having the bladder pain, urgency and frequency but I now am not having trouble passing my urine. He feels like I may have IC or something similar, this is my 6th incident since September. I am not the healthiest person, I have endometriosis (on Lupron since October), GERD, Bile Reflux, Hiatal Hernia, Chronic Gastritis, Barrett's Esophagus, Gastroparesis, asthma, severe allergies, chronic sinusitis and Selective IgA Deficiency. It seems that as soon as I get one under control, something else flares. I already take both Zyrtec and Singulair, for allergies. i am already on a low acid diet (also low fat, low fiber). I decided today to start Prelief as it can only help me. I hope just to get all my problems under control. Sorry this is so long.
    Last edited by ktrn79; 03-18-2007, 09:35 AM.
    I have numerous health problems, including endometriosis, IC, pudendal neuralgia, pelvic floor dysfunction, pelvic dyssnergia.
    My meds:
    Seasonale
    Atarax
    Zanaflex
    Elavil
    Lactalose

  • #2
    HI! You sound like most of us on here....lots of health issues and just when you think you have one conquered...or at least have a handle on it......another one arrises!
    You sound like I did in the begining of my IC over 25 yrs ago. At least now doctors know symptoms and medication to help.
    Most times when I've gone to my dr. with what I thought was a uti.....it wasn't...just IC pain at it's best. My dr. puts me on 500mg of Cipro for a few days.....even it the tests come back neg. and that got me thru the flare.
    I hope you get a diagnosis soon and a good treatment plan. Good luck! Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

    Comment


    • #3
      wow we do have alot of the same problems. I had my gallbladder out in September, when I had the first incident.
      I have numerous health problems, including endometriosis, IC, pudendal neuralgia, pelvic floor dysfunction, pelvic dyssnergia.
      My meds:
      Seasonale
      Atarax
      Zanaflex
      Elavil
      Lactalose

      Comment


      • #4
        Hello and welcome! Roxie's so right, it seems that once you get one thing under control or at least a handle on it, along comes something else, lol. Ugh!

        I too hope you get a diagnosis of what's going on and get the right meds so you can start to feel better soon!!!

        Hugs,
        Tracey
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #5
          Hi there.
          Wow, you have alot going on. I also have motility issues of the gut. I belong also to the gastroparesis group, (a very wonderful group). I feel for you there as GP is another awful disease to live with.
          I noticed you mentioned that you are having trouble passing urine. Do you think maybe any of your meds could be causing that. I notice you are taking antihistimines, and they can cause urinary retention for some. Just a thought. I do hope you get better soon.
          Jen

          Comment


          • #6
            I belong to the GP yahoo group too. GP stinks. I am on Reglan, Protonix and Carafate for the GP. I have been on antihistimines for 10 plus years. The difficulty is only when these flares happen which first started in September. We will see what the Urologists says. Another specialist to add to my ever growing list.
            Last edited by ktrn79; 03-18-2007, 09:33 AM. Reason: added info
            I have numerous health problems, including endometriosis, IC, pudendal neuralgia, pelvic floor dysfunction, pelvic dyssnergia.
            My meds:
            Seasonale
            Atarax
            Zanaflex
            Elavil
            Lactalose

            Comment


            • #7
              Update

              I have my first Urology appointment tomorrow. I hope it goes well!
              I have numerous health problems, including endometriosis, IC, pudendal neuralgia, pelvic floor dysfunction, pelvic dyssnergia.
              My meds:
              Seasonale
              Atarax
              Zanaflex
              Elavil
              Lactalose

              Comment


              • #8
                HI! I'll be thinking of you tomorrow at your URO appt. Keeping my fingers crossed for ya! Roxie

                Double Spinal Cord Stimulator surgery 8/09
                Unsuccessful MiniArc sling surgery 12/07
                Dx'd Hypothyroid
                Dx'd Chronic Axonal Neuropathy & Myopathy
                June 2007
                Dx'd IC May 2006 (after suffering for 25+ yrs!)
                First Cysto 1979
                First Hydro 1981 (Many treatments since then!)
                Collagin"Durasphere" injections for urethra
                Gall bladder surgery Aug. 2004
                Gastric Bypass Dec. 2004
                Dx'd: Barrett's Esphogus July 2004
                Dx'd: Vaginal Atrophy 2005
                Bladder surgery 2000
                Dx'd: IBS 2000
                Hysterectomy (fibroids) 1999
                Laminectomy 1989
                Dx'd: Degerative Disk Disorder 1989

                For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                Comment


                • #9
                  It's good that you'll be seeing a urologist. I hope you have a fruitful appointment.

                  Donna
                  Stay safe


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                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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