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bladder size versus bladder capacity

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  • #16
    What can we do to stop our bladders from becoming stiffer? I take all the meds and follow the diet. I thought most of the meds just put a band aid on the symptoms. I know if elmiron works it does help protect the GAG layer. I am following the diet to an extreme but am trying to add. So a food flare here and there will happen. Every time we flare regardless of stress or food or whatever are we making our bladder stiffer?
    Daily Meds:

    IC-Meds
    Ditropan XL 5 BID, Elavil 50 QD, Elmiron 200 BID, Hydroxine 50 BID. As Needed: Bacofen 20, Prosed DS, Hydrocodone/Apap.

    Other Meds
    Adderal 10 QD, Remmeron 37 QD (I take 1 1/2 of 25 mg)

    With the help of my doctor moving my meds around a bit by increasing this and decreasing that I have found a good combination of meds (for now and I pray a long time from now).

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    • #17
      My doctor told me that my urge to urinate (constant) is a pain response. They suspect my bladder is saying "ouch" and spasms while my brain reads that as "I have to pee". My bladder couldn't hold more than 500cc's, but the thing is, if you void small amounts for so long, you can effectively shrink the bladder. My bladder won't hold more than 100cc's awake without being incontinent. From 50cc's to 100cc's the urge is so bad I nearly vomit and do lamaze breathing. It isn't painful, but the urge is just so strong, I can't tolerate it...
      [SIZE="1"][B]Be well, Alyssa :hi:[/B]

      [

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      • #18
        I had a hydro done in 2004 when they did my hysterectomy and the dr. started to fill my bladder. He started with 300 and never got there. At 240 the bladder wouldn't take any more fluid so does that mean my bladder is stiff? That was of course under general anesthesia, just going by trying to hold it as long as I can I never make it past 75cc.
        IC found on hydro 2/2004, total hysterectomy, rectocele and vaginal wall reconstruction 2/2004.
        I have had previous Heparin instills that worked great.
        8/2007 Pain, urgen/freq returned.
        Since then I have had weeks and weeks of instills,
        PFD diagnosed 02/2008 finally


        IC
        PFD
        IBS
        Anxiety

        MEDS:
        Fentanyl patch, Hydroxyzine, Klonopin, Tizandine, Climara patch

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        • #19
          I'd love to know who the surgeon is in Toronto and how he can be contacted. I myself would eventually like my bladder removed, but it's also for a friend of mine who is suffering horribly and has been for years and can't find a uro willing to remove her bladder in Montreal.

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          • #20
            from what I've heard, silver nitrate was very bad for the bladder, in addition to being painful, which is why they've stopped using it. It literally strips a layer of your bladder, which when you have ic is a really bad idea! I'm no doctor, but I would think it is possible that silver nitrate damaged your bladder and contributed to your current condition. The doctors you were seeing obviously are not very well educated on ic, because many peoples bladders will be normal sized with ic, the only way to know if that's what's wrong is a cystoscopy with hydrodistention under general anaesthesia. The symptoms sure seem to fit though.

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            • #21
              bladder size

              My Dr. gave different info I think it was born to swim he told for people with normal bladder function normal capasity was around 300 cc, give or take a bit, they get the urge to go before this but can hold on till it is the right time for for them to go.
              This is not the case for ICers I know many Icers have small capasity, probably for many reason. In my case I have a capasity of about 750 cc, but I have frequency, pain and urgency because I can't empty my bladder, probable from PFD. The bladder is a muscle and mine dosen't contract enough to empty bladder. I asked IC specilist if I in fact could really have IC when I have large capasity, he said definatly yes IC comes in many forms, that they don't know all causes or types yet.
              So I think we really can't compare one person stats to anothers. IC can not be diagnosed by cat scan or ultra sound, but it can give them other information about functon.
              I think that many Dr. have no idea what they are talking about, we have take what they say with a grain of salt.
              Mostly some how Dr. need to be more educated about IC and it's related problems, not sure how we do this but Dr. beening educated sure would help us all.
              I got a bit off track, but IC come sin many fshapes and form.
              I also would like to know how do they tell, if bladder is shunk from not being used to capsity or if it is scarred, I think this would help many people to not have their bladder streached, causing pain when it probably wont help.
              Mothergoose
              My are with you all. May you all find a way to peace and joy in your lives.

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              • #22
                This is a very interesting thread. Thanks Youngin for starting it.

                When I had my last hydro about 10 years ago or so, my doctor told me that my bladder was very scarred and he referred me to an specialist that worked with IC patients. Back then, I didn't know to ask how much my bladder held under anesthesia, I just knew that my freq/urg was so bad that I was constantly feeling like I needed to empty my bladder. I went through several treatments and meds for a couple more years when I was a patient of Dr. Doggweiler. Then I had the interstim, which I am grateful that it helped me tremendously and even allowed my bladder to quit being so irritated, therefore alot of my pain issues decreased as well. I was happy that I could finally go to the bathroom about every 2 hours. I still had problems at night, but not nearly as pre-interstim.

                Last summer, I started having problems with feeling as if my bladder was on fire and when I tried to empty it, it was like I was peeing "shards of glass". By that time it had been 19 years since I was diagnosed and 9 years or so since my IC progressed to the severe stage. Last August, my uro/gyno started me on different nerve meds, which didn't help. Then he put me on Prosed DS which after a couple of weeks, I saw a huge difference in my urgency and frequency. I even started keeping a voiding diary again and I was emptying at least 10 ounces at one time, when before I was lucky to empty 2 or 3 ounces. I was finally using the phrase my grandmother used to always say that "I was peeing like a racehorse". Anyway, I just wonder if the Prosed has allowed my bladder to heal or if it has just taken this much time after my surgery. I did have an adjustment last summer as well. Several times, it has made me so curious that I would like for my doctor to do a hydro just to see what my bladder looks like now. Of course I would never do that since I don't want to mess up a good thing. I have been at work since 8:30 this morning and I have not needed to go to the bathroom one time today. Before last summer, that was never ever the case. If I held it for more than a few minutes, I would either have retention or those mean spasms after I emptied. Now I can hold it for quite a while without aggravating my bladder. It is as if I never had severe IC. I meant to ask my doctor if I could see the report on my hydro in 1998, but he is not the doctor that did my surgery. I am sure he has my medical records from Dr. Ragi, but I just didn't ask because we were both in a hurry. I will be sure to ask him next time. I will probably need to call the nurse to make sure that my all my files are available to him. I had 2 huge files with Dr. Ragi. I just wonder if my bladder can go from scarred and shrunken to be more of a normal size.

                Tracey
                Last edited by Claredale; 04-04-2008, 02:15 AM.

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                • #23
                  Interesting!

                  I know that in a flare I have very little (seeming) capacity, and when not flaring can go for hours.

                  Guess from my own past experience I lean towards Mothergoose's statement about taking any doctor's ideas with a grain of salt. A second & even third opinion can never hurt!

                  Vicki
                  "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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                  • #24
                    My bladder size has gone down to 500cc and I have been dxed with servere IC from my hydro, but I hardly ever have frequency. Pain is my worst issues.. My uro also explained we don't use our whole bladder anyway.
                    Meds on now:

                    dextro 10mg

                    5000mg Vitamin D- when tested, I was sooo low.
                    Compound Hormones- Had hysterectomy when 24, ovaries out 37

                    At night:


                    4mg Zanaflex- Fibro & PFD
                    plendil- Raynalds

                    I have Fibro, IC, IBS, PFD, Raynauds.

                    Tried:

                    Past Meds
                    Lexpro- changed to Cymbalta for better pain relief –off both
                    Ultram – three times a day. Helped , I was tired of always being so tired.
                    Elmiron-took for a year-
                    Topamax-Did not need anymore since on dextro.
                    Atarax- did not need anymore

                    Pictures: Hubby & Me, Ozzy, My three Sons!!
                    What a proud Mother I am!!



                    .

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                    • #25
                      Judith explained it well the capacity while asleep and while awake.

                      The mystery of IC why some people's bladders can hold 750cc under anesthesia and some 200cc but both pt's can have severe pain , urgencey and frequency on same scale? Vicky

                      I used to years ago hold 500cc in my 22 years somewhere now my uro does all that he can under a general anesthetic to get me to 175cc. I have not been over 200cc max for ten plus years now.

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                      • #26
                        When they say capacity under anesthesia, how can they really tell? I mean of course they fill the bladder, but are you saying that the bladder muscle will just let go when it reaches it's potential full and the urine will come out involuntarily? I would think this would be pretty unreliable since you are sedated for the hydro and everyone knows sedation messes with all the nerves, so how can they tell by that? My bladder capacity, I have no clue what it is. I never did a hydro, or at least not yet anyhow. I had a regular cysto and was told my bladder looked pretty awful, severe inflammation so the urogyne who did it said the cysto was enough to dx me. Besides , I cannot take pain meds or any meds due to side effects so I was not about to put myself through that and heaven forbid I ended up having extreme pain and could not take any meds for it.
                        As far as my capacity goes, I usually have the feel that I really gotta go and I will only get out about 7 to 8 ounces or occasionaly when I really hold it, and this means if I cannot get to a bathroom right away, I can get out 10 to 11 ounces which I believe is 330ml. I wonder if my bladder is starting to shrink due to all the chronic inflammation. How long does it take for a bladder to shrink when having IC?
                        Jen

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                        • #27
                          Re: bladder size versus bladder capacity

                          Hey Yvette, I realize this was about 10 years ago but I am just wondering how your bladder is today?
                          Thank You

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                          • #28
                            Re: bladder size versus bladder capacity

                            Trishann,
                            Has your bladder improved at all in the last 10 years?

                            Comment


                            • #29
                              Re: bladder size versus bladder capacity

                              Originally posted by run deana View Post
                              Trishann,
                              Has your bladder improved at all in the last 10 years?
                              My bladder has gotten much better. I have been on the Dextroamphetamine 5mg three times a day for the last 10 years. It still hurts when I have to go so, I do not wait. I can tell when the season change because it acts up, but nothing like it was before. I was dxed years ago with connective tissue disease with a very high ana.. My bladder got so much better that I was able to teach exercise class and lead a pretty normal life.
                              Meds on now:

                              dextro 10mg

                              5000mg Vitamin D- when tested, I was sooo low.
                              Compound Hormones- Had hysterectomy when 24, ovaries out 37

                              At night:


                              4mg Zanaflex- Fibro & PFD
                              plendil- Raynalds

                              I have Fibro, IC, IBS, PFD, Raynauds.

                              Tried:

                              Past Meds
                              Lexpro- changed to Cymbalta for better pain relief –off both
                              Ultram – three times a day. Helped , I was tired of always being so tired.
                              Elmiron-took for a year-
                              Topamax-Did not need anymore since on dextro.
                              Atarax- did not need anymore

                              Pictures: Hubby & Me, Ozzy, My three Sons!!
                              What a proud Mother I am!!



                              .

                              Comment

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