Muscle and joint pain

[PenguinK]

Does anyone have muscle and joint pain? It's not every day, but it is getting more frequent and more irritating. I've talked to my PCP about Fibro and arthritis (negative blood test for arth.) but we still don't know what is causing it.

It was so bad last night I took a pain pill, which I don't like to do. My bed was shaking and my head was spinning all night from my psychadelic little pill. I held onto my husband so I wouldn't fall out of the bed. Hence, the reason I don't take them until I can no longer stand the pain.

I am going to call the doctor on Monday, but I just wanted a little feedback before I call. I'm not sure how much he knows about IC. My Urogyn appt isn't until the end of the month.

Any info would be greatly appreciated.

THanks,
KK

[ICNDonna]

Have you had a blood test to determine if your calcium, potassium, etc., are at a healthy level? If not, my suggestion would be to ask for one --- it's usually referred to as a chem screen.

Donna

[Georgia L]

Part of my steady health "decline" more like mudslide began with muscle and joint pain that led to diagnosis of non-ankyclosing spondylititis, fibromyalgia, and my doctor (fantastic doctor in Athens, Georgia) explained that most of my lifelong problems with my immune system - catching everything, my eyesight problems, my acid reflux, my hiatial hernia, my IBS, my painful periods, endometriosis, and of course all of the bladder trouble and now IC diagnosis all fit together...
it is sad but true she said that most women will not suffer from one of the above but that they are most always linked together and are all due to autoimmunal deficiencies
one important question... have you ever had mono? if the answer is yes... then from my research and experience you most like have the link diseases along with IC.
try to see an internal medicine specialist to help you!
Prayerfully,
GL

[PenguinK]

Yes, I have had a full panel of blood tests, and Yes I have had mono. I already have IBS and some unexplained pelvic pain that doesn't seem to fit into any of the usual categories, so I figured it was the "IC system breakdown" that I've heard about.

I am only 36 and still working 25 hours a week. I refuse to believe that my body is breaking down already.

THis is the worst my legs have felt in a long time. The Ibuprofen (800mg) is making my reflux worse so I may try Aleve.

THanks for the info
KK

[waterflow]

Yes, mine started just on and off and then it was all the time to where I had to take tylenol just to survive. I started taking the cystoprotek and that has helped a lot. I still get that joint muscle pain once in a while still but not as often.

[mela414]

What is the psychadelic little pill? I don't take pain meds either because of the side effects. I seem to have a chemical intolerance and feel horrible long after I take the pills.
I too suffer with muscle and joint pain and have been diagnosed with fibromylagia as well as lot of the other conditions mentioned above that fall under the same umbrella. Hang in there. Speak with your doctor so that you can address all of your concerns. The key is finding a doctor that is on board with you.

[topcop229]

KK,
I have the joint and muscle pain as well, and late last year I started thinking I had fibro. My uro set me up with an orthopaedic doc that specializes in fibro, and sure enough, she diagnosed me with it in January. She prescribed lidoderm patches, which is basically lidocaine in a patch that you can stick right on the spot that hurts and it puts lidocaine into the painful area.

I hope that you can get a diagnosis soon and start getting some relief from your symptoms.

Claudia

[Sarojini]

For my fibromyalgia, I use lidocaine (Lidoderm) patches as well, and I take the muscle relaxant Zanaflex at night to relieve the tightening, aching feeling. (I can't usually take it in the day since that makes me so sleepy.)

I also find that sitting in in our hot tub works well when I'm able, but I won't be able to do that for a while since I'm waiting for a surgery to heal at the moment.

[Roxie2007]

Hi! I have severe leg and arm aching joint pain after I have a flare from IC. It has happened after every flare for the past 20+ years. My Uro. who specializes in I.C. says that the after flare aching is part of IC. I take Advil for the pain because I can't take anything stronger because of my Barrett's Esophagus. I truly believe that IC encompasses lots of other problems in the body.....I hope one day scientists get it figured out!

[alianne]

This is interesting ... last year (I was diagnosed with IC 2 years ago - had endo, allergies, asthma...) I started getting chest pain that they say is either pluresy or costalchondritis (inflamation around teh lunchs and the ribs) and it comes back often. I can't take any oral anti-inflamatories because they mnake me throw up so I just got out of teh hospital for 6 days where they gave me steroids and torodol and fenergan along with all sorts of other stuff to get the swelling to go down, me to stop throwing up (the chest pressure makes me nauseated too). I don't know if this is related to my IC, but it is weird and annoying.

ali

[mela414]

Hi Jen,
I didn't know you had surgery. I hope you are well along in the healing path and that you feel better soon.

[PenguinK]

I have Lidocaine patches! I never thought to use them! How stupid of me. I am going to start using them.

My little psychadelic pill was Tramadol. I took it because I thought it would have less side effects than the Hydrocodone I was wrong. I am going to try the other tonight and see how it goes.

We got another 4 inches of snow today. This isn't helping me. I hope that it warms up soon and that this all goes away then. Am I crazy for hoping that?

I will call the dr. first thing tomorrow and let him know what's been going on.

Thanks so much for all of your insight.

KK

[tigger_gal]

oh yes, and what the worst part is when my feet hurt.. I take flexeril and vicodine. I have Fibro, myofascial pain syndrom, and brutitis.

It sounds like maybe your pain pill is too strong, can't you get something different? I wouldn't want to take them either if it made me feel like that.

[broken_smile]

Have you tried Skelaxin?

Hi Everyone,
I have alot of leg pain, knee pain, hip and joint pain and terrible pelvic pain along with low back pain. My doctor just put me on Skelaxin 800 mg every eight hours and I have been on it now going on three weeks and it has been working wonderful. Skelaxin is a skeletal muscle relaxant he put me on it for severe pelvic pain but also has helped low back and legs and knees. I had a small bit of nausea on the first two days but it past and I have not had anymore but I am the nausea queen. I will start pelvic physcial therapy on feb. 28th to help with pelvic pain. I have found the pelvic pain brings on the leg, knee and low back pain so I am hoping this is going to help too. Hope this could help someone.
Love,

Broken_Smile

[mela414]

Isn't Tramadol the generic for Ultram? I used to take half of an Ultracet, which is the same thing with tylenol. If I took half a pill it would take the edge off by making me a little buzzed.......but if I dared to take a second dose a few hours later I would be zonked! I would feel weird, dizzy, light headed for about 2 days so I decided to throw them out!
I noticed that happening with percocet too so..........in the trash they went too! I guess I have become less tolerant to meds.
My uro gave me Soma, which I think is along the same lines as Skelaxin, for PFD a few months ago and I started by taking a quarter of a pill and did ok so I now take half at night and it seems to relax me enough to sleep through the night and not wake up with any ill effects. If I need to take one during the day it makes me a little relaxed but at least I don't get the "drug over" that I did with those other meds. The soma has also been helping with my fibro, back and leg pain too. I guess it's keeping all the muslces relaxed.
Now if I could find something for my irritable bowel, which has been horrible lately I'ld be ecstatic! Anyone have any ideas. My gastro guy gave me Pamine Forte which gave me terrible urinary retention.......what a nightmare that was.