Still no answers

[Cardholic]

Had the office cysto yesterday. Not as bad as I was worried it would be. My urethra is not as sensative as many of yours. Anyway, my bladder looked normal and healthy. All of my tests came back normal! No cancer!!!! and for the first time, no blood in urine ... so, my Uro was ready to release me, but I told him that I'm still having weird mixed symptoms. Sometimes pain, sometimes frequency, sometimes urgency. My pain has settled to mainly the left lower abdomen, and of course the stabbing pain I sometimes get in my vagina after voiding. He said he wanted to do a CT scan just to make sure he's not missing anything. He still didn't mention IC, and I didn't bring it up .. I'm not very good at talking to Doctors. I'm feeling like a head case but I know I'm not making up this pain... but at the same time, I can and have been living with it, and functioning fine... I just want answers...

[waterflow]

I've had 3 ct scans. Have you had your ovaries and such checked? Has he done any other things then the cysto? I wouldn't mention the IC to him either. Let him figure out what is wrong and then if he says nothing then mention the IC and see what he says. I had a hard time talking with the doctors too. Still do other then my Uro. They say people fear the white coat.

[vm]

That is wonderful that the scope ruled out some things for your uro - IO bet that was a relief. Keep in mind, though, that in office cystoscopies very rarely detect IC. Most ICers' bladders look normal during those scopes. I'm glad he'll be doing further testing to determine what is causing all the symptoms you still have.

[GriffsMommy]

Diane,
I'm glad that you know that you don't have cancer, that's always scary. Sorry you're really not any closer to an answer. If after the additional tests he still doesn't mention IC then I might bring it up. I had a totally different situation. MY gyn diagnoised my IC with the PST but then just put me on Elmiron and sent me on my way. I wanted to see a uro and made an appt myself. I was the one that mentioned IC to him at the first appt and he told me he wanted to rule out everything else first, which he did and it took a couple of months but then I finally had the IC diagnois for sure and now am getting better treatment, hope you will as well.

[Berkshire Road]

Diane, I just wanted to let you know that my pain is also mostly on the left side, lower abdomen (or pelvic) region. And it is IC -- everything else has been ruled out, IC has been definitely diagnosed. My doctor says this left side pain thing may just be an artifact of how the nerve contacts are happening in the spine, or it might be that I have nerve damage on my right side, so that's why I don't feel anything there. He actually did some prodding and it does appear that there's some nerve damage across the center and right side of my lower lower abdomin. Even when I have direct in-bladder pain, I only really feel it at the top of my bladder. I think that pain can refer around so much in a woman's pelvis, that everything needs to be taken seriously, not just a quick look at the left ovary, or whatever.

I hope I'm making sense. I'm falling asleep here, sorry! Go ahead and PM me if this is incomprehensible. I can't even keep my eyes open enough to proofread.