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does anyone else have this?

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  • does anyone else have this?

    Sometimes I wake up in the morning, and I have almost no pain from IC. (that's a good feeling!) But, when I get up to go to the bathroom, it is AFTER I urinate that the pain begins. It's as if some action of the bladder necessary to urinate, or the urine running over the bladder neck and urethra, sets off the pain. Just wondering, trying to understand this crazy disease!

  • #2
    grouphug grouphug grouphug I sometimes get that feeling. You are not alone. I just hope you feel better soon. Please keep posting.
    Hang in there , There is hope.
    There is hope. Prayer works.

    Love, Debbie

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    • #3
      yes every morning after I void i go back to bed and lay there and wish the pain to go away banghead . This morning pain all just started for me about 6 months ago, it was once in a while now its always baby
      Brat
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #4
        I get it too. I always figure that it's from holding it for longer then usual. Hope you feel better soon. Kathi baby
        One Day At A Time
        Kathi

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        • #5
          I've never felt that before but just a thought could it be your pelvic muscles or something. Could the pain be coming from the contraction and relaxation of the muscles needed to urinate? Just a thought???

          Success

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          • #6
            I think it has alot to do with that during an 8 hour period during the day you go more than the 8 hour period you are sleeping. So because the urine sits in the bladder longer it causes so much pain. The first morning urine always seems to be the worst.


            Kelli
            IC Angel: Proudly supporting the Children and the Elderly with IC.


            E-Mail: [email protected]

            http://www.myspace.com/lilmiss200595


            Revelation 21:4
            "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

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            • #7
              I have this same thing too..only sometimes it happens during the day also. Not sure what to do about it, if anything.
              Currently taking Elmiron 3 times a day, Ditropan XL 10 mg, 1 time a day, Elavil 10 mg, 1 time a day.

              I also use a vaginal cream once a week and I follow an IC diet and use Prelief.

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              • #8
                Thank you everyone for your comments!

                This morning, I woke up without pain AND it didn't hurt when I urinated!! Of course I sat there trying to figure out what the difference was, if anything. Could have something to do with being 5 days out from my first DMSO treatment in a long time, and/or taking a Cipro before bed because I had intercourse which I had stopped doing a long time ago when my UAs were always negative for bacteria, or being off the Orthoevra patch for 5 days replacing it with Vivelle dot 0.1 mg so I don't dip so low estrogen-wise on my week off the OrthoEvra to have my period; who can say? Also I had been taking Vicodin as needed for about 10 days rather than resisting taking it, and perhaps that was enough to cause a break in the pain cycle.

                I wonder if the pain on urination is because some of us have a significant urethral involvement with our IC? Mine seems to rotate from bladder/urethra to just urethra. I'd take the "just urethra" any day if I had to choose.

                Anyway, thanks again for your comments!

                Diana.

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                • #9
                  Thank you everyone for your comments!

                  This morning, I woke up without pain AND it didn't hurt when I urinated!! Of course I sat there trying to figure out what the difference was, if anything. Could have something to do with being 5 days out from my first DMSO treatment in a long time, and/or taking a Cipro before bed because I had intercourse which I had stopped doing a long time ago when my UAs were always negative for bacteria, or being off the Orthoevra patch for 5 days replacing it with Vivelle dot 0.1 mg so I don't dip so low estrogen-wise on my week off the OrthoEvra to have my period; who can say? Also I had been taking Vicodin as needed for about 10 days rather than resisting taking it, and perhaps that was enough to cause a break in the pain cycle.

                  I wonder if the pain on urination is because some of us have a significant urethral involvement with our IC? Mine seems to rotate from bladder/urethra to just urethra. I'd take the "just urethra" any day if I had to choose.

                  Anyway, thanks again for your comments!

                  Diana.

                  Comment


                  • #10
                    YOu are not alone. I get that often too. Sometimes when I wake up at night my bladder hurts so bad and I go to the bathroom. When I finish it seems that my bladder hurts even worse. I have never figured this out. It also happens sometimes during the day after urinating.
                    Louise
                    West Virginia Interstitial Cystitis/Prostatitis Support Group Leader
                    [email protected]

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