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Thinking you have IC? Please consider pelvic floor dysfunction as well...

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  • Thinking you have IC? Please consider pelvic floor dysfunction as well...

    Hey Everybody-
    If you're at the point where you're not sure what you have going on down there or you've been recently diagnosed with IC I wanted to let you know about my story. I've been dealing with the symptoms of IC for over 2 years: pain, burning, frequent and burning urination, the whole nine yards. I also had pain with sex, but I tried to avoid that unlike the IC pain which was unavoidable and unbearable. I had seen many doctors and been on many meds. About 3 months ago my doctor suggested going to physical therapy for pelvic floor dysfunction. I was confused as to why I would go for that when it seemed like my problem was bladder related. Well it really helped. We're still not sure if I have IC or pelvic floor dysfunction (most likely both) but it helped a lot and I'm sure glad I went. So, I guess my suggestion is that you dont' limit yourself to one lane of thought. If you can, set an appt with a physical therapist and give it a try and see if it helps -- don't be discouraged by what seems like only bladder pain -- I don't want to see you guys go through the same thing I did! Best of luck everyone, you're in my prayers.

  • #2
    Thanks for sharing your experience. Many ICer's do find relief with physical therapy. Gald to hear you are feeling better!

    Link to the patient information, everything from What is IC? to Disability

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom


    • #3
      I had much success with pelvic floor pt. I was having severe pelvic floor spasms, which of course made everything else worse. My pt works with IC patients all the time as an adjunct to their other treatments. Taking a multi treatment approach for me was a good way to go. The expense though of pt and also meds can take a toll on the pocket book unfortunately. I do home pt exercises now to keep the pelvic floor as relaxed as possible. It's all inter related down there- nerve endings and muscle groups. Finding a way for them to all work together they way they should is a good goal to work on.


      • #4
        I'm pretty sure I do not have PFD as my uro I think tested me for that during my pelvic exam. I do have my yearly gyne appt next week though and will ask her to check me for that just in case.

        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link:
        AUA 2011 Guidelines to diagnosing and treating IC overview-
        AUA 2011 Guidelines to diagnosing and treating IC PDF:
        Great treatment flowchart on page 19 of the pdf


        • #5
          I was given a pelvic exam and my doctor said PFD was obvious. I'm getting PT now, i'm happy to hear you had luck with it! Thank you! (:


          • #6
            Re: Thinking you have IC? Please consider pelvic floor dysfunction as well...

            Any body who had tried physical therapy can tell me how much did it help?? Thank u