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  • new pain in flair question

    I wanted to ask if this sounds all like IC- ontop of IC symptoms I am having urethal pain and burning that is consistent no matter what my diet is. This symptom is new to me and I'm not finding much info about this issue.

  • #2
    Estradiol helped. Or it’s a UTI?

    Comment


    • #3
      They said at the doctors office it is all clear and no UTI, but honestly I have never had a flair like this before. The estradiol may be a good thing to try.

      Comment


      • #4
        Have you tried keeping a diary to see if you can identify an elusive cause for your pain?

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          I have been following your posts recently and I have been adding my drinks daily to the list, examining how they effect me. I was reading in the IC magazine as well or the app from ICN that Gatorade is OK but it is hit or miss (if I recall correctly, it said you have to test it out yourself) . That will be something to go without for awhile.

          Comment


          • #6
            If you decide to go back to Gatorade, I suggest you avoid the pink ones. I don't really like it, but I can get away with blue.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              That right there might be my issue, I went straight for the pink ones. Is Gatorade OK during a flair at all, or are they also off limits? I am going to incorporate more into my diary as well like clothing, etc to see if I can pinpoint the issue. You have been a humongous help by the way and I appreciate it.

              Comment


              • #8
                One thing you might consider is to avoid the Gatorade for a week or two --- then try a small amount every day for a few days --- that should tell you if it's a problem for you.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  After talking with my PT yesterday she mentions it might be a problem with the urethral area since it seems to happen no matter what I drink or eat. I am also having slight bladder leaks and more frequency, but I'm going to go further into diet modifying, keeping notes and wearing loose clothes.
                  Last edited by ICGamer; 01-28-2021, 07:36 AM. Reason: Doctors office could not help.

                  Comment


                  • #10
                    Please let me know how you are doing.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      I am taking a few deep breaths and trying to relax, I need to be very focused on drinks *Gatorade/anything besides water* and see if that stops the urethral pain and issues. My symptoms seem to be pinpointing to Urethral Syndrome from what I see. I reached out to the doctors but because it was Interstitial Cystitis/BPS they did not want to touch it so to speak, and I am in need of a new urologist. (We are planning to move near the Mayo Clinic in about a year.) Once I am only completely drinking water can I rule out anything else. Thank you for the support and your help.

                      Comment


                      • #12
                        After being extra careful today I found out it was the raspberry lemonade Gatorade, plus intimacy basically. I am thankful to have been following the diet more and it did really help. I am wondering if part of the problem isn't also the meds *Gabapentin and Baclofen*, seem to make things more acidic. I have been using Prelief religiously and it is helping a bit. So relieved and thank you for your help and suggestions. I know next time to eliminate things and see what happens. Very relieved because I was in less pain today, and less stress mentally. I have some research to do about the intimacy aspect next because that was probably at least 1/2 the issue.

                        Comment


                        • #13
                          I'm so glad you're feeling better. There's a forum here with posts about intimacy --- it's been quite a while since any posts were made there, but there are some older discussions there that might help you. The only other comment I have is to suggest that you try one thing at a time --- I wait three or four days before anything new --- that way if something is a problem, I don't have to wonder which i was.

                          Stay well!
                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment

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