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  • mommy2T
    replied
    Donna-
    Thanks! I will try the IC diet. I have been gluten free for almost 7 years due to celliac's disease so I will look into how I can merge the 2!

    Jamie

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  • mommy2T
    replied
    Ginger,
    Thanks for your reply I don't know what the next step will be but I will find out later this month when I see the gyn for my post-op. I wouldn't be surprised if I end up with a kidney ultrasound b/c of how bad the back pain is (I had really thought it was due to my endo). I will let you know how it works out.
    Jamie
    PS- you are right they grow up too fast I can't believe she is already in school.

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  • ICNDonna
    replied
    It's possible that what you have is IC --- I would bring up the subject at your follow up visit. In the meantime, you might want to give the IC diet a try. You'll find the latest food list at the link in my signature below.

    Donna

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  • nanawaggs
    replied
    Hi, Jamie ~ Welcome to the ICN. So sorry to hear all you've been through in your short lifetime. I don't have any experience with endo, or laps, but the symptoms you describe now, "My symptoms are pelvic pain (all the time but worse with straining or intercourse), very bad low back pain (kidney areas) esp with ANY exercise, extreme fatigue, and sometimes difficulty sleeping due to the pain. My bladder has been extremely irritated since the surgery, which still could be due to the cathetar used during surgery (have to pee constantly, but can't always go) " are so similar to what I've felt. I even had kidney ultrasounds because of that pain. My symptoms started immediately after a surgery I had back in 2007. Mine comes down to IC diagnosed during a surgery I had last year so I'm getting things under control with treatment for IC and PFD. The inability to pee is the most uncomfortable and unnerving feeling of all at this point.

    I do hope your doctor helps you through at this point or can direct you to a uro/gyn who could investigate the possiblity of IC.

    Take care and please keep us posted. Enjoy that little one!!!! They sure grow up too quickly.

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  • mommy2T
    started a topic Possible answer?

    Possible answer?

    Hi all,

    My name is Jamie and I am starting to wonder if I have IC. The quick version of my story is: Started with symptoms of endometriosis in 1994 (at the age of 15). 2004 had my first lap, got cleaned out, felt better. Over the years I repeated this whole process 3 more times--> lap, got cleaned out, felt better (though never 100% pain free). Fast forward to Tuesday. I had yet another lap, but when I woke up was blown away to hear there really was very little endo or adhesions (esp for me) so that indicated the Mirena seemed to be working to control it (good news...but then why do I still hurt?) The I remembered years ago my OB/GYN had mentioned IC as a possibility, but it never went any further.

    My symptoms are pelvic pain (all the time but worse with straining or intercourse), very bad low back pain (kidney areas) esp with ANY exercise, extreme fatigue, and sometimes difficulty sleeping due to the pain. My bladder has been extremely irritated since the surgery, which still could be due to the cathetar used during surgery (have to pee constantly, but can't always go). Looking back now I can see I have had several bladder symptoms I have blown off...but they are not constant. Several weeks ago I had a few weeks where every night I was up at least twice to pee, but then it stopped. I have had several days over the last year or so where I thought I may have been starting with a UTI, but the symptoms usually disappeared before I could even get into the doc and get a culture. When I have gotten the culture its always negative, except for white blood cells. I have also had stress incontinence issues since I was a young teenager, which of course got worse after I had my baby girl 5 years ago.

    I see my OB/GYN for my post-op in mid October. Any ideas are greatly appreciated. I had this surgery to try and help with the pain and I am right back where I started, only with incisional pain now too!

    Thanks for reading,

    Jamie
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