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  • #1

    frequency better, still have pain

    Hi Everyone,
    I noticed since I started bladder training(going every 2 hours and sitting there for 5 minutes) that I'm starting to go less frequently. I also am taking Lexapro for 2 weeks, that is also probably helping. I'm still having pain though. I started taking the Aloe Vera supplements this morning. I figure it's worth a shot, and it's aloe vera, so it's probably pretty healthy for me. Anyone have luck with the aloe vera?
    I'm the person who posted about drinking cranberry juice and taking Vitamin C. Of course, I couldn't stand the taste of the cranberry juice so I switched over to the pills. I'm still doing this and this is probably why I'm in pain but I'm wondering if it's helping with the frequency. I'm afraid to try or stop anything that might help.
    Thanks for any advice, I'm still confused about what will help or hurt.
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  • #2
    HI there!
    I'm one of those who wrote you before when you posted.
    I have been using the Freeze Dried Aloe Vera for almost 3 yrs now and have had great luck with it. It does coat the inside of the bladder and helps heal the lining.
    Those cranberry pills are murder in pill form if you do have IC. They are irriating the lining even more than it already is.....if you are having the frequency and urgency. Why not stop them and continue with the therapy and Aloe and see how you do. Is it an IC specialist you are seeing or a reg. dr? IF it's a reg. dr. why not look for an IC specialist and see what they recommend for meds?? IF you do have IC you should get started on Elmiron to help heal your bladder. I know IC isn't easy to understand....but take it from us who's been around the IC Block.....it's better to go to an IC specialist right away instead of wasting time with the wrong dr. and wrong meds. Take care......Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

    Comment

    • #3
      AMEN ON THAT ROXIE.... I learned the hard way.... Dont waste your time with doctors that dont know nothing about IC or are unwilling to learn..

      Ronda
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        HI Rhonda!
        Boy I know......it can drive you nuts when you are going to a dr. who knows nothing about your problem.....but wants to treat you as if they do!! LOL You want to have confidence in your dr. and hope they know what they are doing.....but after a while it's "each for their own!" If you don't stand up for yourself and your treatment, no one will stand up for you!"
        Hope you are having a good day Rhonda! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment

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