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can anyone give advice/guidance?

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  • ICNDonna
    replied
    It sounds like you're on the right track. I hope you have some answers soon.

    Donna

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  • b85
    replied
    update!

    Have just been to the doctors - the guy i saw this time was so much more helpful (finally!) he suspects either IC or Vulvodynia(?) and he said my IBS symptoms are common with those sorts of thing. He also examined my kidneys and said they feel fine. AND he's referring me to a Urologist and doesnt know why the previous doctor hadn't... So it's looking up i think!
    I asked for something for the pain in the meantime and he's prescribed Amytriptiline tablets. I've just picked them up and the list of side effects is as long as my arm so will postpone taking them until Friday when I have completed my degree.
    I'm just so happy someone finally took note and took me seriously. Thanks for all of your kind messages of support, you have no idea how much they help especially on those bad days...

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  • vm
    replied
    to the ICN! I hope you are able to find some answers to what is causing your symptoms soon.

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  • leelee88
    replied
    b85 Mine comes in threes..lol I have IBS C..And when it acts up and I finally go .. I flare and my kidneys and back kill me.. But I have had many test on my kidneys and they are very healthy, so I think its prob just from the stress of the IBS and the flare.. It sucks though....

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  • b85
    replied
    thanks, i'll definitely let you know! fingers crossed.

    i've been wondering about ibs, and it does often seem to crop up with bladder problems too...it might be that this is the case and it also only really strikes in times of stress (normally alternating between this and urethral pain) but i'm not quite sure where the kidney pain comes in. it's all very random. things come in threes tho right?!

    aren't new symptoms just the most enjoyable thing in the world....

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  • tigger_gal
    replied
    Hopw all goes well at your appointment, please let us know.

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  • leelee88
    replied
    b85 That sounds alot like IBS.. Goggle it and look at the systoms

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  • b85
    replied
    kidney pain

    thanks for the advice, i'm going to see my doctor again this week so fingers crossed...
    i was just wondering whether anyone had other symptoms like stomach cramps/diarrhea? also i get a lot of pain in what i think is my left kidney. i'll ask my doctor about these things too but just wondered if anyone had these things and it might all be related??

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  • L. Thomas
    replied
    I'm not sure what specialists you have seen. I see a urogynecoloist who specializes in IC. I would try to find a urogynecologist, urologist or gynecologist that specialize in IC. I have to drive 90 miles to see my uorgyne and it is worth every mile of the drive..even at $3.00 a gallon!

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  • jen74
    replied
    My IC waxes and wanes. I have more pain issues than anything, though I do get the urgency and frequency at times. I also feel alot of pain right after I pee when the bladder is empty. This is normal with IC from what I was told. Maybe you should get a different opinion so at least you could get a diagnosis or some treatment. I know how frustrating it is going to all these doctors and leaving them knowing nothing more than when you went in. I have dealt with this issue alot. I have bad digestive issues and it took me going to 7 different GI specialists before I found one who was good and knowledgable. Sometimes you have to shop around until you find the right doctor. It is frustrating to say the least, but in the long run, it will pay off. Good luck.
    Jen

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  • b85
    replied
    thanks you guys, the doctor who said it might be IC is the same one who still hasn't referred me. but i am going to contact my other doctor from home (i am at university) to see what he can do.
    do IC symptoms tend to usually be related to urgency and frequencY? i think if anything i have the opposite and go less than before i had symptoms.
    i also get pain around my kidneys - is this common?

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  • ICNDonna
    replied
    I think I might go back to the doctor who said it might be IC and ask if he/she will pursue either diagnosing it or ruling it out.

    Donna

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  • leelee88
    replied
    Hello and

    IC effects all of us in differant ways.. Some have just pain and some have just frequency and then others have it all, pain, burning, frequency..I would really strongly suggest that you find a new doctor, because just having pain could be so many things. Like endometriosis or cyst or I could keep going, so you really need to find a doctor who can help you get the right Dg... Good luck and I hope you get your answers soon

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  • b85
    started a topic can anyone give advice/guidance?

    can anyone give advice/guidance?

    hi all,
    i'm new to this but just wondered if anyone could help..
    i've been to see doctors over the last 2 years about recurrent cystitis symptoms (which i know is not cystitis but can feel similar) i've had over 7 urine tests to rule it out and no-one seems to do anything else about it!
    i'd had enough of it recently and my doctor is supposedly referring me to a specialist but he still hasn't made contact and that was a month ago.
    i have very severe pain symptoms but it is not consistent. however, when it is at its worst it can be debilitating. otherwise, probably most days it doesnt feel quite right, and always worse with an empty bladder so i always drink A LOT of fluids (esp. warm water seems to soothe). however, i have no symptoms of urgency/frequency. the last doctor i saw suggested it may be IC but have not been able to get a diagnosis as yet.
    is this typical as starter symptoms, do u think it will develop into urgency and frequency?
    any advice would be great, i'm aware it is not a doctor's opinion but as i can't seem to get one, anyone with any tips to offer would be much appreciated.
    i also have occasional stomach upsets/cramps/diarrhea and a history of M.E.
    thanks all
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