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Long remissions between bouts--could this be IC?

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  • Long remissions between bouts--could this be IC?

    Hi all--

    I was very active on these boards a while ago. Just wanted to check back in and say that I have been sympton free for a year without any real treatment plan. I must stress I never had an official diagnosis of IC, despite a few inconclusive work ups for it. I have over the years had several months and months long struggles with constant frequency, insomnia because of it, and the feeling I always have to "go."

    During my last bout, my GYN thought that low estrogen might be part of the problem (I am 46) and I have been doing better on BCPS.

    My UTI symptoms never responded to antibiotics but I was always given antibiotics at first symptoms of a UTI--not tested with a urine sample first--then a few more rounds of other antibiotics when the first seemed to not work.

    I am left to wonder if there is maybe a related IC type syndrome where antibiotics and UTIs cause so much irritation to the bladder that it takes months and months and months to feel normal again....That seems to be my situation so far....
    -Not officially diagnosed with IC but have had several inconclusive work-ups for it after several months-long bouts of frequency, soreness, and the insomnia that goes with it.

    -long stretches of being symptom-free in between

    -currently on low dose bcps, celexa, and Estrace cream for possible hormonal role in bladder symptoms (I'm 45)

  • #2
    In the first stage of this condition, you can periods where you feel totally normal and then other times where it acts up. So you could still have a very mild IC that hasn't progressed any further. There is nothing that says it will progress further and you might just have intermittant bouts.

    And yes I think UTI's can leave your bladder irritated and sensitive for many weeks or longer though they would show up on a urine test.

    Gelnique for frequency/urgency - works great
    Macrobid after sex
    Prilosec, continuous birth control pills
    synthroid .088mg, mucinex-d, restasis

    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

    IC Diet Link:
    AUA 2011 Guidelines to diagnosing and treating IC overview-
    AUA 2011 Guidelines to diagnosing and treating IC PDF:
    Great treatment flowchart on page 19 of the pdf