Announcement

Collapse
No announcement yet.

urethrotriginitis?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • urethrotriginitis?

    Is this just another way of saying I have IC? Did a cystoscopy test and doctor said this was what they came up with. Said to try urethral suppostitories.. Anyone else ever try this?

    Thank you!
    Last edited by jjj2007; 05-23-2007, 03:53 PM.

  • #2
    Hope this helps.............

    I have found a few links that you could follow that might help with the diagnosis you were given.

    http://askwaltstollmd.com/archives/ic/i041998.html

    http://www.cmecorner.com/macmcm/asrm/asrm2003_02.htm

    check these sites ot and see if they can help they both seem to say that it is te beginning or is the same as IC. I had neverheard of it but that is ver interesting...........
    I hope these are help and if you haveany question feel free to contact me.
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

    Comment


    • #3
      HI jjj, Sorry to hear you were diagnosed with IC. It's not easy to leave with but if you start the IC diet right away that should help.
      I've never even heard of the urethra suppositories...sorry. There's lots of great IC meds out there that really help.....so if the suppositories don't help maybe you should ask for some of the other meds and give them a try. Good luck to you......at least you've come to the right site! Welcome! Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

      Comment


      • #4
        Hi there.
        I have heard of the urethral suppositories. I believe a women on one of the other boards I belong to, I believe the LS board was using these. She was using them for urethritis conditions. It is suppose to help with the urethral burning and pain for some people. I had asked one of the urogyne's I use to see about this a little while back and he said he did not prescribe them as he said there is no evidence that they even will help, and they can irritate things further. But that does not mean he is right. I believe the women who I know who uses them does get some relief from them so maybe they will help.
        Jen

        Comment


        • #5
          Thank you for the info.

          In response to Roxie.. they didn't diagnose IC, they diagnosed me with the urethral sydrome. I don't know if in the IC world that's considered the same or not, but they didn't seem to think so!

          Thanks!

          Comment


          • #6
            HI I'm wondering if MSM gel might help you with the urethra pain? It's sure helped me! Roxie

            Double Spinal Cord Stimulator surgery 8/09
            Unsuccessful MiniArc sling surgery 12/07
            Dx'd Hypothyroid
            Dx'd Chronic Axonal Neuropathy & Myopathy
            June 2007
            Dx'd IC May 2006 (after suffering for 25+ yrs!)
            First Cysto 1979
            First Hydro 1981 (Many treatments since then!)
            Collagin"Durasphere" injections for urethra
            Gall bladder surgery Aug. 2004
            Gastric Bypass Dec. 2004
            Dx'd: Barrett's Esphogus July 2004
            Dx'd: Vaginal Atrophy 2005
            Bladder surgery 2000
            Dx'd: IBS 2000
            Hysterectomy (fibroids) 1999
            Laminectomy 1989
            Dx'd: Degerative Disk Disorder 1989

            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

            Comment


            • #7
              MSM gel... that sounds like a good alternataive to medication. It's helped with your urethra? Is it applied directly? The urethra sensation is my only symptom.. don't have pain, frequency, etc.

              Comment


              • #8
                HI Yes it's applied directly......just a little on the end of your finger....since it's a gel it spreads around to where it needs to be lol. I buy it online at www.jacoblab.com When I first bought it I used it 3 times a day......not I just use it once a day for maintinance. Let me know if it works for you if you decide to buy it.......Roxie

                Double Spinal Cord Stimulator surgery 8/09
                Unsuccessful MiniArc sling surgery 12/07
                Dx'd Hypothyroid
                Dx'd Chronic Axonal Neuropathy & Myopathy
                June 2007
                Dx'd IC May 2006 (after suffering for 25+ yrs!)
                First Cysto 1979
                First Hydro 1981 (Many treatments since then!)
                Collagin"Durasphere" injections for urethra
                Gall bladder surgery Aug. 2004
                Gastric Bypass Dec. 2004
                Dx'd: Barrett's Esphogus July 2004
                Dx'd: Vaginal Atrophy 2005
                Bladder surgery 2000
                Dx'd: IBS 2000
                Hysterectomy (fibroids) 1999
                Laminectomy 1989
                Dx'd: Degerative Disk Disorder 1989

                For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                Comment


                • #9
                  urethrotriginitis?

                  Hi jjj2007

                  yes I have tried the suppositoris now 3 times it's a antibiotic combined with a steriod I use it 3x a week for a month this last time I used it for 2 months and it really helps I also added a couple of rescue installations combined with the treatment I feel very good except I am a sufferer of vestibulitis and
                  vulvodynia so I'm not 100pct there I was told I have urethritis and trigonitis
                  every doctor has there own opinion my doctor hasn't diagnosed me with ic since I don't have the hallmark classic ic symptoms .

                  Comment


                  • #10
                    Roxie,

                    What does the MSM gel work against? I don't have pain or burning, just the need to pee (24/7). Does it helps that? Sometimes the feeling seems to come from my urethra (toward the top of it).

                    Anyways... just wanted to see if SOMETHING will help me...

                    Thanks!
                    [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                    [

                    Comment


                    • #11
                      HI! I"m not sure if MSM gel would help you are not....it sounds like you have more frequency and urgency. Have you tried Freeze dried Aloe Vera? That really helps with those problems. It coats and bladder and helps rebuild the lining. I buy mine from this website's store now......the Desert Harvest brand. I take one capsule 3 times a day.......and have for almost 3 yrs now. Roxie

                      Double Spinal Cord Stimulator surgery 8/09
                      Unsuccessful MiniArc sling surgery 12/07
                      Dx'd Hypothyroid
                      Dx'd Chronic Axonal Neuropathy & Myopathy
                      June 2007
                      Dx'd IC May 2006 (after suffering for 25+ yrs!)
                      First Cysto 1979
                      First Hydro 1981 (Many treatments since then!)
                      Collagin"Durasphere" injections for urethra
                      Gall bladder surgery Aug. 2004
                      Gastric Bypass Dec. 2004
                      Dx'd: Barrett's Esphogus July 2004
                      Dx'd: Vaginal Atrophy 2005
                      Bladder surgery 2000
                      Dx'd: IBS 2000
                      Hysterectomy (fibroids) 1999
                      Laminectomy 1989
                      Dx'd: Degerative Disk Disorder 1989

                      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                      Comment


                      • #12
                        Roxie,

                        I thought about taking the Aloe Vera capsules. I have 2 problems with that though. One is, I cannot swallow pills whole. I would have to break it open or crush it somewhow. I don't think I can with those pills. The other problem I have is that my surgeon (he did 2 surgeries on me) consulted the best GI doctor in town about aloe vera capsules (since it seems to affect the colon more than anything). This expert said there are links between aloe vera and a specific type of colitis (can't remember the name right now). He said I should avoid it. So... that scared me from even trying it (if I could find a way to swallow those pills). I do hear that it helps people though...

                        I'm hoping the Elmiron helps... but I'm also on Atarax, Lexapro... and now I can't take Ultram because that upsets my stomach (because I have to crush it). I talked with my PA last week about trying something like Topomax or Neurontin (sp?) and she said they don't prescribe those. My general doctor would have to. She wanted to talk with the urogyno first and they said to try AZO for a few days. That of course doesn't help me. Urispaz, Urised, and Pyridium didn't help. I just feel helpless. That feeling never goes away. Some days it drives me nuts (like today). Do you have any other suggestions for frequency/urgency... just that nagging feeling that I have to pee?
                        [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                        [

                        Comment


                        • #13
                          HI Born 2 Swim......Gosh I don't have any other recommendations.......I hadn't heard that about Aloe Vera. I've done quite a bit of reading about it and never ready anything like that. Aloe Vera pills are capsules that can be pulled apart and put into applesauce or yogert......whatever. You might try it for a while....see if you have any bad symptoms. Roxie

                          Double Spinal Cord Stimulator surgery 8/09
                          Unsuccessful MiniArc sling surgery 12/07
                          Dx'd Hypothyroid
                          Dx'd Chronic Axonal Neuropathy & Myopathy
                          June 2007
                          Dx'd IC May 2006 (after suffering for 25+ yrs!)
                          First Cysto 1979
                          First Hydro 1981 (Many treatments since then!)
                          Collagin"Durasphere" injections for urethra
                          Gall bladder surgery Aug. 2004
                          Gastric Bypass Dec. 2004
                          Dx'd: Barrett's Esphogus July 2004
                          Dx'd: Vaginal Atrophy 2005
                          Bladder surgery 2000
                          Dx'd: IBS 2000
                          Hysterectomy (fibroids) 1999
                          Laminectomy 1989
                          Dx'd: Degerative Disk Disorder 1989

                          For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                          I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                          Comment


                          • #14
                            Yeah, the colitis was a surprise to me too, considering I did research too. I am thinking that since NOTHING is helping and ALL meds carry a risk, why not, right? I have been on Elmiron for almost 3 months already (with instillations weekly for the past 6 weeks) and not a sign of relief. I wonder if applesauce is tolerated by my bladder...

                            I got the impression it is not well-tolerated. I'm still doing the part of the diet where everything is eliminated and now I'm adding things to see how I feel. I wonder if I can find baby pureed pears. I bet I could add it to some carrot juice I just got...

                            Thanks for your help!
                            [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                            [

                            Comment


                            • #15
                              Roxie,is it the gel you're taking?

                              Active ingredients: dimethyl sulfone 15% (150 mg/mL).
                              Price each bottle:
                              Qty. 1-5
                              $14.00


                              I tougth it was aloe gel you were taking lol

                              I want to try this for burning pain just under my pubic hair.

                              Comment

                              Working...
                              X