Announcement

Collapse
No announcement yet.

Could I Have IC? I am incredibly stressed out.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Could I Have IC? I am incredibly stressed out.

    I'm a 26 year old female and have been going back and forth to my GP about frequent urination, discoloration of the skin around my vagina (it has gone white - in comparison to my usually tanned skin) and discomfort in my vagina. I've found it very hard to describe these uncomfortable sensations to my doctor. It's like an irritation in my urethra, but is also like being aroused (or the feeling of irritation you might get after rough clitoral masturbation) but I have no actual desire to have sex. These sensations sometimes fool me into thinking I need to go to the toilet, but only a little comes out.

    At one point these uncomfortable sensations turned to physcial pain in my vagina. I have turned to painkillers in the past to help control this.

    My GP tried me on three different antibiotics, suspecting a low level bacterial infection in my bladder. I was also tested for an STD (negative) and smear test (negative).

    I have also been suffering from irregular periods, with spotting between periods. I've also had alot of clear discharge, and sometimes greenish or white discharge, but again, no STD.

    I was sent to a Gynacologist, who told me to train my bladder and gave me a 3 month course of Ciproxin antibiotics and a course of Estradiol vaginally. The first two months I did notice improvement, especially noticing a reduction in the discharge from my vagina. Also, the bladder training did seem to help, and I have only been getting up once at night to urinate (rather than maybe 4 or 5 times per night in the past).

    Although the Gynacoligist told me not to worry about my irregular period problems, they persist. Sometimes I get two periods in one month and still get dark red/brown discharge for a day or two between periods. Also, I often feel like some vaginal discomfort follows each period, but this goes away after a day or two.

    However, the last three days I've noticed that all my uncomofortable sensations in my vagina/urethra have returned. My night time frequent urination also returned for one night. I still have one more month of Ciproxin and another month of two weekly doses of Estradiol, but if the symptoms have returned doesn't this indicate that the treatment has not worked? I have also noticed a return of some greenish discharge (infrequent).

    Secretly inside my head I'm freaking out and sneaking lots of painkillers to try allievate these sensations when they appear. I know that in the long run this is bad. I just don't know what to do. I feel like there is something massively wrong with me and nobody is listening. I'm especially concerned that my Gynacoligist says all my symptoms are not related to each other. That my irregular period, discolored vagina, and discomfort are not related? How can this be true?

    I've taken all the advice the doctors have given me. I no longer smoke, or drink alcohol. I only drink one cup of coffee a day. I do not drink fizzy drinks or citrus drinks. I wash my vagina twice a day (as advised by my Gynacologist) with Silcocks Base.

    My GP thinks it might all be in my head. My girlfriend thinks I'm a hypochondriac. I'm at my wits ends. Please help.

  • #2
    to the IC Network.

    First of all, it's NOT in your head! I think lots of us were told that at one time or another. Have you seen a urologist? If not, I think that would be a good idea.

    Another thought: You mentioned that you have stopped or reduced some drinks --- I think giving the IC diet a try could help your symptoms. The link to the latest food lists is in my signature below.

    I hope you get some answers soon; my worst time with IC was before I was diagnosed.

    Sending healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Hi Donna, thanks for your kind words.

      I have looked at the diet document. Thank you so much.

      I noticed that soy products is mentioned - about a year ago I was diagnosed with being lactose intolerant and completely changed my diet, so now I take no dairy from any animal at all, but I do take soy products instead of this. It would seem like too easy an answer however, to blame my symptoms on something simple like soya, what do you think?

      Comment


      • #4
        If you can find a soy substitute for a couple of weeks, I think that would be a good idea.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Soy in any form caused Bob flares. You might want to lay off for a while and see if you have improvement. It's worth a shot. And do try to stick to the diet for like a month and see what happens. May have to give up that AM coffee, girl. There are coffee substitutes, and some can tolerate low acid coffee. You will develop a taste for them, they're not so bad. And some herbal teas. Maybe look into a urogyn as well, and get another opinion. Hope you find relief soon, and hope it is not IC. There are a lot of "female" problems Good luck to you, start at the start, with the diet. Also google alkaline/acidic foods and try to avoid the latter. Jill, wife of Bob

          Comment


          • #6
            Hi Jill,
            Thanks for your reply. I've been really good the last two days with regard to my diet and what drinks I'm consuming, but so far my symptoms haven't gone away. It's just gotten worse, it feels uncomfortable down there ALL the time now, sometimes painful, it fools me into thinking I need to pee (but only a little comes out if I do try to get some relief by peeing). I'm getting a lot of discharge now too, it's gooey and white and just horrible.

            I'm trying to remain calm but I really did feel like this problem had been resolved by my visit to the gynecologist, looks like I'm going to have to go back.

            It's so depressing but I haven't mentioned to anyone that my symptoms have come back, because I'm sick of everyone thinking I'm a hypochondriac. So I'm just comfort eating and taking painkillers instead, trying to keep sane somehow.

            Comment


            • #7
              have you been checked for bacterial vaginitis? I had it and the bacteria sit around the urtehra and can cause a bladder infection. If you have a discharge you might want to get checked for that, it's an easy fix.

              Comment


              • #8
                The first time I saw my GP she tested my urine and said I had a mild bacterial infection, but the second time I went back she said my urine was negative. The Gynacologist didn't do any tests, he had a look, but didn't take any swab or anything. Do you think I should go back to my Gynacologist and ask for a test for bacterial vaginitis? I've been on antibiotics (Ciproxin) for two months now, if I had bacterial vaginitis, would it not go away with the antibiotics?

                Thanks for your help btw.

                Comment


                • #9
                  I think it's worth asking. As far as I know, the only treatment for BV is a vaginal insert gel 5x or the pill form of it. Google it, I can't remember the name of it. No other antibiotics treat BV. The swab is easy, same like they do for a pap. Try googling the symptoms of bv.

                  Comment


                  • #10
                    Thanks, I'll book a followup appointment with my Gynacologist and ask him to test for that. To be honest, I'm surprised he didn't swab me last time I saw him. Probably trying to keep his paying customers

                    Comment


                    • #11
                      Surgery

                      I am having surgery this wednesday one of many to come.
                      Please say a little prayer for me, As you all know my husband deserted me amd I am feeling really down and lonely at this time.
                      <center>
                      <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
                      </center>

                      Comment


                      • #12
                        Originally posted by Linda May View Post
                        I am having surgery this wednesday one of many to come.
                        Please say a little prayer for me, As you all know my husband deserted me amd I am feeling really down and lonely at this time.
                        Good luck Linda May, I'll definitely say a prayer for you at church on Sunday. x

                        Comment


                        • #13
                          Based on your symptoms, sounds like you need a new doctor and need to be checked for IC and PFD.

                          It's NOT in your head, keep switching doctors until you find one who believes you. I got laughed out of the ER twice and cried in front of a gyno's np to the point where I got my appoint free of co-pay before someone pointed me in the right direction.

                          Best of luck, as soon as you find the right doctor things will begin to fall into play with treatments that may actually help.
                          DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

                          Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

                          My Pelvic Pain Blog

                          FB Fanpage for My Pelvic Pain Blog

                          Comment


                          • #14
                            I'll repeat -- it's not in your head ! Listen to your body. Time and time again my friends and I have had this problem where something is wrong but you don't know what. And it's hard to describe, or you don't link different symptoms together, or it comes and goes and then you think you're crazy. You can't get any help until you find the right doctor. I have been extremely fortunate to have great doctors.

                            Even though some of my bladder issues were initially chalked up to being MS-related, my urogyno took the time to work with me, listen to me, ask me good questions and do good tests to determine that is was not MS-related, but in fact, IC.

                            Then, I spent months with off and on again pain that I chalked up to IC symptoms and I ended up at the hospital it was so bad (over the weekend). My urogyno returned my phone call to her office and had me in at 8:15 the next morning for an appointment and tests including a CT scan, which diagnosed my bilateral kidney stone blockages. And she referred me to a great urologist to deal with the stones. So glad my urogyno listened to me and got me on the right track because the ER chalked it up to an IC flare after they couldn't get an IV into me and said they couldn't do a CT scan without the IV.

                            There is nothing as good as having medical care providers that you trust and have full confidence in. Keep looking and don't give up !
                            Colleen

                            * ITP - autoimmune blood disorder - spleen removed 1978 and in remission since
                            * MS- diagnosed Jan-2010
                            * IC - confirmed by cysto and hydro Nov-2010 - currently taking no medication
                            * possible adenomyosis - suspected by urogyno May-2010
                            * low Vitamin D levels - taking 2000 IU daily
                            * sleep issues - 1/2 alprazolam

                            Comment


                            • #15
                              i have had burning since i was a todler im 17 now and have found that sex can make it worse, it was never bothersome till i was about 12 or 13 and then it started to become crippling i do have pressure and unable to hold it fro a long time especially if im sitting down but the burning is what gets me its teh worst part im afraid to pee because i think it will burn and it always does, ive been from dlc to doc ive seen urologists, nephrologists even gynos and everyone just shrugs thier sholders and sends me home with vicodine and pyridium, my pediatritian even suggested to my mothe that im faking it because they can never find an infection, i keep telling them its not an infection and my mother too but now ive had to drop out of school because of pain pyridium is slowly losing effect on me and everyday becomes harder, iv been to the hospital for caths and dehydration because im afraid to drink anything but sprite cuz i kno il have to pee if i drink, sprite seems to help, i cant live my life like this anylonger what should i do what could this be my uro says im too young for IC

                              Comment

                              Working...
                              X