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sorry tmi.. embarresed to ask but

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  • sorry tmi.. embarresed to ask but

    Clitoros Pain.. I feel a stabbing.. pinching pulling.. aching all out pain in that area.. started over 2 years ago.. I have had IC for 14 years now.. and I just can't deal with this pain.. what is this?
    Healing thoughts

    Bea

  • #2
    hi be.. first off never ever feel embarresed to ask anything. I told my gyn and my uro about this, I have only had this happen a few times, but that was too many. I do not have VV and no stds. They chalked it up as ic/pfd. They couldn't find anything wrong.
    I suggest you make an appt with your gyn.
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      Bea, I have that as well. There are days it is almost unbearable, at least before I had medicine and used ice packs/heating pads. My Ob/Gyn gave me a topical numbing ointment. I was just "officially" diagnosed with pelvic floor dysfunction (which I was told can cause vaginal and clitoral pain) and am looking for a PFD physical therapist to start treatment. You may want to get checked for some of the vaginal diseases common for icer's. I do not have those and thus know very little about them, but I am sure someone more knowledgeable will chime in here soon! (I think they are vistibular vaginitis;vulvadyna?)
      Hope you can get some relief soon!
      Rachel
      DX's:
      IC; PFD; possible Fibromyalgia; IBS;

      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

      I've Tried:
      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
      Currently using:
      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

      Comment


      • #4
        I actually was diagnosed almost a year ago with PFD.. my stupid insurance.. starts phys. therapy.. gives me four sessions and takes a month to approve another few.. so anytime the muscles start getting stretched a bit I go back to my old self.. I hate this.. I do notice if I take forget my valium the pain there is worse.. I just hate it, and wish there was something to get rid of it.. I heard it can be from PFD.. but I didnt think to this extreme.

        I also just saw my gyn and nothing else is wrong there.. ug... this really sucks...

        thanks ladies
        Healing thoughts

        Bea

        Comment


        • #5
          I had that happen to me as well Bea - usually when my bladder was seriously misbehaving, lol. I feel it's also due to the fact there are so many nerves in the vicinity, that it "spills" over from one area etc. I found that a cold pack really helped out a lot, made me a lot more comfortable when it was driving me crazy!! (I even used to use a frozen water bottle that I kept just in case it happend, then I'd slip it into an old sock so it wasn't so harsh)

          And like Tig said - never be embarrassed about asking anything around here! You'd be amazed at the things we've chatted about!
          Hugs,
          Tracey
          How do you eat an elephant? One bite at a time...

          Harry arrived 2/23/09!



          *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          IC Diet Cheat Sheet:
          http://www.ic-network.com/diet/2009icdietlist.pdf



          Dx's:
          IC dx'd Nov 2004
          Lymphocytic Colitis dx'd July 2005
          Possible IBS
          Current IC Meds
          Vistaril 25mg in the evening
          Previous IC Meds taken:
          Cystoprotek - 2 caps 2x's a day
          Elmiron, 100mg 3x's a day
          Ditropan, 5 mg 3x's a day
          Others:
          Wellbutrin 150mg 2x's a day for Anxiety/IBS
          Pepcid 40mg a day for GERD
          Zytrec for Nasal Allergies
          Align Probiotic daily for IBS

          Comment


          • #6
            I know it sounds totally stupid, but I suggest that you check with a physical therapist who is in a hospital based therapy clinic. When my husband needed physical therapy for his back, he first went to an independent therapy clinic and his insurance ran out of therapy benefits.

            Then he had surgery and needed more therapy so, thinking we would just have to bite the bullet and pay for it, we checked with a clinic near us, which just happens to be an outreach program for a local hospital. We were advised that because they are hospital-connected, our insurance would cover it totally. All our physician had to do was make the referral once.

            Donna
            Stay safe


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            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              no way..do not be embarrassed!! this is what we are all here for. I had the same thing. It turned out that from pfd my pudendal nerve (I think that is how you spell it) was inflamed and entrapped. My doc made me notice as well that when I was in pain I also tendeded to clench my upper leg muscles and pelvic muscles making it all worse. Soooo... I had PT and get homeopathic injections in the muscles both externally and internally. I am doing much better ever can wear jeans without a problem.
              :woohoo: Yogajo

              Comment


              • #8
                where did you receive these injections, and what type of pt did they do with you.. thank you in advace for all your help ladies
                Healing thoughts

                Bea

                Comment


                • #9
                  yogajo,
                  I clench those muscles as well... I hope I'll be able to find treatment that works as well as it did for you. I am so envious about the jeans...I broke down this week and put my jeans away and bought maternity jeans. The pain with "real" pants is just too much right now.
                  Rachel
                  DX's:
                  IC; PFD; possible Fibromyalgia; IBS;

                  Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                  I've Tried:
                  three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                  Currently using:
                  Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                  Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                  I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                  Comment


                  • #10
                    I am comfortable taking with my urogyn about anything. I figure if he hasn't heard it he needs to learn about it. But please don't be embarrassed to ask here.
                    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                    I post to encourage and offer total support for rescue instillations.
                    Find me on facebook: L. Clark Thomas
                    Louann

                    Comment


                    • #11
                      It happens to a lot of us. It is rather difficult to talk about though. I still havent gotten the guts to tell my GP, but he can't help me anyways, so why should I bother? I should really see a urogyn about this.

                      For me, it started along with my IC symptoms, both when I first got IC, and now (after my remission). So for me, I don't think it is PFD, because my body didn't have any reason to clench its pelvic floor muscles. Unless it was caused by stress. I suppose that's possible, but I think I would know if I was clenching my muscles.

                      I think the sensations are caused by residual pain from my bladder, travelling down south. It literally feels like my bladder has dropped and is pushing down on my vagina ALL THE TIME, it is so distracting. Sometimes my bladder feels really good, almost normal, but this never goes away.
                      Then once in a while I feel like a needle is going through my clitoris or vagina. It can be so bad it makes me ghasp, and nearly scream.

                      For some reason though, my clitoral pain gets worse right after I void. It is a terrible shooting pain like I have been kicked very hard in the crotch by a football player. Does anyone else have this happen? It really makes me not want to void, because it is equally as bad as the bladder pain.

                      ~*miz_sunshine87*~
                      19 y/o student, salesperson, fashionista, future high school teacher. <3 to sing and travel. Dream job= cruise ship entertainer
                      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                      My IC story- diagnosed at age 15 (Feb 2004), after approx. 6 mos of symptoms. Went into near complete remission following hydrodistention and introduction of meds. Feeling so good that I started skipping meds (bad idea). 1 week flare (May 2006). New flare November 2006-present.
                      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                      My triggers- I'm not sure about food triggers, just started IC diet but so far doesn't seem to be doing much. Stress is a big trigger for me though. Both flares this year came during stressful times. I think that stress reduction will help me immensely (last flare went AWAY during vacation in Mexico when I was drinking margaritas like they were water;P).
                      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                      Start of IC symptoms- Summer 2003 (after a UTI)
                      Dx- February 2004, after hydrodistension (ouch!)

                      Current treatments- Amytriptyline (25mg), Hydroxizine (25mg), MSM w/Glucosamine (1000mg,3x/day), quercetin (500mg, 2x/day), trying to stick to IC diet, prelief as needed.

                      Previous treatments- Amytriptyline (10mg), Hydroxizine (10mg), Alesse (HBC)

                      Comment


                      • #12
                        that is my biggest problem.i have spasms,burning and pain when i urinate,but my biggest problem is the STABBING pains i get really low in my belly,like you it takes my breath away sometimes.i hate it.

                        Comment


                        • #13
                          omg this is definitely how I feel.. like my bladder dropped and is sitting on my vagina.. and the stabbing shooting pains.. ugg..

                          and I know that I also Push to Pee.. this can not be making it any better.. do you girls do this as well

                          thanks so much for being here for me and being honest.. definitely appreciated
                          Healing thoughts

                          Bea

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