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Feeling like I have to pee all the time!

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  • Feeling like I have to pee all the time!

    My spasms have finally stopped, knock on wood, but now I have the constant feeling of needing to pee. I MAKE myself get up in the middle of the night at least twice b/c if I don't all hell breaks loose in the morning with my bladder. All I drink is water now, b/c I've come to realize that Coke or any other carbonated drink makes me hurt, so that sucks. I love lemon in my water, but I'm afraid to add some b/c of the acid. What do ya'll think? Good or bad idea?
    Looks like I'm an IC'er too

    Currently taking:

    Urised 1 tablet 4 x a day..My 3yo loves the fact that my pee is now blue

    Lexapro 10mg

  • #2
    Unfortunately, frequency is one of the bad things about IC. I hope you will soon find something that will help.

    Warm healing thoughts,
    Donna
    Stay safe


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    [3MG]

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    Comment


    • #3
      Before I knew what was wrong with me I found that if I drank a lot of water it really helped. And then I had the bright idea that adding lemon to the water would REALLY help since it's a natural diaretic. It turned out to be a BAD, BAD idea for me! All that time until I was diagnosed I was putting lemon into my bladder. I know that some say that lemon is not an irritatant because it becomes alkaline in the body (or something like that, I don't remember the specifics). But in my case, lemon is a huge trigger. Any lemon or other citrus and I am soon burning in my bladder.

      I remember for the last several years that after a glass of lemonade I'd be running to the restroom quickly and often (but no pain). I always laughed and said "Wow, lemonade goes right through me" but never figured out why.

      When my symptoms really started to get bad I was at a party and had been having a lot of pain and discomfort that day. I knew that I really needed fluids in there to make me feel better, so I drank a couple of glasses of homeade lemonade. Then I literally went to the bathroom four times in 15 minutes. Oddly, I did feel better because I had peed a lot, but that wouldn't be the case now as my bladder is super sensitive.

      So, my advice is not to add lemon to your water :-) But, I know that some can tolerate it, so it may be a trial and error thing with you, as so many things are with this disease! Good luck!
      Last edited by jjt001; 03-29-2007, 02:43 PM.

      Comment


      • #4
        HI! I can't drink anything but water these days......and esp. no lemon or anything citrus or with citric acid.
        Have you tried Azo (OTC) or Elavil (prescription) for the frequency? Sounds like you need to 'calm' your bladder down. That feeling of having to go all the time is really the pits! I feel for you! I hope you get it calmed down soon......but stay away from the lemon! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment


        • #5
          My opinion: Lemon is a bad idea. I know how boring it is to just drink water all the time, but for me at least, the lemon is not worth it.
          Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
          Wishing you happiness and good health, and all the best out of life.

          Peace, Carolyn
          ___________________________________________________

          Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


          On the Beach with IC

          Comment


          • #6
            When I first started having symptoms I tried Azo. I'm not taking it anymore since I've read on hear that it could be an irratiant. As for the other meds, my Urologist pretty well blew me off b/c nothing showed on the Cystocospy.
            Looks like I'm an IC'er too

            Currently taking:

            Urised 1 tablet 4 x a day..My 3yo loves the fact that my pee is now blue

            Lexapro 10mg

            Comment


            • #7
              HI! I think you should look for an IC dr. Some times dr.s just go by symptoms to diagnosis.
              As for the Azo.....did it cause problems for you? I know quite a few women who use it and hasn't ever caused any of us a problem. Infact when one of us runs out we call another friend and borrow some till we can get to the drug store. lol It's always the first thing I grab when I have that first pang of bladder pain. Good luck! Roxie

              Double Spinal Cord Stimulator surgery 8/09
              Unsuccessful MiniArc sling surgery 12/07
              Dx'd Hypothyroid
              Dx'd Chronic Axonal Neuropathy & Myopathy
              June 2007
              Dx'd IC May 2006 (after suffering for 25+ yrs!)
              First Cysto 1979
              First Hydro 1981 (Many treatments since then!)
              Collagin"Durasphere" injections for urethra
              Gall bladder surgery Aug. 2004
              Gastric Bypass Dec. 2004
              Dx'd: Barrett's Esphogus July 2004
              Dx'd: Vaginal Atrophy 2005
              Bladder surgery 2000
              Dx'd: IBS 2000
              Hysterectomy (fibroids) 1999
              Laminectomy 1989
              Dx'd: Degerative Disk Disorder 1989

              For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
              I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

              Comment


              • #8
                Monkeys,
                Did your uro just do an in office cystscopy or did he do a hydro/cysto because from what I understand a lof of IC bladders will look completely normal during an office cystscopy and will not show the signs of IC until a hydro/cysto is done. When I had my office cystscopy done he could see areas of chronic inflammation but he wasn't willing to say it was IC yet. He put me on Macrobid for 6 weeks!(which isn't work AT ALL) and then told me that if I didn't feel better after that he would do the hydro/cysto. If all he did was the office one then I would probably consider going to a different dr who will try harder to get to the bottom of your problems.
                Christine



                I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                I have tried every oral medication as well as rescue instills and DMSO.

                I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                Also proud mom to the best Bullmastiff on earth, Claus

                Comment


                • #9
                  Ok....first...NO LEMON!

                  Second, AZO (for me) is a blessing and a course. It does stop that constant need to pee, but it also seems to increase some of my burning and irritation in my urethra/vaginal area. But, it it stops that constant urge to pee and lets you get some rest, it may be worth it.

                  Third, you are not alone, my first uros blew me off because my bladder looked fine in an in office cysto. Thankfully, I found wonderful uro who believed in me and agreed that my symptoms were really IC.

                  Finally, there are many other meds you can try. Keep looking for a good doctor! There is a great list of ic specilists on this site.
                  mom_in_ma

                  Comment


                  • #10
                    have you tried kool-aide?
                    'The will of God will never take you where the Grace of God will not protect you.'

                    Comment


                    • #11
                      What flavour of koolaid

                      Hi tigger what flavour of koolaid can you drink ?:woohoo: Let me know because i love koolaid and can drink anything but water and milk . LOREN
                      :Loren

                      Current Meds
                      Elmiron 300mg tid
                      Elavil 25mg at hs
                      Atarax 50mg bid
                      Tramacet as needed
                      Vitamin D 2000 iu bid
                      Gabapentin 300mg tid
                      Uracyst instillatons one a month

                      Comment


                      • #12
                        I go to my OB on April 8. So, I will see what she says. I'm really worried about starting my period again b/c that is when I had most of my pain. What kind of Kool-Aid do you drink? I've always hated that, but if it means being able to drink something other than water, bring it on!!
                        Looks like I'm an IC'er too

                        Currently taking:

                        Urised 1 tablet 4 x a day..My 3yo loves the fact that my pee is now blue

                        Lexapro 10mg

                        Comment

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