Do you think this may be IC or not?

[rtapmb]

I have had problems for years now. I finally have my doctor realizing that it is not all in my head but I have to tell him where to look. I have had many UTI in the past which come quick (within 1 hour of feeling it come on my urine is red with blood) but overall I have not really had one in about 2 years. I still have the pressure of always having to go, pain during sex but not when I go pee. Just have a cystoscopy and cystometrogram done. Well that really hurt. The Urologist was really good and took the time to try not to hurt too much. So far all I know is that my bladder is really inflammed and swollen. My capacity was 5cc, not good. He put me on Macrobid antibiotics for a month and wants to see me in 6 weeks. I go to the bathroom at least 20 times a day and night. What should I ask when I go back? Could it be a bacterial infection for years without showing up in tests or not having a fever or anything else.

[petrie86]

Sounds to me like you have IC... Although I'm not a dr. Is uggest your trying to find a specialist in Ic around your area. I dont think your dr know's much about ic. I had pretty much the same scenerio as you. I felt like I had uti's for over 2 years. I was giving antibiotics over and over again. No sign of bacteria in my urine. So I finally saw a specialist and I was finally dxd.

I was recently on Macrobid... ughh I hate that med. It made me nausious and throw up. I hope that it doesnt have the same affect on you.

Wishing you all the luck.

Rachel

[kjd]

Huni

this sounds like you have IC to me. You're symptoms are pretty much the same as mine and I too had lots of uti's in the past.

I also was told it was all in my head constantly so well done for finally getting them to listen to you.

I was given so many antibiotics it was a joke and they made me feel terrible. It took me a 2 years to be diagnosed so it does take awhile so be patient! Some doctors dont recognise IC while others recognise it very well so it all depends on which dr you see really!

I will get as much info together as you can and try the IC diet, maybe by some books??

If it is IC it does get easier in time I promise
x

[patricia1]

You do have signs and symptoms of IC. And some doctors do diagnose IC on symptoms alone, but either a cystoscope with hydrodistention (done under sedation in OR) or the PST (potassium sentivity test) done in doctors office are truly the only way to diagnose it.

You can look in the patient handbook link above. It has great wealth of info. Also something else I would suggest doing while you are doing the antibotics is the IC diet. You can find out the list in the handbook

[ICNDonna]

I have to agree that interstitial cystitis sounds like a possibility.

Donna

[rtapmb]

Thanks for everyone's support. Hopefully my family doctor is right and this urologist is a specialist in IC. I have been on the antibiotics since Friday and I feel worse now that I did before I went on them. I will give them a chance though. Hopefully when I go back I will get more answers, and hopefully some relief. Also wish my husband would understand that I am totally exhausted.