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depressed beyond belief.
I am not sure where to begin . Looking back this has been going on for quite some time it was 2 years ago when I had to fill my bladder for an ultrasound that led to my ablation and I remember telling them my bladder was full as i felt like I was about to pop only to be told i needed to drink more water and come back in 20 minutes because my bladder was far from full. Of coarse that issue was never addressed , the ablation was performed and i was on my way . At the time I was happy because the constant bleeding had stopped and just thought that the frequent calls of nature came with the territory of having 5 large babies in my reproductive years.
About 14 months ago I began having extreme lower back pain especially upon waking in the morning if I had managed to hold my urine over night it was worse.
I thought great kidney problems. I began to eliminate any drinks from my day other than my two cups of coffee in the morning and the rest was water only. That helped a little bit but not much and my bleeding returned not constant like pre ablation but every two weeks or anytime I was too physical . the bleeding would sometimes last up to a month so I knew it would soon need to be addressed but having no insurance or money to spare it was put on the back burner. Eventually I had pain that put me in the emergency room at which time I was told that I had fluid trapped in my uterus from a failed ablation . I found a clinic that I could go to and began going through a process of elimination with a Gyn that would not even talk about a hysterectomy one of the problems she wanted to treat me for was IC but I the research nut that I was just knew I need a hysterectomy and never really paid much attention to what she was saying about IC . My husband finally got insurance and I found a Gyn to do my hysterectomy . I was so excited thinking this was it , she was doing a radical hysterectomy with the DaVinci procedure so my recovery time would be minimal and I would be able to get out and help support my family. The hysterectomy was done on December 9.2010 at first things were great , or so I thought. I started having this horrible pain again that was not normal, then some incontinence (very mild ) and thought oh no what is going on here. I went in and she looked at me to assure there was no fistula or infection and the IC talk began again. Now this is the second Dr to talk to me about IC . My research mode kicks in and I just start crying . I have made my appointment with a Urologist for Jan 20th and am eliminating some of the obvious culprits from my diet . My pain is constant again and yesterday I cried myself to sleep because of the pain in my back, my bladder spasms and down into my thigh AGAIN I thought this pain would be gone after the hysterectomy . As it turns out it seems I had pain from the trapped fluid caused from a failed ablation and the IC both, there was no one good answer for me. I feel so far beyond depressed. I feel so helpless. I know I will end up in the ER before the 20th for pain management and I pray that the Urologist I picked from our insurance is good with IC . I did ask if they are familiar with treating IC but other than that I had no idea what to ask . Anyway I am encouraging others to listen to their bodies now because I put this off so long that all of my symptoms and pain falls in the severe IC diagnosis and I am afraid I only have myself to blame.
About 14 months ago I began having extreme lower back pain especially upon waking in the morning if I had managed to hold my urine over night it was worse.
I thought great kidney problems. I began to eliminate any drinks from my day other than my two cups of coffee in the morning and the rest was water only. That helped a little bit but not much and my bleeding returned not constant like pre ablation but every two weeks or anytime I was too physical . the bleeding would sometimes last up to a month so I knew it would soon need to be addressed but having no insurance or money to spare it was put on the back burner. Eventually I had pain that put me in the emergency room at which time I was told that I had fluid trapped in my uterus from a failed ablation . I found a clinic that I could go to and began going through a process of elimination with a Gyn that would not even talk about a hysterectomy one of the problems she wanted to treat me for was IC but I the research nut that I was just knew I need a hysterectomy and never really paid much attention to what she was saying about IC . My husband finally got insurance and I found a Gyn to do my hysterectomy . I was so excited thinking this was it , she was doing a radical hysterectomy with the DaVinci procedure so my recovery time would be minimal and I would be able to get out and help support my family. The hysterectomy was done on December 9.2010 at first things were great , or so I thought. I started having this horrible pain again that was not normal, then some incontinence (very mild ) and thought oh no what is going on here. I went in and she looked at me to assure there was no fistula or infection and the IC talk began again. Now this is the second Dr to talk to me about IC . My research mode kicks in and I just start crying . I have made my appointment with a Urologist for Jan 20th and am eliminating some of the obvious culprits from my diet . My pain is constant again and yesterday I cried myself to sleep because of the pain in my back, my bladder spasms and down into my thigh AGAIN I thought this pain would be gone after the hysterectomy . As it turns out it seems I had pain from the trapped fluid caused from a failed ablation and the IC both, there was no one good answer for me. I feel so far beyond depressed. I feel so helpless. I know I will end up in the ER before the 20th for pain management and I pray that the Urologist I picked from our insurance is good with IC . I did ask if they are familiar with treating IC but other than that I had no idea what to ask . Anyway I am encouraging others to listen to their bodies now because I put this off so long that all of my symptoms and pain falls in the severe IC diagnosis and I am afraid I only have myself to blame.
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