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  • See Urologist in 2 hours. Need help now !

    Hi all. I have an appointment in 2 hours and need some input on to what is going on with me. I have had IC symptoms on and off for 15 years. 5 years ago a Urologist told me I probably had IC but the pain stopped while he was investigating so no treatments were started. Fast forward to the present. I became incontinent about 3 months ago, everytime I laughed, coughed I peed myself. Then I started with discomfort, thought it was a UTI. I was put on Bactrim but my culture was negative. While on Bactrim and for 2 days after I felt fine then symptoms came back. I had the full bladder needing to pee all the time feeling and urethral burning. I would urinate and feel good fow 2 to 3 minutes but them all the symtoms would return. Back to Dr and put on another antibiotic. Again it seemed to help , and again negative culture , and symptoms came back again. I have been under an incredible amount of stress also. I was in agony yesterday and finally got an appointment with a Urologist today. Saw my GP also yesterday also and was told to double my Ativan at bedtime and to double my Tramadol. I also put heat on my pelvis all evening. This morning I am almost symptom free and can't explain why . Can a Flare end that suddenly ? I also got some very good news yesterday afternoon about a family member's illness improving a lot. That took a tremendous amount of stress off of me. I now feel like my symtoms were partially all in me head and don't know what to tell the Urologist today. I am afriad he will think I am crazy with the pain ending so suddenly . Can anyone explain any of this to me ? I am just learning about IC and there is a lot I don't understand yet.
    Last edited by magsmom1989; 03-30-2011, 04:17 AM. Reason: typo

  • #2
    No you're not crazy. I have had symptoms that were very painful and in a matter of minutes they could disappear. Mine will come and go quickly. I had the same thing happen at first, and by the time I got to the dr. they were gone.
    If it's a pain or discomfort that gets your attention, then it's 'real' as far as I'm concerned. Good luck at the dr. appointment. I've gotten very aggressive now about explaining how I feel, and leave any passivity at the dr.s door.

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    • #3
      What you tell the urologist is the symptoms you have been experiencing. IC pain can vary a lot day to day.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        He tells me it's NEUROLOGICAL !

        I saw a Urologist today. This man is the Director of the Urology department at one of the best known facilities in my state. After hearing my history and symptoms, he tells me that he believes the IC is a neurological problem and not a physical problem with the bladder. He said I still could have some pelvic floor problems and he will do a Cystopcopy to rule out any bladder abnormalities. But basically it is caused by screwed up pain signals between the brain and pelvic area. Well that makes my bladder feel a whole lot better now , yeah right. He does believe that the pain exists but not from a bladder issue. So now what do i do ? I am actually scheduled to see another Urologist that is affililiated with his center but out of another office usually. I will see this other Dr at a sattelite clinic which is where I saw the first doc today.What a mess. I don't know what to do. The doc today told me to take Ativan everyday and 800 Mg of Ibuprofin.

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        • #5
          Oh my - All this stuff gets so confusing. I had three different opinions as to where my pain was originating and finally I thought - I don't care where it's coming from my bladder hurts, darn it. I had everything treated at the same time since it's all in the pelvic area. I had pelvic floor therapy, lower back and sacral therapy, and medications for the bladder itself. It's all so interrelated no wonder it takes awhile to figure it all out. No harm though in following what your dr has recommended, and see what happens. A lot of this is a matter of exclusion I found out, but I know how impatient you can get over it. It's nerve wracking to say the least and causes an awful lot of anxiety. So - it's a good thing your dr. gave you the ativan. It got me through some really stressful times while all the diagnosing was going on. Hang in there. You can always come here and vent.

          Comment


          • #6
            It sounds like you aren't feeling comfortable with what you are being told. I think a second opinion could help you feel more confidence. I suggest you seek that second opinion from a urologist who is not in the same office practice --- just so you get a fresh point of view.

            Warm hugs,
            Donna

            P.S. Many ICers find that ibuprofin is a bladder irritant --- I know I can't take it.
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              New here..Hello

              I am so glad to have found this site. I posted a messge on another thread adn I have no idea how this works. Short version: 6 years suffering UTI's, so many antibios. Finally last week had a cysto/hydro done and I am feeling horrible. My urethra was opened surgically as it was constricted. Still can't sit straight it hurts. Dr. thinks it is IC. I am scared but hopeful after reading this site for days now. THANK YOU! My question: this uro does not believe in prescribing pain meds. I question if he really does understand the pain involved, the burning and the knifelike stabbing feeling I have. So do I have a right to just out and ask for pain meds to help as needed? He did find ulcers and polyps in by bladder (told my hubby after my procedure)...My appt is in 1 1/2 hours. Don't know what to do but if it is IC (almost sure) my priority NOW is for strong pain relief!!! Help can I ask firmly for this????

              Comment


              • #8
                Just tell him you need something for pain. You have every right to ask for pain meds if you are in pain. Sometimes waiting around for the dr. to offer pain medication doesn't work. I always thought well they must know how much pain I am in why aren't they offering me anything? I just come out and tell them I want something for the pain.

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