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I wanted to let everyone know how my cranberry juice experience went, because it's confusing me. It really didn't effect me either way. I drank 8 oz. of the juice 3 times a day for 3 days, and it didn't really effect me. I felt the same as I do right now. I still have all of my symptoms(painful after I pee, feeling like peeing all the time) with or without the juice. Any ideas?
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Almost all IC patients find that cranberry juice is a bladder irritant. I will not take even a tiny sip.
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
You may not have seen any difference in symptoms because of the fact that your bladder is so irratated to begin with. I would try to follow the IC diet and cut out all acidic foods and drinks. If you feel better after cutting out all of the acidic foods then you may in fact have IC.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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IC diet
I've been following the IC diet now for 3 weeks. It was SO hard to give up Diet Coke(I miss that even more then Chocolate)! I guess I'll get used to it? I felt really good for about 3 days after starting the diet, then my frequency issues came back. Plus, I still get pain after I pee(lasts about 5 minutes). The only thing I'm allowing myself acidic is the cranberry juice. My Uro, who told me to do it in the first place, said that if cranberry juice doesn't work well, try eating 1/2 cup of blueberries at 3 times a day, that is what I'm trying now. I'm going to see how not using the cranberry juice goes.Comment
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I too will not drink cranberry juice nor orange juice in fear of a flare. Also tomato soup i think I have figured out is bad.
Diagnosed with IC 3-30-2003
Flare ups 1 time a month lasts for days.Comment
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Have you read the IC Diet guidelines? Tomatoes is one of the worst things you can eat if you have IC. There are so many things with tomatoes, this has been my hardest thing to give up.
I also do not understand how anyone with IC could stand to drink cranberry juice! Its like rubbing an open wound with salt, at least for me! I do know that blueberry juice is 'safe', as long as there is no citric acid or other fruit juices in it.
The diet guidelines are really good, check them out!I don't want to die, I just want to go to the bathroom.
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I am 23 and have had IC for about 3 years now.
I have also had rheumatoid arthritis for about 21 years, I like to think I am used to pain.
I am interested in hearing from people with similar circumstances as I am in, like having IC and RA, being in college, etc. I feel it helps.Comment
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