Not "officially" diagnosed yet, but....

[queenbean60]

I've posted to the boards yesterday but figured I'd post here since I'm not "officially" diagnosed yet. Two of my docs, my pcp and my gyno are almost positive I have IC. My gyno suggested visiting this forum and reading up on IC and doing the diet and taking Prelief. She also referred me to a uro who I see on Thursday and who, when I asked his receptionist, said he only treats IC "to an extent" *sigh*. I'm looking for a good doc in the Arizona East Valley area (Mesa, Tempe, Gilbert, Chandler, Apache Junction) who treats IC. If anyone knows of a good doc I'd appreciate the referral.

Right now I have burning pain vaginally, like paper cuts almost...pain and pressure in the bladder area and it kind of radiates to the rectal area. I also get dull pain in the kidney area. My abdomen is totally bloated also, which I hate, since I'm on a diet and just lost 4 pounds (my first week, yay for me! :woohoo: ) and it feels like I gained because I'm so bloated. I also have cramps in the lower abdomen, almost like period cramps, but I had a hysterectomy 25 years ago so that's not the cause.

Anyway, since I've been posting I've had a lot of help and wonderful advice from people here. I want to thank everyone who's been so kind to me. This forum is invaluable. Thank you!

[soccermom32]

I think it sounds like you have pelvic floor dysfunction. The pain and crampiness is a key sign, especially since it radiates rectally. Sounds like a muscle spasm.

Good luck finding a great doctor who will get you well again!

[queenbean60]

Thank you for your help.
More questions...would vulvodynia or Pelvic Floor Dysfunction cause itching and irritation...like razor blades feeling in the vaginal area also? Who diagnoses that? A gyno or uro?
What's VV?
Thanks again for the help!

[ICNDonna]

To respond to your question, have you checked the physician listings on this site? I hope you find a urologist soon.

Donna