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Wish me luck...I'm seeing a new Uro tomorrow.

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  • Wish me luck...I'm seeing a new Uro tomorrow.

    Well, this flare just seems to be hanging on...and on...and on. So, I called and made an appointment with a urologist. My last urologist (a wonderful woman) left this past summer, so this is a new uro for me. He's a male and truth be told, I"ve not had good luck with male uros. Wish me luck!!!

    I'm afraid I may need it. When I was making the appointment I spoke to the nurse and explained that I had IC, explained my treatments and that I wanted to see the uro to talk about starting Elmiron. She asked me about my symptoms and replied...well that doesn't sound like IC. I had to explain that my symptoms are for the most part controlled through diet and meds...so it's not going to sound like IC, but if I didn't have meds and drank cranberry juice I wouldn't be able to leave the friggin toilet!

    Ugh...I folks I'm an educated person, I've had this for nearly four years and I know my body. I just need someone who is going to listen to me, trust me, and be willing to work with me.

    Seriously, wish me luck!
    mom_in_ma

  • #2
    Good luck! Let us know how it goes!

    Melinda

    Comment


    • #3
      Isn't it frustrating when other folks in the uro's office are kinda clueless about IC? I remember calling in once when I thought I had a UTI, said at the start that I had IC, and the nurse told me to make sure to drink lots of cranberry juice. I thought, "Well, actually, I'd like to feel BETTER not worse, thankyouverymuch!"

      Good luck with the new uro! Keep us posted!
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

      Comment


      • #4
        That really stinks when something like that happens with an office staff member. However, it's not necessarily a reflection of the uro in all cases... I know that my uro's office has a few rather clueless people who answer phones and take messages, but my uro himself is GREAT

        Let's hope that is the situation you find yourself in tomorrow.

        Good luck!!!!
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5
          I've only got a minute to post, but I have to say...yeah, I really like the new Uro! He was great. He listened to me...gave me some ideas but said I'm doing all the right things. He renewed one of my perscriptions for me. He also offered DMSO or Elmiron when and if I feel I need it. He said he listens to his patients...if they think they need a rescue instill or want to try a new med, he'll do it. He won't wait for the symptoms to reach a certain level, etc. Really, I've been blessed today.
          mom_in_ma

          Comment


          • #6
            WONDERFUL :woohoo:

            I am so glad he was a good guy!!!! That must make you feel better already, just knowing there is a doc on your side!
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              Great! It feels so good when you have trust and confidence in your doctor.
              Kim

              Diagnosed August 2001

              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

              *****************************

              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

              Comment


              • #8
                Sometimes I wonder if "Docs" know that their office help is diagnosing a condition that even most Docs don't really know how to diagnose or treat effectively.
                TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                I post to encourage and offer total support for rescue instillations.
                Find me on facebook: L. Clark Thomas
                Louann

                Comment

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