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  • Back Pain ?

    For those of you who get back pain as one of your IC symptoms where do you get the pain in your back at? I have been flaring a bit lately and boy do I get the low back pain. Just curious, I don't have the pain unless I have a flare. Thanks everyone.
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

  • #2
    Hi... I get low back pain too. It's WAAAYYY low down, at the base of my spine, just above my butt and along the top of my pelvis. I have it now, because I am flaring yet again
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      I live with low back pain.. I think I live in a flare too gggggrrrrr..... ok try this.... lay on your side either one, I perfer right side.. one side will feel better then the other keep the bottom leg straight and bend top leg at the knee (where else huh? lol) and bring towards your chest like your sitting no further, and hold for 5 sec, it releases some pain and stretches at the same time.. learned that in pt.. last week..
      Brat
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #4
        I had low nagging back pain all the time--phys ther told me to use a body pillow at night. I sleep with it between my legs (laying on my side) and wrap my arms around it. Must say, my back pain went away almost immediately.

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        • #5
          I had low nagging back pain all the time--phys ther told me to use a body pillow at night. I sleep with it between my legs (laying on my side) and wrap my arms around it. Must say, my back pain went away almost immediately.

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          • #6
            good point yorkie I too sleep with one
            BRat
            'The will of God will never take you where the Grace of God will not protect you.'

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            • #7
              Hi Brat, thanks for the advice re the low back pain, I am going to try the exercise you posted, and thanks gals for the body pillow, never thought of doing that. I know I have low back pain most of the time now, and did not until recently. Thanks a bunch for the hints, will try them. Thank you hugs,Iris. hi grouphug
              Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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              • #8
                Me too! Pillow between the legs. Flaring sometimes just makes the back ache, sometimes even my legs. *sigh* Kathi blah
                One Day At A Time
                Kathi

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                • #9
                  I use the pillow between my legs too but lately I haven't been able to lay on my side because the hips hurt too bad. I also lay on my back and put the pillow under my knees which takes the pressure off the low back too. I've had a really difficult time riding in the car for 45 min. to and from the dr. every day. I started reclining the seat and using a heating seat that plugs into the lighter. It has helped the car rides a bit but it still buts pressure on the low back.

                  I get pain in my low back and where my body sits on my legs which is the pelvic muscles. banghead The pain travels down the inside and outside of my legs when its bad. I too have gone to PT and have learned a lot of stretches and massages that help. Brat I've tried the one you describe and it really stretches out those muscles and releases tention. Another one that my therapist showed me last week was helpful too. Lie on your back and bend your knees and hug them. My therapist applys just a little bit of pressure, she says she's just barely touching the area, on my hip which releases the tension further in my hip area. I have shown my fiance how to do this to help me. There has been so much that I have learned from my therapist. I would reccomend everyone with pelvic floor, back, and hip tension should get a referral. I have more self-help tools that I can use for flares to help me manage the pain. I also use an excercise balance ball to sit on and it helps me do gentle stretching. I'm thinking of getting one to sit on at work.

                  Another type therapy that she does that helps is a gentle movement which is slow and controlled and doesn't hurt. It's different types of movement depending on the area but its called mya facial release. She put her hands under me on my tail bone and I breathed deeply and relaxed my body into her hands while she gently manipulated my pelvic area. I felt sooo much better when she finished! She has really been a god send and I'm really dissapointed that she's moving. I'll definitley be looking for another therapist that specializes in womens health. I hope some of this will help you.

                  Rachel hi

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                  • #10
                    i sometimes get my back pain in the very low part of my back and other times it is in my kidneys so it feels like. right now it is in my kidneys but i do have a bad uti and kidney infection i know how bad those low back pains can be i take my pain meds when this happens and use a heating pad. i dont know if this helps you are not but i hope so.
                    good luck and i hope you feel better soon sending you love and prayers. grouphug
                    Medicine taken daily or as needed:
                    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                    2. MS.Cotin 100mg 3x daily
                    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                    4. Fentanyl 100 mg Change every 48hrs.
                    5. Gentamicin 80mg install after each rescue treatment
                    5 Leviquin 500mg self start as needed.
                    6. Klonopin 1 or 2 daily as needed.
                    7. Prosed/DS as 1 every 6hrs as needed.





                    I have IC, but IC doesn't have me anymore!

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                    • #11
                      Therma care makes a self-heating product that is big enough to wrap around your back and it velcros in front. I use these when I'm really bad and I have to be out of the house. They stay warm all day. I sometimes have a stick on one on the inside front of my clothes and wrap one around my back. It's gotten me through the days when I had to work dispite my pain. I use a heating pad at home and I got a heat/masager mat for Christmas that I lay on in the recliner.

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                      • #12
                        I get low back pain too. Mine is usually worse on my right. That is where I get kidney infections. The heating pad really helps me. Hot baths help too. Good luck!
                        carly

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                        • #13
                          Thanks for some of the ideas to try. I use heat but that for the most part is all that I have tried. I usually sleep flat on my back, I am not comfortable for long on my sides. So I also have to make sure to flip our mattress every few months, that makes a difference too if my low back hurts. I know this flare right now is part stress. I always get stressed before Dr. appt.s and yesterday was the mammogram and tomorrow is my pap, so get me through that and hopefully my bladder will settle down.
                          Jolene

                          "Life is what happens when you are making other plans" John Lennon

                          IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                          Information for Patients can be found here.
                          http://www.ic-network.com/patientlinks.html


                          Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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