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  • #1

    Need a urologist recommendation

    Can anyone recommend a urologist in Memphis, TN? Particularly one with experience diagnosing/treating IC in men? Both previous Uro's gave me an initial diagnosis of chronic prostatitis, and after failing multiple rounds of treatment both changed their diagnosis to "i dont know." I have been told by various people to go to the UT urology clinic, which is where the UT health science urology professors practice, because of its affiliation with a school. Any suggestions?

    I'm currently on elavil, and like everything else (including diet) it worked for about 2 weeks before gradually ceasing to have any effect. Tried upping the dose to 20mg but i felt like a zombie and became almost suicidal. Symptoms continue to include: urgency/frequency, occasional bladder pain (sometimes occurs after eating/drinking certain things, sometimes it occurs at random), constant pain in lower back, occasional pain in testicles, perenium pain, occasional rectal and tailbone pain, difficulty urinating. Bladder pain and spasms are always worse after urinating, and spasms can go on for hours after defacating
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    • #2
      hello fellow TN

      i dont know anything about memphis but nice to meet ya
      Newly IC diagnosed as of February 2011.

      Medications I'm on that seem to work:
      Zoloft- one once a day
      Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

      Failed Meds:
      Elmiron-after 4 months,digestive side effects got to be too much
      tramadol-allergic
      DMSO treatments(5-6)
      probiotics

      THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
      AROMATHERAPY-candles,incense
      Village Naturals Aches and Pains Peppermint Bath Salts
      Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

      ACUPUNCTURE/HERBS
      Significant pain relief so far.

      MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

      Add me on facebook Angela Hasic

      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      Lord, make me an instrument of your peace;
      where there is hatred, let me sow love;
      when there is injury, pardon;
      where there is doubt, faith;
      where there is despair, hope;
      where there is darkness, light;
      and where there is sadness, joy.
      Grant that I may not so much seek
      to be consoled as to console;
      to be understood, as to understand,
      to be loved as to love;
      for it is in giving that we receive,
      it is in pardoning that we are pardoned,
      and it is in dying [to ourselves] that we are born to eternal life.

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        • #3
          I'd go through the International Pelvic Pain Society. You can do a search for your area. Good luck.

          ETA: It looks like Edward Stanford is the one person listed for Memphis. I've seen his name mentioned before in IC studies. He is a urogynecologist so I'm not sure he has experience with men but it would be worth it to call his office. Surely he can recommend PTs or other IC docs that do treat men if he does not.
          Mom to two littles (remissions while pregnant/breastfeeding)
          Sufferer since mid-90s
          Finally dx'd properly much later

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            • #4
              If you get desperate, I can tell you about Nashville... don't know about Memphis though.

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                • #5
                  I go to Uni TX Southwestern urology clinic and I feel very good about going to the Medical School. My doctor knows a lot about IC and is very familiar with different treatments, etc. If I were you I would call the urology clinic at UT and just talk with them tell them your experiences with your other doctors and ask if they have a doctor who would be willing to discuss IC/or is knowledgeable about IC. I feel sure that they do. It can't hurt to call. If you don't want to explain everything to the receptionist then ask to speak with a nurse. Also look online at the UT website and find out if there are any doctors who work with IC. Even if it doesn't say it on the website, at a medical school urology clinic you are VERY likely to find a doctor who knows how to treat/diagnose it and what your options are.
                  Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                  Lexapro-20 mg
                  Aciphex
                  Ambien-as needed
                  Percocet-7.5 up to 3 per day as needed
                  Valium-10 mg x2 per day
                  Phenergan-1 at night
                  Prelief w/everything
                  Now recovering from acute pancreatitis

                  Currents treatments that help somewhat:
                  Heating pad
                  Hot baths
                  Ice
                  Being VERY still while lying down with legs elevated

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