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  • Muscle and joint pain

    Does anyone have muscle and joint pain? It's not every day, but it is getting more frequent and more irritating. I've talked to my PCP about Fibro and arthritis (negative blood test for arth.) but we still don't know what is causing it.

    It was so bad last night I took a pain pill, which I don't like to do. My bed was shaking and my head was spinning all night from my psychadelic little pill. I held onto my husband so I wouldn't fall out of the bed. Hence, the reason I don't take them until I can no longer stand the pain.

    I am going to call the doctor on Monday, but I just wanted a little feedback before I call. I'm not sure how much he knows about IC. My Urogyn appt isn't until the end of the month.

    Any info would be greatly appreciated.

    THanks,
    KK
    Hopekeepers Support Group Leader

    Diagnosed IC 1/07/04
    Fibromyalgia, IBS, PFD, Urethral Instability, GERD, Chronic Unexplained Pelvic Pain for most of my life


    Remember, all is not lost as long as we keep our sense of humor!

  • #2
    Have you had a blood test to determine if your calcium, potassium, etc., are at a healthy level? If not, my suggestion would be to ask for one --- it's usually referred to as a chem screen.

    Donna
    Stay safe


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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

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    • #3
      Part of my steady health "decline" more like mudslide began with muscle and joint pain that led to diagnosis of non-ankyclosing spondylititis, fibromyalgia, and my doctor (fantastic doctor in Athens, Georgia) explained that most of my lifelong problems with my immune system - catching everything, my eyesight problems, my acid reflux, my hiatial hernia, my IBS, my painful periods, endometriosis, and of course all of the bladder trouble and now IC diagnosis all fit together...
      it is sad but true she said that most women will not suffer from one of the above but that they are most always linked together and are all due to autoimmunal deficiencies
      one important question... have you ever had mono? if the answer is yes... then from my research and experience you most like have the link diseases along with IC.
      try to see an internal medicine specialist to help you!
      Prayerfully,
      GL
      Faith is not believing God can; Faith is believing God will!

      Comment


      • #4
        Yes, I have had a full panel of blood tests, and Yes I have had mono. I already have IBS and some unexplained pelvic pain that doesn't seem to fit into any of the usual categories, so I figured it was the "IC system breakdown" that I've heard about.

        I am only 36 and still working 25 hours a week. I refuse to believe that my body is breaking down already.

        THis is the worst my legs have felt in a long time. The Ibuprofen (800mg) is making my reflux worse so I may try Aleve.

        THanks for the info
        KK
        Hopekeepers Support Group Leader

        Diagnosed IC 1/07/04
        Fibromyalgia, IBS, PFD, Urethral Instability, GERD, Chronic Unexplained Pelvic Pain for most of my life


        Remember, all is not lost as long as we keep our sense of humor!

        Comment


        • #5
          Yes, mine started just on and off and then it was all the time to where I had to take tylenol just to survive. I started taking the cystoprotek and that has helped a lot. I still get that joint muscle pain once in a while still but not as often.

          Comment


          • #6
            What is the psychadelic little pill? I don't take pain meds either because of the side effects. I seem to have a chemical intolerance and feel horrible long after I take the pills.
            I too suffer with muscle and joint pain and have been diagnosed with fibromylagia as well as lot of the other conditions mentioned above that fall under the same umbrella. Hang in there. Speak with your doctor so that you can address all of your concerns. The key is finding a doctor that is on board with you.
            Mel


            IC, PFD, IBS, Allergies, Chronic Migraines, CVID, Fibromyalgia, CFS, Numerous Laporoscopies for Endometriosis and Adhesions, Hysterectomy 2002

            Comment


            • #7
              KK,
              I have the joint and muscle pain as well, and late last year I started thinking I had fibro. My uro set me up with an orthopaedic doc that specializes in fibro, and sure enough, she diagnosed me with it in January. She prescribed lidoderm patches, which is basically lidocaine in a patch that you can stick right on the spot that hurts and it puts lidocaine into the painful area.

              I hope that you can get a diagnosis soon and start getting some relief from your symptoms.

              Claudia

              ~Claudia

              "A heart is not judged by how much you love; but by how much you are loved by others."
              ~ The Wizard of Oz

              "If I ever go looking for my heart's desire again, I won't look any further than my own
              back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


              Comment


              • #8
                For my fibromyalgia, I use lidocaine (Lidoderm) patches as well, and I take the muscle relaxant Zanaflex at night to relieve the tightening, aching feeling. (I can't usually take it in the day since that makes me so sleepy.)

                I also find that sitting in in our hot tub works well when I'm able, but I won't be able to do that for a while since I'm waiting for a surgery to heal at the moment.
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  Hi! I have severe leg and arm aching joint pain after I have a flare from IC. It has happened after every flare for the past 20+ years. My Uro. who specializes in I.C. says that the after flare aching is part of IC. I take Advil for the pain because I can't take anything stronger because of my Barrett's Esophagus. I truly believe that IC encompasses lots of other problems in the body.....I hope one day scientists get it figured out!

                  Double Spinal Cord Stimulator surgery 8/09
                  Unsuccessful MiniArc sling surgery 12/07
                  Dx'd Hypothyroid
                  Dx'd Chronic Axonal Neuropathy & Myopathy
                  June 2007
                  Dx'd IC May 2006 (after suffering for 25+ yrs!)
                  First Cysto 1979
                  First Hydro 1981 (Many treatments since then!)
                  Collagin"Durasphere" injections for urethra
                  Gall bladder surgery Aug. 2004
                  Gastric Bypass Dec. 2004
                  Dx'd: Barrett's Esphogus July 2004
                  Dx'd: Vaginal Atrophy 2005
                  Bladder surgery 2000
                  Dx'd: IBS 2000
                  Hysterectomy (fibroids) 1999
                  Laminectomy 1989
                  Dx'd: Degerative Disk Disorder 1989

                  For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                  I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                  Comment


                  • #10
                    This is interesting ... last year (I was diagnosed with IC 2 years ago - had endo, allergies, asthma...) I started getting chest pain that they say is either pluresy or costalchondritis (inflamation around teh lunchs and the ribs) and it comes back often. I can't take any oral anti-inflamatories because they mnake me throw up so I just got out of teh hospital for 6 days where they gave me steroids and torodol and fenergan along with all sorts of other stuff to get the swelling to go down, me to stop throwing up (the chest pressure makes me nauseated too). I don't know if this is related to my IC, but it is weird and annoying.

                    ali
                    " If I really cared as I thought I did, about the sorrows of the world, I should not have been so overwhelmed when my own sorrow came." ~ CS Lewis

                    Comment


                    • #11
                      Hi Jen,
                      I didn't know you had surgery. I hope you are well along in the healing path and that you feel better soon.
                      Mel


                      IC, PFD, IBS, Allergies, Chronic Migraines, CVID, Fibromyalgia, CFS, Numerous Laporoscopies for Endometriosis and Adhesions, Hysterectomy 2002

                      Comment


                      • #12
                        I have Lidocaine patches! I never thought to use them! How stupid of me. I am going to start using them.

                        My little psychadelic pill was Tramadol. I took it because I thought it would have less side effects than the Hydrocodone I was wrong. I am going to try the other tonight and see how it goes.

                        We got another 4 inches of snow today. This isn't helping me. I hope that it warms up soon and that this all goes away then. Am I crazy for hoping that?

                        I will call the dr. first thing tomorrow and let him know what's been going on.

                        Thanks so much for all of your insight.

                        KK
                        Hopekeepers Support Group Leader

                        Diagnosed IC 1/07/04
                        Fibromyalgia, IBS, PFD, Urethral Instability, GERD, Chronic Unexplained Pelvic Pain for most of my life


                        Remember, all is not lost as long as we keep our sense of humor!

                        Comment


                        • #13
                          oh yes, and what the worst part is when my feet hurt.. I take flexeril and vicodine. I have Fibro, myofascial pain syndrom, and brutitis.

                          It sounds like maybe your pain pill is too strong, can't you get something different? I wouldn't want to take them either if it made me feel like that.
                          'The will of God will never take you where the Grace of God will not protect you.'

                          Comment


                          • #14
                            Have you tried Skelaxin?

                            Hi Everyone,
                            I have alot of leg pain, knee pain, hip and joint pain and terrible pelvic pain along with low back pain. My doctor just put me on Skelaxin 800 mg every eight hours and I have been on it now going on three weeks and it has been working wonderful. Skelaxin is a skeletal muscle relaxant he put me on it for severe pelvic pain but also has helped low back and legs and knees. I had a small bit of nausea on the first two days but it past and I have not had anymore but I am the nausea queen. I will start pelvic physcial therapy on feb. 28th to help with pelvic pain. I have found the pelvic pain brings on the leg, knee and low back pain so I am hoping this is going to help too. Hope this could help someone.
                            Love,

                            Broken_Smile

                            Comment


                            • #15
                              Isn't Tramadol the generic for Ultram? I used to take half of an Ultracet, which is the same thing with tylenol. If I took half a pill it would take the edge off by making me a little buzzed.......but if I dared to take a second dose a few hours later I would be zonked! I would feel weird, dizzy, light headed for about 2 days so I decided to throw them out!
                              I noticed that happening with percocet too so..........in the trash they went too! I guess I have become less tolerant to meds.
                              My uro gave me Soma, which I think is along the same lines as Skelaxin, for PFD a few months ago and I started by taking a quarter of a pill and did ok so I now take half at night and it seems to relax me enough to sleep through the night and not wake up with any ill effects. If I need to take one during the day it makes me a little relaxed but at least I don't get the "drug over" that I did with those other meds. The soma has also been helping with my fibro, back and leg pain too. I guess it's keeping all the muslces relaxed.
                              Now if I could find something for my irritable bowel, which has been horrible lately I'ld be ecstatic! Anyone have any ideas. My gastro guy gave me Pamine Forte which gave me terrible urinary retention.......what a nightmare that was.
                              Mel


                              IC, PFD, IBS, Allergies, Chronic Migraines, CVID, Fibromyalgia, CFS, Numerous Laporoscopies for Endometriosis and Adhesions, Hysterectomy 2002

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