Hi everyone, I have not officially been diagnosed yet, but I am pretty sure that I do have IC. In my heart I never wanted to believe it, and I have been trying out everything to make this discomfort go away. I was given too many anti biotics for an infection, and this was the result afterwards.... I think the antibiotics must have just stripped everything that was good in my body and now I am suffering. I had to come home from University about a week after the UTI symptoms started (no pain) because I could not handle it anymore.
I was beginning to retain urine and I couldnt pee on my own. After going over and over tot he dr and ER where my university was, (having EVERY test under the sun, all negative) I was given an anti depressent ( needless to say I was offended for sure, but I know now that they can help with nerve pain etc).. I took the first dose of thi anti depressent and BOOM couldnt pe AT ALL... Anyways my parents flew me home and I was admitted as soon as I landed to the hospital in my area because I could NOT physically pee on my own. TERRIFYING. No one could do ANYTHING for me, and I even had a uro look in my bladder (cytoscope) but without the distention, he also told me he dint think I had IC (which I had researched previously before this prodedure).... Everyone told me that I would be fine, just give it time... so I believed them, but I also started to do research....
What I did first was took anti fungals and went on the anti candida diet to see if it might just be yeast affecting my bladder. This DID help, but I was still having trouble with frequency and pressure etc. So Next I thougt, ok maby I will go off of my pill as I was noticing that everytime I would start a new pack my bladder would HATE me for about 7 days, and then, just like that the discomfort would subside (not completley but managable) on the week and a half before my period. My periods were also fine as well. I noticed that when I got off my pill I actually felt really good for about a week, and then ( not sure what I was thinking) but I took a CRANBERRY suppliment, thinking in some way it might help. HUGE mistake, I was in a "flare" for 3 days and I am slowly coming out of it now. I have NO real pain. I have some twingy discomfort sometimes and it always feels like I have to go when I don't. Sometims I do get releife though ( I was having reliefe before this cranberry pill incident)...where I am able to pee and then feel normal for about 40 min to an hour before I have to go again. I am terrified that I will eventually have pain, and I am so scared for my future right now, I am only 24!!!! I have a prescription for Elmiron, and I have taken three pills.... and stopped... I am still leery about this med because I dont want to lose my hair... I would rather do everything naturally if I can, and diet has seemed to help the most....I will try Elmron again if I cant get my symptoms under control with diet...
Right now I have to pee and I just went about 15 min ago.... mind you I have been drinking alot. Usually when I DO go and im not having discomfort I can hold 300 to 400 ml in my bladder before I go.............I measure it everytime. Latley I have been taking these bicarbinate pills that help rebalance the PH. I try and keep my urine alkaline, but right now it is VERY acidic.... probably why I am having discomfort...
I really want to be a mom, and I am scared that I will never be able to feel better, or have a family.....
I am scared of a diagnosis because that really means this is real.... I am also scared that a hydro will make me worse than I am.
Please help...
I was beginning to retain urine and I couldnt pee on my own. After going over and over tot he dr and ER where my university was, (having EVERY test under the sun, all negative) I was given an anti depressent ( needless to say I was offended for sure, but I know now that they can help with nerve pain etc).. I took the first dose of thi anti depressent and BOOM couldnt pe AT ALL... Anyways my parents flew me home and I was admitted as soon as I landed to the hospital in my area because I could NOT physically pee on my own. TERRIFYING. No one could do ANYTHING for me, and I even had a uro look in my bladder (cytoscope) but without the distention, he also told me he dint think I had IC (which I had researched previously before this prodedure).... Everyone told me that I would be fine, just give it time... so I believed them, but I also started to do research....
What I did first was took anti fungals and went on the anti candida diet to see if it might just be yeast affecting my bladder. This DID help, but I was still having trouble with frequency and pressure etc. So Next I thougt, ok maby I will go off of my pill as I was noticing that everytime I would start a new pack my bladder would HATE me for about 7 days, and then, just like that the discomfort would subside (not completley but managable) on the week and a half before my period. My periods were also fine as well. I noticed that when I got off my pill I actually felt really good for about a week, and then ( not sure what I was thinking) but I took a CRANBERRY suppliment, thinking in some way it might help. HUGE mistake, I was in a "flare" for 3 days and I am slowly coming out of it now. I have NO real pain. I have some twingy discomfort sometimes and it always feels like I have to go when I don't. Sometims I do get releife though ( I was having reliefe before this cranberry pill incident)...where I am able to pee and then feel normal for about 40 min to an hour before I have to go again. I am terrified that I will eventually have pain, and I am so scared for my future right now, I am only 24!!!! I have a prescription for Elmiron, and I have taken three pills.... and stopped... I am still leery about this med because I dont want to lose my hair... I would rather do everything naturally if I can, and diet has seemed to help the most....I will try Elmron again if I cant get my symptoms under control with diet...
Right now I have to pee and I just went about 15 min ago.... mind you I have been drinking alot. Usually when I DO go and im not having discomfort I can hold 300 to 400 ml in my bladder before I go.............I measure it everytime. Latley I have been taking these bicarbinate pills that help rebalance the PH. I try and keep my urine alkaline, but right now it is VERY acidic.... probably why I am having discomfort...
I really want to be a mom, and I am scared that I will never be able to feel better, or have a family.....
I am scared of a diagnosis because that really means this is real.... I am also scared that a hydro will make me worse than I am.
Please help...

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