Originally posted by Mimi_jones
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I have Celiac too, and my Dr. told me the same thing. I was eating a strict gluten free diet for a year and my pelvic pain was actually getting worse. Now I'm doing a lot better! Here's what I'm doing that's working (maybe it will help you too?)I really feel your pain, literally. So I would love to help! Strict IC diet (which I know you're already doing, celiac and IC diets suck don't they?) Stemming (Dr. does electrical stimulation to work/relax the pelvic floor muscles) Apparently muscles and nerves have memory so even if you're no longer in pain they can keep spasming or telling you you're in pain. Heat packs for the pelvic floor muscles help and ice packs for the bladder.
I had a Laproscopy too cause my Dr. thought it might be endo and every thing came out fine but my hormones were out of wack so they put me on hormones and that has helped a lot with the pain.
Good luck! I hope you find something that helps! I had to go on a short course of prednisone (steriods) to get me out of the flare but I hate to take strong medications!
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