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  • #1

    Spasms

    Hi all...I have a couple of posts on here but am really new. Ive suffered in agoney every single solitary day for MONTHS or even YEAR. I dont even know anymore its been so long. Some days worse than others BUT always with pain....pressure, like someone is standing on top of me and I dont mean a 20 pound kid. I mean MUCH LARGER. My cysto/hydro was Tues and came up DEFINATLEY with IC...my bladder is red...it bled during the hydr which they say is norm with IC...and my bladder is NOT emptying and also I am here and there having thse horrid spasms down my private area. Is this a part of that ...and why????? I also have a displaced bladder..and had a hysterectomy due to the symptoms (that were prob from IC not hysterectomy needed Im sure ) and they say cause of that my bladder is no longer supported as it once was... BUT we cannot go backwards now, just ahead. Anyhow, does a displaced bladder cause these nasty spasms....I fall to the floor with them!!!!! OR is it the IC??? Im not reading a lot about displaced bladders and bladders not emptying , they said i had 100 cc urine left upon emptying...and from 1- 4 the displaced bladder is a 1 so its NOT real bad but bad enough I suupose...Its displaced so something wrong with it is how I see it, LOL, esp...Im the one in sheer agony. HELP ME plz, any answers for me...I called dr just now again to see some help. Are the spasms a warning Im getting worse..and how worse can ALL this get
    Thanks
    Christine blink
    IC (diagnosed 2003)
    Fibromyalgia (sp?)
    Had Hysterectomy 2002 - Prior to be diagnosed with IC. Was thought to have had Adenomyosis and dr did hyster BUT after recovery th epain returned, hence after many tests diagnosed with IC.
    Suffer daily with pain but through it all my husband and 3 beautiful children, 11 year old son, 8 year old son and 4 year old daughter are all here for me. My 11 and 8 year old sons plan to grow up and become doctors and FIND a cure for IC!(Whether they do or not the fact they say that really makes this MOM proud!)

    I get as much support from my husband as he can possibly be able to give me. Its very hard on all of us, not just me with the pain. They watch me suffer every day and see me cry so often, along with taking so many meds..it all deeply affects them just the same!
    My best medicine is the love I get from my family and my friends Having a disease like this, or like THESE really makes you see who is TRULY your friend and/or your family. Those that are REALLY there for you through thick and thin (and believe me there are many many "thins" especially with my moodswings , with being down so often due to the amount of pain I experience everyday of my life...so Im extremely THANKFUL for those FEW "REAL" FRIENDS and those "SELECT" Family Members that are THERE just when I need them, and for NOT judging me or thinking of me as weak, I KNOW it is EXTREMELY hard on them to see me suffer this way, as well as seeing me taking so many prescription medications!)

    The hugs, the support and the sympathy is the best they all can give to me, and they do! That extra hug really goes a LONG way!!!
    Tags: None
  • #2
    I had surgery in November of last year to repair my pelvic floor, which is what holds the bladder where it's supposed to be. It's much easier for me to urinate now and I don't have urine left in there after I urinate (that's called residual). This surgery did NOT cure my IC, but it helped in many ways to make me feel better.

    Sending warm healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      Christine,
      I HAD THE SAME FEELING AFTER MY CYST/HYDRO!
      It is getting better! The pain is awful hope your feeling better soon!
      I used the therma care patches (love them)and my heating pad! Some people have suggested to me ice but I didnot try that yet ?
      kelly grouphug
      To the world you might be one person but to one person you might be the world..
      I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        oooh.... my retention has been worse after my cysto/hydro too, but like Kelly's, it's been slowly getting better as time passes. I attribute it to inflammation after the procedure.

        Mine got so bad that when I went for my DMSO instill, I couldn't pee to give a sample so they could check for infection! They had to cath me to help me pee first. TERRIBLE.

        Since then I've been better,tho...

        I hope yours improves too!!

        Jen
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          Hi Christine, I use to have the bladder spasms really bad also and they too would bring me to my knees. I don't know if you have tried them yet or not but the B&O supp. work great for the spasms and they don't mess with your head if taken properly.Maybe you can ask your Dr about them. They work wonders. Hope you feel better soon....Brea
          Friends are an important part of sharing the burden and worry of each day. Thank you for the gift of your friendship....Brea

          Comment

          • #6
            Brea,
            What is the B&O suppositories? I too have terrible spasms and would like to try something to help with that. In my situation, my urologist said that when there is even a small amount of urine in my bladder I start to have spasms. I have also found that after I urinate I have terrible spasms for quite awhile after urinating, the spasms and terrible burning pain. I use a heating pad daily for pain and spasms but when I am in a major "burning" flare I feel that an ice pack helps so much more. I cant stand to put heat on heat so to speak. My question is if you are in a major flare and having spasms would the ice make you kinda tense up and make the spasms worse? I havent talked to my urologist about this but have my family doctor and didnt get an answer. I have had IC since 1994 and it has definately been a part of my IC symptoms. I have bladder spasms alot. Please let me know Brea about the suppositories. I take enough meds already but if I can find something to take as needed for these spasms I would like to try it. Thanks, Susan:frown: :frown:

            Comment

            • #7
              B & O suppositories

              The B & O stand for belladonna and opium. These aren't usually prescribed until other things have been tried.

              There are also some oral medications that can help with spasms. Hyoscyamine and Urispas are two --- I have taken both and for me they are very effective. I keep hyoscyamine on hand.

              Warm healing thoughts,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment

              • #8
                Thanks so much Donna! I had been in the medical field for years and havent heard of that, the meds I have but not in a suppository. I would like to have it on hand to use when it seems like the spasms just wont quit. I have traveled down that long road of meds as we all have and at one time I was on Urispas but it was discontinued. I am not sure why but it may have been because it made me so tired and sleepy. I know that antispasmotics can do that. I will have to talk to my urologist about it because I do have some of the medicine left. I did talk to my family doctor about having some of it when we were talking about bad spasms and I told him that I thought that it took awhile for it to start working and he just said "no that wont work." I remember when I first started taking it was when I had my very first symptoms which were terrible and I would call and ask the urologist when the meds would start working. So I am not sure if you get immediate relief with it. I will talk to my urologist about this at the next visit. Thank you so much! Susan

                Comment

                • #9
                  I should have mentioned that it takes me two or three days for the hyoscyamine to really stop the spasms. I take the maximum dose until it calms down, then cut back to less.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment

                  • #10
                    Thank you Donna,
                    I was wondering if it was different than the Urispas. It takes a few days to kick in too.
                    Susan

                    Comment

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