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dx: Kidney Stone

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  • dx: Kidney Stone

    Well, I saw my Uro yesterday, CT scan shows I have a 4mm kidney stone in my left kidney. That explains the constant ache, but does not explain my bladder symptoms. He did mention that I could have IC... He explained IC as, "a bladder that doesn't work like it should" and "the only way to diagnose it is to do a cysto/hydro". I declined the cysto/hydro. My bladder symptoms haven't been too bad lately...

    He offered to shock the stone to break it up, but I'm tired of being poked, prodded, tested... He said I could wait for 3 months and see what the stone looks like then, but I'm scared of passing this stone!

    Should I go for the shock treatment? Is it bad to let the stone sit there? I've never had a kidney stone before, but I understand that passing them is VERY painful! I'm re-thinking my decision to wait 3 months.

    I appreciate all of your support. I don't think I could get through all of this testing, waiting, peeing, pain, etc..... without all of you!
    dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

    Medical History:
    c-sections: 1988, 1991, 1997
    Viral Arthritis 1998 (Like RA, but went away!! )
    Pterygium & Dry Eyes since 2005
    Hysterectomy (Fibroids) 2006


    Me & Jerry ~ Sammy & Ryan

  • #2
    Get the "shock." It doesn't hurt. Then whatever pain is coming from the stone will be gone, and you can concentrate on seeing if you still have pain and frequency. If you do, the dx of IC is more likely.

    But, cysto-hydro is NOT the only way to dx IC. You can be diagnosed by PST or by symptoms alone. Maybe get another opinion on the IC? But I would advise taking care of the stone first.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC


    • #3
      I had a "clinical" diagnosis before my actual cysto. I would also get "shocked". I wouldn't imagine it would be good to leave a stone in there to do damage. It is painless and done with shock waves. Hope your feeling better in a jiffy!

      IC diagnosed officially via cysto/urodynamics 1/26/07

      Grade II Endometriosis diagnosed via lap 12/11/07

      "Fall down seven times, Stand up eight."

      "Life is a tragedy for those who feel and a comedy for those who think."

      Current Treatments:
      Interstim Since 5/25/07!
      Birth Control


      • #4
        Yes passing a stone is VERY painful.. I would have the treatment to blast it..

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          I don't know about passing kidney stones but I heard it is very painful. I hope you don't suffer if the surgery can give you relief.

          Just sending many hugs, Trishann


          • #6
            Thanks all for your support. After doing further research, I think I'm going to wait it out. The "Shock" treatment has risks and is usually not necessary for a stone the size of mine. 80% of the time, a stone 4mm or less will pass on it's own without intervention. In fact, they use the "Shock" treatment to get larger stones down to 4mm or less. Also, the "Shock" treatment is sometimes not successful on a stone sitting on the bottom of the kidney which mine is. So, wish me luck on passing it on my own YIKES!
            dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

            Medical History:
            c-sections: 1988, 1991, 1997
            Viral Arthritis 1998 (Like RA, but went away!! )
            Pterygium & Dry Eyes since 2005
            Hysterectomy (Fibroids) 2006


            Me & Jerry ~ Sammy & Ryan


            • #7
              That doesn't sound fun Diane. I have never had a stone but I heard it is not fun. Good luck!

              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
              I have tried every oral medication as well as rescue instills and DMSO.

              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
              Also proud mom to the best Bullmastiff on earth, Claus


              • #8
                Kidney stone

                Hi Diane,
                I have had 7 stones. I have passed some naturally and some removed. Go with getting the stone blasted. My last stone was March 06 and I waited for a month before having it removed. HUGE mistake and I am actually back in hospital next month getting the damage it caused cauterized. I have had nothing but trouble for the last year. If I was you I would get it blasted.
                Best regards and good luck.
                Jodi B


                • #9
                  Good Luck, I hope your stone passes soon.

                  Sometimes to dianose IC they pour some fluid in a cathetar and if it burns, they diagnose you. I've forgotten what it's called. I would do the cysto/hydro. That way they can see inside the bladder, know what kind of condition you are actually in.

                  Good Luck on your decision.


                  • #10
                    Whew! It hurts me just READING about your stone! I cant even THINK about PASSING it! OUCH! I dont know what I'd do either, but I hope they are giving you pain meds to help with that. I wish you the best of luck and hope it passes soon and that the pain meds will ease your pain.



                    • #11
                      Kidney stone

                      Hi Blue
                      I believe from what the doctor told me that I had very bad inflamation due to the last kidney stone. I have to watch what I eat etc. They blew my bladder up with water etc which did not help. I found the name of a new specialist thru this site. She seems to think what I have causes IC symtoms and with cauterization of the bladder neck I will be alot better. I hope this is the case.
                      She is going to put me on permanent medication to stop my stones as well.
                      I am in hospital on the 14 th June. I am not looking forward to the pain at all but if it makes me better, then I can not wait. Bring it on!!!!.
                      Jodi B


                      • #12
                        feel better soon!


                        • #13
                          I have had more stones than I can count and have had the lithotripsy done 3 times as well as a basket retrieval. After the lithotripsy I was sore but just kinda like I did too many sit ups. Passing these suckers does stink. I was in labor for 38 hours, pushed for 4 hours with my daughter and figured if I could handle that I can tolerate just about anything. You need to follow your heart on this. I lived in Las Vegas for a few short months--who is your uro?

                          I hope this goes away soon.

                          (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                          [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                          :angel: IC Angel Volunteer Coordinator :angel:
                          :) Contact me via PM or e-mail if you would like to help
                          I have learned all about life in 3 words: It goes on! :D--Robert Frost
                          PCOS 7/85
                          RSD 7/94 :headbang:
                          Endometriosis 9/98 :toilet:
                          Antiphospholipid antibody syndrome 9/99
                          Kidney stones--too many to count
                          Factor V Leiden mutation 10/02
                          IC 6/03 :evilsmile
                          Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                          "Spirit is an invisible force made visible in all of life"--Maya Angelou
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                          • #14

                            I have chronic kidney stones and after the last tests found that all lobes of both kidneys are highley affected. I had 4mm stones and they thought about shattering them, but said with stones that big there is large risk of damaging tissue surrounding the stones.

                            Good luck and feel better.


                            • #15
                              Was there any mention of crystals in your urine, a byproduct of metabolism that may increase one's tendency to get stones, and I wonder if the crystals can cause bladder irritation?