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  • Flares So Unpredictable

    What's hard about IC is wondering where and what caused some flare that seems to come out of nowhere. Today is like that for me. I'm hoping to get to a potluck Saturday night very much.
    Songbird
    If you keep a green bough in your heart
    the singing bird will come.
    http://www.obsidian-sun.com/

  • #2
    Hi Songbird,

    That is the toughest thing about IC, it's unpredictibility. I hope Saturday night goes well for you.

    Love,
    Jess
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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    • #3
      hugs song bird i hope sat goes well for you
      brat
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #4
        Hi Songbird, I know the feeling. Hope everything goes well for you at the potluck, hugs Iris.
        Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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        • #5
          I really understand... I am having the same experience right now! I hope you feel better and can get to the potluck! Hugs, Jen
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            I hope that you feel better for your evening out.
            alana.

            Peace, Love, Health, and Happiness!
            Alana

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            • #7
              I know what you mean. And then when we go to pot lucks, we have to be careful about what we eat. It sure can be frustrating.

              I always take a main dish that is IC safe, and usually an IC safe dessert too --- just to be sure there is something there I can eat.

              Gentle hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                I'm with Donna. My hubby is a Pastor so we do a lot of eating things that we don't know the content of!! Sorry for your flare.

                Pam
                Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
                _____________________________

                DX: IC - November 2002 after hysterectomy
                Interstim implanted March 2006 - died May 2011
                Interstim replacement June 2011
                Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
                Docs: Pain management doc, urologist, family practice

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                • #9
                  Hi Songbird,tryng to figure out what causes a flare leaves me always questioning what's in a dish .
                  Take care of yourself an d take some IC friendly food with you. Pears and sliced american cheese works for me if it is a none cooking day.

                  em
                  "I can be changed by what happens to me
                  But I refuse to be reduced by it" ~Maya Angelou

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                  • #10
                    I agree. I'm in a flare now, that came out of no where. I had been feeling pretty good. I'm questioning everything. I wonder if it has to do with a remodel job we are doing in the basement. The house is filled with dust, and I'm allergic to dust. Maybe the flares that come out of nowhere have nothing at all to do with food, but are caused by something in our enviroment. Who knows! Sometimes it all seems like a guessing game to me.
                    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."
                    Mary Anne Radmacher

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                    • #11
                      Thank you everyone for your caring and compassion and those in a flare now, I send warmth, prayers and good thoughts for gentle healing. It is so good to be here where others understand. You betcha, I'm bringing a salad where I know what's in it for sure. At the potluck they have to have an index card by each dish listing every ingredient.
                      Hugs,
                      Songbird
                      If you keep a green bough in your heart
                      the singing bird will come.
                      http://www.obsidian-sun.com/

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