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  • Office cysto tomorrow... Nervous

    Just gotta get this out... So, Thanks in advance for any and all advice and support.

    I see my Uro tomorrow for the office cysto. The nurse gave me "instructions" for the procedure, but there is a typo on it under How long will it take?... "The actual procedure approximately one minute after the nurse prepped you." and that's all it says... so, how long does the procedure usually take?

    After the cysto, I get to have a consultation with my doctor. I should get the results of all of the tests I have taken... Kidney Ultrasound (Ordered by my PCP), cytology, NM22, Urodynamics and cysto. sheesh! My Uro hasn't mentioned any possible diagnosis. My PCP mentioned IC to me and sent me to a Uro based on my symptoms and chronic hematuria. Assuming I don't have cancer , If he doesn't mention IC, should I bring it up as a possibility? Should I ask for the Potassium Sensitivity Test? I certainly don't want to ask for a hydro/cysto. What about biopsy, Can they do a biopsy during an office/cysto OUCH or does it need to be done during hydro/cysto under anesthesia?

    Oh yeah, I can have a family member present during the consultation... Is it helpful to have someone there with me? I don't really have anyone to ask. My bf knows that I'm having testing done, and that I have "bladder issues". He knows about the blood in my urine, and he thinks that's normal. huh? I don't tell him when I'm in pain. Well, a couple of times, I just said, "My tummy hurts, I'll Live". Thank God, my pain is usually moderate and doesn't last long.

    Sorry about the rambling... I'm just nervous. I heard alot of you say that the worst part is before diagnosis... I sooooooo agree!! The closer I get to that appt, the harder it is to concentrate on work, etc.
    ~Diane
    dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

    Medical History:
    c-sections: 1988, 1991, 1997
    Viral Arthritis 1998 (Like RA, but went away!! )
    Pterygium & Dry Eyes since 2005
    Hysterectomy (Fibroids) 2006

    ~~~~~~~~~~~~~~~~~~~~~~~~~

    Me & Jerry ~ Sammy & Ryan
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  • #2
    I just want to send you a (((hug))) and well wishes for tomorrow. I did not have this done in the doc's office. I had the cysto/hydro under anesthesia for diagnoses. I hope all goes well and you get some answers.

    I love your choice for your avator. She looks like you.
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.



    Link to the ICN Patient Handbook:
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    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      It only takes about 5 minutes or so. I did not like it. I much preferred that they put me out and do the hydro, cysto thing. Furthermore, I believe the you have to be put out to know for sure if you have IC -- unless the damage is so bad that it shows up on a regular cysto, because the bladder needs to be overfilled in order to see the damage.

      If the doctor comes up with no diagnosis, I would mention IC to him. My first cysto, the doctor was completely wrong. He said my uterus was tilted and I was just going to have to DEAL with the bladder pain and frequency. My uro/gyno totally disagreed.

      Needless to say, I was diagnosed by a better doctor who gave me a cysto/hydro one month later and found out that I have IC. For sure, be an advocate for yourself! Good luck!

      Hope this helps.

      Colleen
      Last edited by beandip; 04-24-2007, 07:53 AM.
      Diagnosed October 2006
      Medications
      Percocet
      Hydroxine
      Elmiron
      Monthly installations

      Comment


      • #4
        Actually, for an in office cystoscopy they usually do not put you out unless you insist before hand.
        When I had my first in office cystoscopy, it was very painful. Though, I was already inflammed because of the IC to begin with so maybe that is why I had all the pain.
        When I had my second cystoscopy which Dx my IC, I insisted on being sedated. The urogyne who did it said that he never does in office cystoscopies on his IC patients as it is too painful. I guess it just depends on the doctor. And not everyone will have pain with the procedure either. I guess it all depends. Good Luck and hope all goes well. I would bring someone with you if at all possible. It is always good to have someone with you to back you up and support you if at all possible.
        Jen

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        • #5
          Diane,
          I promise it's not that bad. It lasts about 5 minutes at the most as the other said. It was uncomfortable yes but not unberable. I personally took the whole day off from work because I didn't want to have to worry about how I was going to feel afterwards and having to go to work. I was sore afterwards and it did burn when I peed but I made sure to up my water intake ALOT and that helped to get rid of the burning really fast. The nurse that was w/ me during mine told me to make sure and breath out while they are bothing the scope in. If you breath out then you are unable to tighten your muscles which will make it hurt more. I agree with everyone else if he doesn't bring up IC then I would def mention it and say this is what your GP was thinking it might be and go from there. Good luck and tell us how it goes!
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

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