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  • Pressure/Bloating/Pain?

    This is the worst! Does anyone ever have bloating with severe pressure? The pressure is HEAVY and feels like something inside is pushing as hard as it can...like I am going to pop. Along with this is the back pain, urgency and sharp pains all at the same time.

    I've had this before (comes and goes...on a smaller scale), but never 3 days straight with no break. My body is sore and tender. It hurts to wear clothes or touch me. I am at work, in pain, very uncomfortable and it is making me crazy.

    I do not have an infection, I am strict about following the diet, I take Elmiron, Milk of Magnesia and drink tons of water.

    My question is: Does anyone know of anything to help this go away. Appreciate any suggestions.
    Thank you, Tilly
    Tilly

  • #2
    Tilly,
    Sorry I have nothing to offer. I was just going to say if this pain is something different or more servere, you should talk to your Dr. and let him decide what you should do.
    Sending healing hugs, grouphug
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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    • #3
      yes, I get that bloated/pressure feeling fairly often. Usually for me it lasts several hours, maybe a whole day, and then goes away until next time.

      I actually have it right now. This morning I had frequency/urgency. Then, about an hour ago I had a big bladder spasm (at least that's what I think it was) where there was this horrible tightening, clenching feeling right where my bladder is--it was really intense and painful. I tried to pee and couldn't produce much. And now thankfully that subsided, but I am sitting here with that annoying bloated/pressure feeling that you described perfectly.

      My bladder is mad that my uro cancelled it's appointment, I guess wink

      I have no idea how to make it go away.

      I hope yours goes away soon!! grouphug
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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      • #4
        Hmmmm, normally I would say it was probably something you ingested, but you said you watch your diet. I do know that the diet list is just a guide & that many of us have triggers that are not on the list. I would do a diary of what you eat , drink, meds, anything put into the mouth & see if you can track something down. Meanwhile I guess the heating pad/ice pack, water, etc that you normally do for a flare are your best bet.
        Hugs, Kathi grouphug
        One Day At A Time
        Kathi

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        • #5
          It sounds like bladder spasms --- you might talk to your doctor about taking a smooth muscle antispasmodic, such as hyoscyamine or urispas.

          Sending warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

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          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Can someone PLEASE tell me how to get rid of the bloat? I asked on the flare board but got very little replies and no one gave me an answer on how to do this.
            Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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            • #7
              Jess, I STILL haven't figured out how to get rid of my bloat. I think it's with me and plans to stay with me.

              banghead
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Thanks, Donna. I'd like to be able to fit into jeans on these days, but it just isn't happening. I was hoping there was some kind of trick. GRRRRRR. Thanks. frown
                Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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                • #9
                  Jess,
                  The best thing I have found for bloating is to drink A LOT of water, which is easier said than done when us IC's are having to pee all of the time! I don't know if this helped at all, but that's all I know to do. Good luck!
                  angel
                  "Give what you have. To someone else it may be better than you dare to think."
                  -Longfellow

                  History of IC, Vulvodynia, Endometriosis, Adenomyosis, Polycystic Ovaries, and Cyst's on my Spine.
                  Update as of 6/27/07- Endo, Adenomyosis & Polycystic Ovaries are gone because I had a Hysterectomy in May of 2005! Still battling IC and what was thought to be Vulvodynia, now thought to be PNE.
                  Meds: Paxil 40 for IC, Clonazepam 1 for Restless Leg Syndrome, Seroquel 100 for Bipolar, and pain pills as needed.

                  You can find more info on me here:
                  www.bellaperlina.etsy.com
                  www.bellaperlina.blogspot.com

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                  • #10
                    Bloating.... cussing
                    pain, pressure...... banghead

                    Mine came and went for a few months. I gues angel s all the water 8-10 glasses a day, valium for muscle spasms and azo standard (same as peridium,makes pee reddish/orange)and heat and ice.

                    Good luck to you, just know it will all go away. We're all different therefore our timelines are different too cussing

                    Please keep us posted, you're not alone grouphug

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                    • #11
                      I use the oxytrol patch and it helps me a lot with pressure, frequency, and urgency.

                      I struggle with this alot. I also take percocet sometimes and this really helps. I am usually able to function on the percocet (even at work) b/c I take a little dose (1/4 of a pill). Uro said that's o.k. to do.

                      I hope you find something that works for you soon. I can definitely empathize. It really drives me crazy sometimes.

                      Nicole

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                      • #12
                        ok heres another oldy I am bringing up, I seem like I am always bloated, and from what i am reading there is no end in sight sigh! I do drink lots of water, does keep me flushed well, probaly adds to my voiding, but better to be hyrdrated and peeing then dehyrdrated and still peeing!! But even with water no helps wit the bloat oh well guess just live it???
                        ............ ....take care...Sheryl

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