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Could I have IC?

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  • Could I have IC?

    Hello lovely ladys of the forum, was wondering if you had any advice or experiences to share with me, first of all I'll start by giving you a brief summary of my symtoms.
    I'm an 18 year old woman.
    Orignally diagnosed as having a UTI, standard symptoms, cloudy urine, constant urgency, dark urine, pain etc...
    After a while of getting reoccuring ones antibiotics stopped helping...
    A year down the line these are my symptoms:
    Constant urethal pain, constant urgency, pain is worst after urinating, urine is cloudy, foul smelling, dark and when tested it has white blood cells, red blood cells and all the other standard things that come up with a UTI, however when they send the urine away no bacteria grows...
    I feel so stuck, I can't work and am doing terribly at University. Any advice would be greatly appreciated, Rachel.
    Current Treatments - I've just started all of these, hoping for some relief soon
    Cystistat
    Cystoprotek (2x2 daily)
    Marshmallow Root (2x3 daily)
    Amitriptyline 25mg (once daily)
    Atarax 25mg (only daily)
    IC diet (only eating from bladder friendly column till I get some relief)
    Yoga
    Meditation

    Symptoms
    Painful urination
    Bladder pain


    This is my boyfriend and I, he is my rock through all of this!

  • #2
    Forgot to add, have had ultrasounds, which are clear, and a flexiable and rigid cystoscopy which were both clear
    Current Treatments - I've just started all of these, hoping for some relief soon
    Cystistat
    Cystoprotek (2x2 daily)
    Marshmallow Root (2x3 daily)
    Amitriptyline 25mg (once daily)
    Atarax 25mg (only daily)
    IC diet (only eating from bladder friendly column till I get some relief)
    Yoga
    Meditation

    Symptoms
    Painful urination
    Bladder pain


    This is my boyfriend and I, he is my rock through all of this!

    Comment


    • #3
      I wish I could give you an answer, but I don't have any idea what might be going on with your urinary system. I do know that a cystoscopy done in the doctor's office will not usually diagnose IC. You might want to give the IC diet a try to see if that helps. And be sure you are drinking six to eight cups of water daily.

      Warm healing thoughts,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        No one here can really give you an answer without you going to the doctor. You might need to go to a urologist that specializes in bladder diseases. You can find that information here: http://www.ic-network.com/md/

        You may have IC, but you also may have an infection that isn't being picked up by the cultures. It is very hard to say.

        What happens when you drink cranberry juice?

        I know it is hard to be in such pain when you are in school. It would be a good idea to talk to your Student Services department. You can probably qualify for a temporary or permanent disability accommodation which will allow you to negotiate longer due dates and other help from your professors. This can be much easier than trying to talk to your professors individually because most of the time the university sends out an email to the instructors and you don't have to "talk" about your personal issues. Just a thought anyway........

        Sending you understanding hugs..............
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

        ........ ........


        Other IC Diet Resources:

        IC Diet Webinar
        IC Diet Website
        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
        Free IC Diet Booklet: What Can I Eat?
        Confident Choices IC Diet Blog
        IC Diet Newsletter


        *Let's Connect!*

        Comment


        • #5
          I'm not a doctor, not even a diagnosed IC patient, so I can't tell you what the problem is, but it sure sounds agonizing. It's so frustating not to know what's wrong... Good luck with finding help!
          Not diagnosed yet

          More than a decade of 'bladder issues'
          Main symptoms: burning pain in urethra, urgency, frequency
          Triggers: Alcohol, carbonated drinks, tight jeans, synthetic underwear, stress, dehydration
          Tests: zillion negative cultures, a cysto-hydro with biopsy, two urodynamics, several cysto's and ultrasounds, a sphincter electromyogram
          Starting physical therapy soon

          Getting married 7/7/2012

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