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Please help me, I cant deal with this anymore!!!

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  • Please help me, I cant deal with this anymore!!!

    I am a 39 year old female that was diagnosed with OAB in 2003. I was prescribed medication that never worked. In 2007 took part in a clinical trial for a new drug for OAB, it did not work for me at all. After the trial the Doctor put me on Detrol LA, 4mg. This did nothing so the dosage was increased, and increased again. Finally the Dorctor just agreed that the meds were not working. He ordered more test, I had a cystoscope and pressure test done. When I went back to his office he suggested a urethra sling made of mesh.
    Seven weeks ago I had the surgery done. Immediately following the surgery I had problems, my bladder was spamming so bad that I could actually pee with the catheter in. I lost all control over my bladder, I went to the bathroom at least 30 to 40 times a day. It is always an emergency, i can not wait and almost always end up leaking some if not all. I returned to the Doctor who did some tests and decided the sling was too tight causing my bladder to not completely empty. On Thursday I went to the hospital for a reversal of the sling. Now I have zero control over my bladder!! I get up 6 or 7 times a night to go to the bathroom, I cant hold it from my bed to the toilet! My life has become a nightmare, I cant go to the store, I cant pump gas, I cant do anything, I exhausted all of the time because Im up so much in the night.
    I tried to go back to work this morning, wearing a pad of course, but on my way across the parking lot my bladder let go and overflowed the pad! Embarrassed and humiliated I turned around and headed for home!
    I know this site is for IC patients but I really need help and I cant find what Im looking for!!
    Thank you for taking the time to read this!!

  • #2
    I'm so sorry you are having such a horrible time. Have you sought a second opinion from a doctor in a different office practice? If not, I suggest that you do so.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I live in a relatively small city and the urologist I have is the best there is around here! Is there hope of returning to a normal life?? My doctor promises he can fix me.

      Comment


      • #4
        If he can fix you, that will be great. Has he shared a treatment plan with you?

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          No he has not, he just told me that there are other options after I had the sling loosened. When I saw him after the surgery he said his assistant would contact me for a follow up appointment in 6 weeks! I cant wait six weeks so I called his office today and he is out for a week. The message tells me to call my family doctor, but I dont think there is anything the family doctor can do for me!!

          Comment


          • #6
            I am so sorry you are going through this. You might want to try another uro in town just to see if they can see you since he is unavailable to you right now.

            When you do see your reg uro again, you might want to ask what treatments he has planned for you so you can do some independent research.

            Wishing you the best,
            Sandra
            Link to the patient information, everything from What is IC? to Disability
            http://www.ic-network.com/patientlinks.html

            American Urological Association Clinical Guideline
            Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
            http://www.auanet.org/content/guidel...ent_ic-bps.pdf

            Comment

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