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No Cysto/Potassium for diagnosis?

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  • MerryBerryMoose
    replied
    Sorry to hear that you had a bad experiences with procedures before but I agree with the posts above me.

    One of the only ways you will know if you have IC is to have a cysto done. I was dxed w/o the Potassium test. And it's the same with any other problem. You can't treat it until you know what it is.

    When I had my cysto they knocked me out under general anastesia (actually, that's the only way my doctor would do it because at the time I was 14). I don't remeber a thing. They gave me Valium before hand, which made me stoned, and Percocet after for any pain I might have had.

    You should really consider having it done, even if it ends up ruling out things.

    -gabby

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  • nekura
    replied
    Originally posted by GriffsMommy View Post
    I'm so sorry that you've had such horrible experiances with the medical community in the past. I would say that personally I wanted to rule our cancer. I know that this may not seem possible for someone who is 19 but when I was in my early 20's I had a mass that was found in my bladder and the uro who saw me really thought it was cancer until it was removed and biopsied(discovered it was endometriosis instead). I would say at the very least you should discuss your concerns with your uro and see what he can do to rule out anything else that could be more serious like cancer but still be the least invasis as possible.

    I will say that some of the test are uncomfortable but I would rather do them and know that I don't have cancer than not have them done at all.
    I think that my chances of cancer are so low that it isn't worth the misery. Most these days are so terrified of cancer that they are willing to have horrible things done to their bodies despite unreasonable odds. If I had family history of cancer or were older, then sure I'd get tested as long as they knocked me out.

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  • leelee88
    replied
    I agree with Christine.. You really need to get the right dg, so you can treat it.. The constant urge to pee can be a few things.. One an UTI or a Kidney stone and IC causes the same feeling.. You really need to get a doctor to check you out...

    Ronda

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  • GriffsMommy
    replied
    I'm so sorry that you've had such horrible experiances with the medical community in the past. I would say that personally I wanted to rule our cancer. I know that this may not seem possible for someone who is 19 but when I was in my early 20's I had a mass that was found in my bladder and the uro who saw me really thought it was cancer until it was removed and biopsied(discovered it was endometriosis instead). I would say at the very least you should discuss your concerns with your uro and see what he can do to rule out anything else that could be more serious like cancer but still be the least invasis as possible.

    I will say that some of the test are uncomfortable but I would rather do them and know that I don't have cancer than not have them done at all.

    Leave a comment:


  • nekura
    started a topic No Cysto/Potassium for diagnosis?

    No Cysto/Potassium for diagnosis?

    I believe I may have IC (my doctor suggested it, kidney stones, or UTI). If it is UTI the antibiotics sure aren’t working. I’ve been popping Uristat like candy to get rid of the constant urge to pee. From what I’ve been reading, if I do have IC, it would be a very mild case. I rarely ever experience “pain”, just a horrible urge to urinate, some pelvic cramping, and blood about every 6 months (summer and spring).

    The problem is that I am terrified of medical procedures. Especially painful ones. I can’t even allow someone else to comb my hair because I may start crying whenever they hit a big knot; everything about me is extremely sensitive.

    Additionally, my background doesn’t help. I had some traumatic eye surgeries done before I was 10 years old and those experiences have given me a severe phobia of invasive procedures. I have even refused required vaccinations for my college. Needles and blood tests frighten me, but if they MUST be done I know I’d live through them, but I also know that I would absolutely refuse a catheter of any sort stuck into me unless I am dying, especially after reading how potentially painful they could be.

    My question is if doctors are able to diagnose IC from symptoms alone? I’m only 19 so I doubt I’d have a long list of possibilities, and am extremely willing to have simple tests such as cultures or X-rays performed.

    I am tremendously stubborn and motivated to not be tortured by the medical community more than I already have been.
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