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  • Does this sound right to you?

    I'm starting at the beginning... Sorry in advance about the long story, but i need your experience and your !!

    A couple of years ago, I was having incontenance problems. It seemed like everytime I went to the bathroom, my underwear was a little wet. This lasted quite a while. Then I had an irregular pap and was sent to a gyn. She dx a rather large fibroid and recommended a hysterectomy. I asked if the fibroid could be causing bladder issues and she said yes. So, in hopes of solving my bladder problems, I had the surgery in September. (Plus, at 44yo, I know that fibroids just get worse) By this time, the incontence had stopped, but I was having urgency pain alot... and sometimes the feeling of an UTI that would go away on it's own by the next day... strange.

    Now, still having urgency issues, and now pain after urinating, I went to a new PCP. He did a urinalysis, and found blood in my urine. So, he put me on an antiboitic (cypro) for a week, retested and found blood in my urine again. Surprised? Anyway, he mentioned I could have IC and sent me to a Uro.

    So, yesterday, I went to the Uro for the first time... I thought it was important that he know my whole history, so I told him about the incontenance and that it went away after the hysterectomy. And that I am having mostly urgency pain, and pain after urination, but the symptoms come and go. He did a urinalysis and found blood in my urine again

    So, he sent the urine out to be tested further by a lab... ok... Then he did a pelvic exam and told me that my bladder was "well supported". Then he told me that I would need further testing. He told me that he would need to look at my bladder through a scope (I was expecting that after reading this web-site). And he said he wanted to put me on anti-biotics.. I told him I had already done that... He actually listened and didn't put me on the meds YAY :woohoo: One point in his favor... He did put me on enablex and said it could help me... we'll see.

    Now the weird part... I go and check-out and the nurse says they want me back for 2 procedures. One of them is the cysto... and the other is a "Pressure Flow Study", I said what's that? She said here's the instructions, and sent me on my way. Well, I looked it up on the web, and it's mostly given to Men with Flow problems to dx Prostate problems!! WHAT??? For women, it can dx incontenance problems... Did he hear me??? The incontenance went away! This is a very invasive test, have any of you had this done? Did it conclude anything for you? Does it sound like I could have IC? Maybe he's looking for something else, he really didn't say anything to me about this.... So... Please Help!

    Thanks for Listening!
    Diane
    ~Diane
    dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

    Medical History:
    c-sections: 1988, 1991, 1997
    Viral Arthritis 1998 (Like RA, but went away!! )
    Pterygium & Dry Eyes since 2005
    Hysterectomy (Fibroids) 2006

    ~~~~~~~~~~~~~~~~~~~~~~~~~

    Me & Jerry ~ Sammy & Ryan
    ~~~~~~~~~~~~~~~~~~~~~~~~~

  • #2
    It sounds very much like this a part of the "ruling out" process for diagnosing IC. Many of us have had these tests. An IC diagnosis includes first ruling out other possibilities --- it sounds like this uro is on the right track.

    Donna
    Stay safe


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    • #3
      Yup I am with Donna there.. He prob wants to rule out other things..
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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      • #4
        Thanks!

        I'm just freaking out about the whole thing... Reading this site, makes me feel not so alone. I just read a whole lot about office cysto's and hydro/cysto's, but never pressure flow tests. I'm glad that others had this type of testing as well. I guess I'm nervous about my dx, the testing, etc.

        I'm glad you are all here to listen.
        ~Diane
        dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

        Medical History:
        c-sections: 1988, 1991, 1997
        Viral Arthritis 1998 (Like RA, but went away!! )
        Pterygium & Dry Eyes since 2005
        Hysterectomy (Fibroids) 2006

        ~~~~~~~~~~~~~~~~~~~~~~~~~

        Me & Jerry ~ Sammy & Ryan
        ~~~~~~~~~~~~~~~~~~~~~~~~~

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