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Hello everyone. I'd like to start by thanking all of you for your posts. I have already found so much information and comfort here. You all have proven that IF I end up with a diagnosis of IC I WILL BE OK. So Thank You.
So I began all of this on September 29th. I was working and started have severe pain just to the right of my bladder. I ended up in the ER where they did a urine culture/pelvic ultrasound/CT scan/blood tests/pelvic exam... and found nothing so they sent me home with narcotic pain meds. They helped for a bit (taking the maximum amount) but as I'm sure you all know, I can't function in life on narcotics. I have been out of work for almost 2 months. The pain is sharp but comes and goes. There are good days and bad. My bladder also cramps and throbs at times. Badly. Anyway, I went from my GP to a GI dr. to an OBGYN. She suspected IC because my bladder hurt very bad upon palpating. She sent me to my urologist.
Friday I had a cystoscopy. Just with Liodicane. It was TERRIBLE. I had lots of pain immediately then LOTS of pressure. My capacity was abnormal as was the amount of pain (according to dr.). He is now very suspect of IC and wants to do the cystoscopy with hydrodistension. I am very nervous for that as I bled and had a hard recovery just from the cystoscopy. BUT I am in SERIOUS pain and need relief. I have a pelvic MRI this week just to make sure there is nothing else going on. I have had 2 abdominal CT's with contrast that were normal. I am still debating on the hydro. I think my dr. was good in that he wouldn't schedule it until I did my research and read up on IC. I am glad I have time to prepare for a diagnosis. Luckily, I do not have much urgency but I do get up 3-5 times a night to urinate. And sleep is already very difficult with the pain.
I would love any advice any of you have. I really don't know how to navigate this. Of course, I am also a bit heartbroken, but I am trying to hang in there! You are all helping already.
Thank YOU!
~KrissyJ
(30 year old female)
So I began all of this on September 29th. I was working and started have severe pain just to the right of my bladder. I ended up in the ER where they did a urine culture/pelvic ultrasound/CT scan/blood tests/pelvic exam... and found nothing so they sent me home with narcotic pain meds. They helped for a bit (taking the maximum amount) but as I'm sure you all know, I can't function in life on narcotics. I have been out of work for almost 2 months. The pain is sharp but comes and goes. There are good days and bad. My bladder also cramps and throbs at times. Badly. Anyway, I went from my GP to a GI dr. to an OBGYN. She suspected IC because my bladder hurt very bad upon palpating. She sent me to my urologist.
Friday I had a cystoscopy. Just with Liodicane. It was TERRIBLE. I had lots of pain immediately then LOTS of pressure. My capacity was abnormal as was the amount of pain (according to dr.). He is now very suspect of IC and wants to do the cystoscopy with hydrodistension. I am very nervous for that as I bled and had a hard recovery just from the cystoscopy. BUT I am in SERIOUS pain and need relief. I have a pelvic MRI this week just to make sure there is nothing else going on. I have had 2 abdominal CT's with contrast that were normal. I am still debating on the hydro. I think my dr. was good in that he wouldn't schedule it until I did my research and read up on IC. I am glad I have time to prepare for a diagnosis. Luckily, I do not have much urgency but I do get up 3-5 times a night to urinate. And sleep is already very difficult with the pain.
I would love any advice any of you have. I really don't know how to navigate this. Of course, I am also a bit heartbroken, but I am trying to hang in there! You are all helping already.
Thank YOU!
~KrissyJ
(30 year old female)
I've found answers...so can you...keep the hope.
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