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  • so sad help !

    ok so my new urollogist tested me 4 microplasma ureplasma and ordered a mri ive already had cystocpy normal and normal ultrasound she doesent want 2 do the hydrocystocpoy & thinks it could make me worsr ! she gave me a month amoxicicillon & urebel which dosent really help much . im really at the end of my rope as ive had a constant urge 2 pee 4 3 months now along with on & off burning in urethra & vaginal sharp knife like pains & aches in vagina ! this all started 8 wks after my baby (1st 1 ) . ive heard of augmentin cureing ic so i willing 2 try i have generic but not sure if a month will b enough . the doc dosent think i have ic but since ive been tested for everything else what else could it b ? im folllowing a diet with no acid but i fall off track a lil sometimes & dont feel worse when i do ,sex is uncomfortable but not 2 painful & i dont feel worse after the pain is pretty random & i have spasms that feel like a baby is kicking me everyday ! i ordered pyrosia14 online & praying 4 releif . i know some have told me that it could take a month or to for diet 2 work but if i eat something im not supposed 2 & dont feel worse does that mean i can tolarate it ? im really confused on the diet & not feeling better after 2 wks no coffee & i slipped up & ate a bowl of pasta once also a brownie . my husband isnt being supportive mainly because im not diagnosed he feels i shouldn't deprive myself i just dont know what 2 do i feel like this is never going away & even the docs cant help me ! i cant live like this & care 4 my newborn , work fulltime im really getting depressed . if ive been tested for tumors , cancer, stones,utis ,every std,micro urea plasma what else other than ic could this b ?i also show luekalites in every reg test for uti but never nitrites & cultures always negative ! thanks for reading a long post & i know my thoughts r everywhere 2 so thanks for any help
    Edit Value
    I'm Faith - pain started 6 wks after the birth of my daughter a lil over a year ago .my pain is very deep in pelvis and a few uros have suspected ic ,pain started as a uti and then the deeper pain came ,i was fed numerous antibiotics without an infection present an eventually the uti pain went away and a deeper pain replaced it i also have ,possible pudendal nerve pain or vulvadynia ,and pcos ,insulin resistance

  • #2
    Originally posted by hope4eva View Post
    ok so my new urollogist tested me 4 microplasma ureplasma and ordered a mri ive already had cystocpy normal and normal ultrasound she doesent want 2 do the hydrocystocpoy & thinks it could make me worsr ! she gave me a month amoxicicillon & urebel which dosent really help much . im really at the end of my rope as ive had a constant urge 2 pee 4 3 months now along with on & off burning in urethra & vaginal sharp knife like pains & aches in vagina ! this all started 8 wks after my baby (1st 1 ) . ive heard of augmentin cureing ic so i willing 2 try i have generic but not sure if a month will b enough . the doc dosent think i have ic but since ive been tested for everything else what else could it b ? im folllowing a diet with no acid but i fall off track a lil sometimes & dont feel worse when i do ,sex is uncomfortable but not 2 painful & i dont feel worse after the pain is pretty random & i have spasms that feel like a baby is kicking me everyday ! i ordered pyrosia14 online & praying 4 releif . i know some have told me that it could take a month or to for diet 2 work but if i eat something im not supposed 2 & dont feel worse does that mean i can tolarate it ? im really confused on the diet & not feeling better after 2 wks no coffee & i slipped up & ate a bowl of pasta once also a brownie . my husband isnt being supportive mainly because im not diagnosed he feels i shouldn't deprive myself i just dont know what 2 do i feel like this is never going away & even the docs cant help me ! i cant live like this & care 4 my newborn , work fulltime im really getting depressed . if ive been tested for tumors , cancer, stones,utis ,every std,micro urea plasma what else other than ic could this b ?i also show luekalites in every reg test for uti but never nitrites & cultures always negative ! thanks for reading a long post & i know my thoughts r everywhere 2 so thanks for any help
    Get a new doctor. This website has a list of doctors who take particular interest in IC. also ask about vaginal valium suppositories, try benedryl, and follow the IC diet.
    • 27 year old student
    • Had symptoms since I was 5
    • Been on forums since '07, knew I had this since then, received mild treatment without true diagnosis due to anxiety. Diagnosed by symptoms on 4/08/11.
    • Had first horrible flare in 07, bad doctors, had to research IC myself to clue in onto what it was. After following the diet I went into remission.
    • Big flare in 09 due to an untreated bladder infection. Went back into remission in 2012.
    • Symptoms returned 4/1/15. All of my remissions have ended in April-May or September-October. It sounds like a connection to seasonal allergies to me..


    Currently: Continuous Birth Control, vaginal valium (10/6/11), Elmiron (4/08/11), UTA (4/08/11), continuous Trimethoprim for infections (10/6/11), Heating pad, Benedryl, harsh diet

    What I know works: Benedryl, diet, birth control, UTA, valium, ditropan, soma

    What didn't work: Elavil, vistaril (12/22)

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