Office cysto tomorrow... Nervous

[Cardholic IC Friend Find all posts View Profile Close Cardholic]

Just gotta get this out... So, Thanks in advance for any and all advice and support.

I see my Uro tomorrow for the office cysto. The nurse gave me "instructions" for the procedure, but there is a typo on it under How long will it take?... "The actual procedure approximately one minute after the nurse prepped you." and that's all it says... so, how long does the procedure usually take?

After the cysto, I get to have a consultation with my doctor. I should get the results of all of the tests I have taken... Kidney Ultrasound (Ordered by my PCP), cytology, NM22, Urodynamics and cysto. sheesh! My Uro hasn't mentioned any possible diagnosis. My PCP mentioned IC to me and sent me to a Uro based on my symptoms and chronic hematuria. Assuming I don't have cancer , If he doesn't mention IC, should I bring it up as a possibility? Should I ask for the Potassium Sensitivity Test? I certainly don't want to ask for a hydro/cysto. What about biopsy, Can they do a biopsy during an office/cysto OUCH or does it need to be done during hydro/cysto under anesthesia?

Oh yeah, I can have a family member present during the consultation... Is it helpful to have someone there with me? I don't really have anyone to ask. My bf knows that I'm having testing done, and that I have "bladder issues". He knows about the blood in my urine, and he thinks that's normal. huh? I don't tell him when I'm in pain. Well, a couple of times, I just said, "My tummy hurts, I'll Live". Thank God, my pain is usually moderate and doesn't last long.

Sorry about the rambling... I'm just nervous. I heard alot of you say that the worst part is before diagnosis... I sooooooo agree!! The closer I get to that appt, the harder it is to concentrate on work, etc.

[SharonA ICN Member Find all posts View Profile Close SharonA]

I just want to send you a (((hug))) and well wishes for tomorrow. I did not have this done in the doc's office. I had the cysto/hydro under anesthesia for diagnoses. I hope all goes well and you get some answers.

I love your choice for your avator. She looks like you.

[beandip IC Friend Find all posts View Profile Close beandip]

It only takes about 5 minutes or so. I did not like it. I much preferred that they put me out and do the hydro, cysto thing. Furthermore, I believe the you have to be put out to know for sure if you have IC -- unless the damage is so bad that it shows up on a regular cysto, because the bladder needs to be overfilled in order to see the damage.

If the doctor comes up with no diagnosis, I would mention IC to him. My first cysto, the doctor was completely wrong. He said my uterus was tilted and I was just going to have to DEAL with the bladder pain and frequency. My uro/gyno totally disagreed.

Needless to say, I was diagnosed by a better doctor who gave me a cysto/hydro one month later and found out that I have IC. For sure, be an advocate for yourself! Good luck!

Hope this helps.

Colleen

[jen74 ICN Member Find all posts View Profile Close jen74]

Actually, for an in office cystoscopy they usually do not put you out unless you insist before hand.
When I had my first in office cystoscopy, it was very painful. Though, I was already inflammed because of the IC to begin with so maybe that is why I had all the pain.
When I had my second cystoscopy which Dx my IC, I insisted on being sedated. The urogyne who did it said that he never does in office cystoscopies on his IC patients as it is too painful. I guess it just depends on the doctor. And not everyone will have pain with the procedure either. I guess it all depends. Good Luck and hope all goes well. I would bring someone with you if at all possible. It is always good to have someone with you to back you up and support you if at all possible.
Jen

[GriffsMommy ICN Member Find all posts View Profile Close GriffsMommy]

Diane,
I promise it's not that bad. It lasts about 5 minutes at the most as the other said. It was uncomfortable yes but not unberable. I personally took the whole day off from work because I didn't want to have to worry about how I was going to feel afterwards and having to go to work. I was sore afterwards and it did burn when I peed but I made sure to up my water intake ALOT and that helped to get rid of the burning really fast. The nurse that was w/ me during mine told me to make sure and breath out while they are bothing the scope in. If you breath out then you are unable to tighten your muscles which will make it hurt more. I agree with everyone else if he doesn't bring up IC then I would def mention it and say this is what your GP was thinking it might be and go from there. Good luck and tell us how it goes!