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Tomorrow morning I have appt. at local Hospital for another cytoscopy, with a different urologist than did my previous cystoscopies.
He will also ask me about what effects I noticed after the 'lidocaine challenge' instillation they did on me a couple of weeks ago -- this is the part that I am quite apprehensive about. When he said that he was going to have me do that challenge/instillation, he said I'd absolutely know if it relieved pain or not, and 'that way we'll know if it [the pain] is the bladder'. But I can't say that the challenge/instillation has made a clear dramatic difference to the pain... so I'm concerned that he is likely to say the pain isn't the bladder. But it's gotta be, no? -- the difference between pre- and post-urination pain has been increasing significantly for me over past few weeks -- the pain wakes me every one to three hours. If the pain management (via opiates) isn't doing so well I'll be woken at maybe a 7 (on a 1-10 pain scale), and occasionally close to an 8-level pain, but after peeing it can drop to like a 6, often a 5, sometimes a 4 and it's even dropped to about a 3. How can that not be to do with the bladder?
I suspect he will not want to do another lidocaine/heparin instillation if I can't say it made a difference - but I am leaning slightly toward asking him to do again because I am not certain about my observations.
The first urologist diagnosed me in 2008 as having interstitial cystitis after seeing lots of scarring on the inside of my bladder during a hyperdilation (sp?). He did fulguration (cauterizing/burning). It didn't trouble me much at all or the next couple of years. In the fall (2010), after a completely different kind and scale of pain took me into ER, that first urologist eventually concluded that my current pain is not in keeping with IC. He said that the current pain must be coming from something else, he believed it not to be urological at all, and referred me back to the GP. So my big apprehension tomorrow is fear that the specialist will feel that it's not IC, and brush me off (which in Canada, means months of more waiting lists for someone else), and for me, months of more morphine and 24/7 sleeping because of the side effects). So I am very very apprehensive - hopeful too, for sure, but based on the past several months how things have been repeating, quite apprehensive - about tomorrow.
Lisa
He will also ask me about what effects I noticed after the 'lidocaine challenge' instillation they did on me a couple of weeks ago -- this is the part that I am quite apprehensive about. When he said that he was going to have me do that challenge/instillation, he said I'd absolutely know if it relieved pain or not, and 'that way we'll know if it [the pain] is the bladder'. But I can't say that the challenge/instillation has made a clear dramatic difference to the pain... so I'm concerned that he is likely to say the pain isn't the bladder. But it's gotta be, no? -- the difference between pre- and post-urination pain has been increasing significantly for me over past few weeks -- the pain wakes me every one to three hours. If the pain management (via opiates) isn't doing so well I'll be woken at maybe a 7 (on a 1-10 pain scale), and occasionally close to an 8-level pain, but after peeing it can drop to like a 6, often a 5, sometimes a 4 and it's even dropped to about a 3. How can that not be to do with the bladder?
I suspect he will not want to do another lidocaine/heparin instillation if I can't say it made a difference - but I am leaning slightly toward asking him to do again because I am not certain about my observations.
The first urologist diagnosed me in 2008 as having interstitial cystitis after seeing lots of scarring on the inside of my bladder during a hyperdilation (sp?). He did fulguration (cauterizing/burning). It didn't trouble me much at all or the next couple of years. In the fall (2010), after a completely different kind and scale of pain took me into ER, that first urologist eventually concluded that my current pain is not in keeping with IC. He said that the current pain must be coming from something else, he believed it not to be urological at all, and referred me back to the GP. So my big apprehension tomorrow is fear that the specialist will feel that it's not IC, and brush me off (which in Canada, means months of more waiting lists for someone else), and for me, months of more morphine and 24/7 sleeping because of the side effects). So I am very very apprehensive - hopeful too, for sure, but based on the past several months how things have been repeating, quite apprehensive - about tomorrow.
Lisa
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