Announcement

Collapse
No announcement yet.

fatigue

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • fatigue

    I'm having a flare that started on Monday and I have this overwhelming feeling of fatigue. I'm rather new to this and have had 2 flares since my diagnosis last April. I never had this tiredness in my previous flares. I'm not taking anything for pain so I know it's not that. Any help would be aprreciated. Sue

  • #2
    Sometimes just pain itself will tire us out. How about sleeping, any difficulties? Hugs Kathi hi
    One Day At A Time
    Kathi

    Comment


    • #3
      I didn't sleep well for 3 or 4 nights between the pain and frequency but last night I did pretty well. Still really tired but you maybe right. Thanks for the input. Sue

      Comment


      • #4
        Hi Susan hi I seem to be tired all the time, meds or no meds, flare or no flare...just plain pooped!! It drives me nuts Best of luck to you grouphug hi
        Wishing you the best, today, tomorrow, and always! Sheri G

        Comment


        • #5
          sorry you feel so bad i know how you feel i have been laying around with no energy either for four days now but what caused me to flare was a VERY NASTY UTI what makes me so angery about it i went for three mths without a uti which is a record for me now two weeks later i have another one worse then the first one i tried to tell the doctor it wasnt cleared up but they disagree with me and said the test showed up clear now i'm in this mess. blah sorry to go into a story about me.
          Hope you feel better soon hugs grouphug
          Medicine taken daily or as needed:
          1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
          2. MS.Cotin 100mg 3x daily
          3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
          4. Fentanyl 100 mg Change every 48hrs.
          5. Gentamicin 80mg install after each rescue treatment
          5 Leviquin 500mg self start as needed.
          6. Klonopin 1 or 2 daily as needed.
          7. Prosed/DS as 1 every 6hrs as needed.





          I have IC, but IC doesn't have me anymore!

          Comment


          • #6
            I am always tired... its amazing, and I'll ;ay down to sleep and cant. but then there are time i cant but sit to rest and i am out cold...
            Brat
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment


            • #7
              I am tired all the time too. OF course, some of it is from lack of sleep, (going to the bathroom all night long.) I read somewhere that fatigue is part of IC. I think just living with a chronic disease is exhausting. It is such a huge part of your life. Good luck, and I hope we all sleep well tonight!
              carly

              Comment


              • #8
                Thanks for all the replies they were a great help. I did get more sleep the last couple of nights and today I could function. It feet like I had on concrete boots and absolutely no energy much less motivation. I dont know how you gals that have to work do it. This flare my symptoms are so different from before. I thought I'd always have the same problems but a few surprises this time. Sue

                Comment


                • #9
                  I would agree with what some others have said on this posting: IC is a fatigueing disease. I sleep 16-18 hours a day if a chance came up.....I'm very tired all the time, and can sleep when I'm standing up!!!! Or driving...even scarier. My best time of day, in terms of alertness, is first thing in the morning. for some reason, that works well for me so I try to schedule everthing for then. After noon, I gotta have a driver or I'm snoozin at the wheel.Then at night, My husband says I'm restless and kick and moan, and cry...up and down.....I got an IPOD at christmas so i put the thing on with some calming music and let it just go and I go nighty night.

                  Good Luck!!!!

                  Tracey
                  I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                  Medications I CURRENTLY take:
                  90 mgs Ms contin (45 mgs Am/PM)
                  Percocet as needed
                  Topomax 100mg day
                  Ambien 10 mg bed
                  desipramine 25 mgs




                  If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                  Albert Einstein

                  Comment


                  • #10
                    I'm usually always tired also but just like carly I go to the bathroom all night long grouphug
                    also if you get to much sleep you will be sleepy all day, every one is different if you get more then 10 hours of sleep try cutting down and see if that helps I seem to be more awake through the day if I get about 9 or 10 hours of sleep but anymore and I'm so tired

                    How would it be to sleep one full night without going to the bathroom toilet
                    GOD, grant me the serenity to accept the things I cannot change, Courage to change the things I can, and the wisdom to know the difference.

                    Comment


                    • #11
                      I know...Do you even comprehend what people are talking about when they complain about be awoken to pee at some point in the night. I mean, like t hey complain that evey morning at 2 am they have to go. Then they act all tired cause they had trouble going back to sleep. Those are usually the folks I find really think you just have no real problem and don't get it. (The topic comes up when folks ask how I am, I'll discuss some of the stuff I'm going through, they want to know what the disease is and then I get hear about often such and pees or who has constant infections in whose family>>>>I dunt care....(I meant to spell it that way ) Have a pee test or an exam, but you don't know pain folks. Then of course....I like to shock some of the real , how do I put it? Anti drug (especially sensationalized stuff...like lately the news and it's slamming oxycontin, morphine) folks by telling them I'm on morphine. Funny, they start really watching me..waiting for one of those drug type "fits" they've read about!!!!They can't, figure out how a bladder problem could create such pain, and I know it is difficult. I'm somewhat teasing, somewhat frustrated at the lack of knowledge of this. Is it because it is boring? Not enough cute kids or visible signs of disease? Urine and cramping bladders I guess are not a comfortable subject on "News channel 8 in the Morning" ,Not very yummy over your raisen bran and coffee. AAAAAHHHH coffee...do I miss that....

                      Sorry I've rambled...My pain is high tonignt and while I await the nerve block I have no extra drugs to help, I'm in pain so I've gone a little extra tonight, in terms of the "herbal" route. Don't do unless you are very comfortable and know your meds and rxn to them well. But I've had to have extra help this week and am not getting it, Keep playing phone tag waiting for one doc totalk to another. UGH>

                      Goodnight baby sleepy
                      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                      Medications I CURRENTLY take:
                      90 mgs Ms contin (45 mgs Am/PM)
                      Percocet as needed
                      Topomax 100mg day
                      Ambien 10 mg bed
                      desipramine 25 mgs




                      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                      Albert Einstein

                      Comment


                      • #12
                        I accidently sent two of those rambles and deleted one but all the stuff stayed up and couldn't waste the space and make every one wonder if I lost my rocker. Things that make you go HMMMMM...that command worked earlier when I accidently double sent but this time it didn't. I must not have done the correct chant this time., or proper sacrific. Whatever.

                        T
                        I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                        Medications I CURRENTLY take:
                        90 mgs Ms contin (45 mgs Am/PM)
                        Percocet as needed
                        Topomax 100mg day
                        Ambien 10 mg bed
                        desipramine 25 mgs




                        If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                        Albert Einstein

                        Comment


                        • #13
                          I get so tired too... yesterday, after flaring all day, I had a seminar to go to at work from 4-5 pm, and my frequency/urgency settled down enough so that for the first time I could sit comfortably for longer than 15 minutes... of course, after running to the bathroom all day and being in pain, I was exhausted and proceeded to fall asleep sitting in my chair in the seminar! LOL lmao

                          My colleagues, who were sitting next to me, just let me sleep, bless their hearts... they could sense how miserable I had been all day and didn't want to disturb.

                          Today I am still flaring and finally gave in to it... I decided to just stay home and rest all day with my heating pad. My husband also insisted that I stay home... he knows I am overtired from a recent business trip, etc, and he knows that my bladder gets VERY grouchy when I'm overtired...

                          Jen
                          ****
                          Jen

                          *Diagnosed with severe IC in 2004
                          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                          Comment


                          • #14
                            Hi there, I thought I had already replied to this post, but now I can't find it

                            Anyways, I hope you're feeling better soon. I think a combination of frequency and nocturia, which can result in exhaustion, along with chronic pain and discomfort that can result in fatigue.

                            But I also discovered that by following such a strict IC diet, I was deficient in many vitamins and nutrients, especially B12 and iron, so now I take iron supplements, and get a B12 shot about once a month...it's made a big difference!

                            Take care,
                            Alexa
                            My story of healing and hope http://www.ic-network.com/patientstories/alexa.html

                            Comment


                            • #15
                              Had to laugh...re read my post and everyone elses....we were tired (at least Iknow I WAS) I've only been writing in rambles since I started on morphine. I was ssoo tired I fell asleep today at the CHIROPRACOTOR. 'Course, he was doing very gentle manipulations above the bladder and pubic bone and soft tissue. Said I must walk with my butt held really tight because my pelvis/sacrum is very tight. This puzzled me as I don't think of my hips moving like my arms, neck, or even spine...but he said there is alot of subtle movement and I'm completely locked up. Reminded me to breathe deeply throughout the day, do various yoga stretches, and just listen to my body...if I need to lay down and sleep, do it!

                              Hope you all sleep well tonight.

                              T
                              I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                              Medications I CURRENTLY take:
                              90 mgs Ms contin (45 mgs Am/PM)
                              Percocet as needed
                              Topomax 100mg day
                              Ambien 10 mg bed
                              desipramine 25 mgs




                              If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                              Albert Einstein

                              Comment

                              Working...
                              X