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continued antibiotic use?

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  • continued antibiotic use?

    hi everyone,

    i have a bit of a dilemma on my hands and was hoping for some advice.

    i haven't yet been diagnosed with IC, but have been experiencing continuing bladder trouble for the past 8 months, including frequency, discomfort, and more recently, pain. last week i went to see a new urologist. he was nice and understanding and is running some tests, but when i mentioned that the last urogyno i saw said that there was a possibility that i had interstitial cystitis, he dismissed it and said it is "very unlikely" at my age (i'm 22).

    even though my urine came up clean (like it had the last 10+ times i've been tested for a UTI over the past months), he prescribed me macrodantin to clear up any possible infection or bacteria.

    i don't want to fill the prescription because i'm concerned about the number of antibiotics that i have been on in the past months. i've already been on macrodantin three times before, and i've also been on 5 other types of antibiotics, none of which have seemed to help in the long run, although they do mask the symptoms initially.

    i'm not sure what to do because i don't want to start off on the wrong foot from the beginning and i know it is important to follow physicians' directions, but i feel that i've done my research on bladder issues and it's pretty clear i don't have an infection. i'm worried that the large number of antibiotics i have been on in the past months are potentially doing more harm than good. i'm really worried about developing a tolerance or other potential health issues.

    any advice would be helpful, thanks!
    Jessica - 22 years old in Washington DC

    Symptoms began Sept 2010
    Diagnosed Sep 2011 (after being prescribed every antibiotic possible)

    Currently Trying:

    “Walk on with hope in your heart, and you'll never walk alone...”

  • #2
    I had a uro that I had seen for years who treated me for my kidney stones. I had told him many times over the years about the pain and frequency and urgency that I was having. He always gave me an Rx for antibiotics and then would give me a bunch of samples for things like Vesicare, Urelle, Uristat (?) etc. But he would never talk with me about WHY!!! Then last Oct my gyno mentioned IC. When I called my uros office his nurse told me "He doesn't think you have that" and then she said "He doesn't even treat it"!! That's when I went on my hunt for a new uro. If he had never talked to me about it, then how could he come to the conclusion that I don't have it.
    I guess what I'm trying to say is that happened to me too, until I finally found a uro/gyno who actually has experience with IC and is willing to talk with me about it. Good luck to you, it's really hard to find a doc that has experience with this, so talk to everybody in the office, from the receptionist to the nurse to the PA to make sure a new doc treats it. If I can help please let me know.
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Being VERY still while lying down with legs elevated


    • #3
      If you're not feeling comfortable with what you're being told, you may want to see a different doctor for another opinion. The other option is to work with this doctor for a while to see if he helps --- you are not too young for IC --- even small children can have it.

      Warm healing thoughts,
      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        Before I got diagnosed I was on antibiotics for 2 years. I was taking keflex "just in case" I got an infection. I would always get yeast infections as a result and I think this is why I have vulvodynia (an oversensitivity to yeast). It is in my opinion that some dr's hear your symptoms and they sound like a UTI which is fairly common so they give you antibiotics. Now because I have taken so many antibiotics before they arent as effective and when I do get sick and need them I have to take more. You should get a second opinion. Try and find a dr who sees IC patients. Obviously if you have UTI like symptoms with no bacteria present something else is going on--and antibiotics wont help.(as im sure we can all attest to)
        Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

        Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

        Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).