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  • mela414
    replied
    Eccles, I am gald that it helped you. I tried it several years ago and it did nothing.

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  • Eccles
    replied
    There's a fairly cheap fibromyalgia treatment you could consider that doesn't need a doctor's supervision called the 'Guaifenesin protocol'. After 20 years of fibro it's the only thing that's helping me, although it takes a lot of determination. Details are on www.fibromyalgiatreatment.com

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  • mela414
    replied
    Hi Cosette,

    I too was helped by HRT. I use a low dose estrogen patch but still feel that I need the testosterone. I went to an alternative dr who had me try a testoterone cream to rub in but I really haven't noticed any help from it.
    I was thinking of discussing taking a pill. Most drs hate to prescribe that. How do you take the testosterone? I know there is also some type of tiny metal implant that is put right under your skin on your arm.

    I also tried a progesterone cream but it made me sick and gave me stomach pain so we eliminated it. It wasn't that much of an issue due having a hysterectomy.

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  • cosette
    replied
    All-
    One of the most dramatic changes for me has been hormone therapy...after 6 years on the same pill, I am now off and using a small dose of hormone therapy. I amseeing a very good specialist. That was a month ago...my join pain and aches that had plagued me for a year are now completely GONE. I had a major estrogen and testosterone deficiency...but I am SO much better now.
    Some docs refuse to believe hormonal issues can happen to young women- after all, I'm only 30. But I had major achingin my body- getting of the pill and HRT have helped me so much.
    I still struggle with urgenc/frequency, but my nocturia and pelvic pain are a thing of the past. And sleep is back!

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  • mela414
    replied
    Hi kk,
    I took neurontin about 5 years ago for fibro and I think it helped although I don't remember if it actually helpd my IC enough to make a difference. I had to slowly increase to 300 mg. I tolerated it well. The night dose would make me sleepy. My morning dose stayed at 100 mg. There came a time that I decided to go natural and stopped all meds. A few years later when things got bad again my dr put me on it but I coulfn't tolerate it. It made me dizzy and weird for the entire day and then some. The side effects were just too much to handle so I had to stop. I guess my body changed. I tried a low dose of Lyrica and although I didn't have those horrific side effects I decided to stop it til I pinpoint where the flare came from. Who knows, you may be able to tolerate the neurontin at a low dose. Build up gradually. Just because you reacted to the Lyrica doesn't mean that you will react to the neurontin.
    Good luck with whatever you decide.

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  • PenguinK
    replied
    I went to a Rhumetologist on Monday. He listened to my history and symptoms, did a trigger point test, (OUCH!) and said "here's some Neurontin. See you in 3 months."

    I actually had to ask "what do you think it is?" before he said "You have fibromyalgia." That was it. Keep exercising and doing yoga and take these pills. Did I mention that I told him I had a horrible reaction to Lyrica, the same as Neurontin. I'm not taking them. I don't know what I'm going to do. I will be looking for a new doctor, though.
    KK

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  • mela414
    replied
    I started a low dose of Lyrica 2 days ago and I think it is making my flare worse! Has anyone ese experienced this? .............I'm going crazy trying to figure out what is going on!

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  • Big Red
    replied
    I have been having pain in the muscles from head to toe. I told my doc but he just over looked it. I think I am going to have to mention it again. Normally I would take 600mg of motrin that he gave me for IC pain. but I have on the waiting list for a hydro. and don't want to get bumped because I took it. Today I tood extra strength tylenol and that took the edge off. Didn't really know others felt this way to. Hope you all feel better soon.

    Leave a comment:


  • topcop229
    replied
    KK,
    I spoke to my uro a few days ago about switching from Lyrica to something else for my fibro because I don't like some of the side effects, and he said the only other option is neurontin, but those side effects are worse!! So, I am going to just drop the Lyrica altogether and just hope that I don't feel worse.

    I guess you could have something other than fibro, but I was diagnosed on fatigue, aches, and the tender points test.

    Good luck!

    Good luck finding a good med combination.

    Leave a comment:


  • Berkshire Road
    replied
    Originally posted by PenguinK
    We got another 4 inches of snow today. This isn't helping me. I hope that it warms up soon and that this all goes away then. Am I crazy for hoping that?KK
    NO, I do not think you are crazy for thinking that. For one thing, low pressure has been shown to have an effect on people with joint problems. For another thing, there's growing evidence that a lot of people who have RA, fibro, or other joint pain diagnoses, are very low in Vitamin D. So, in the summer, when the sun is shining, we absorb a lot of our Vitamin D from the sun; in the winter, we obviously get much less. My mom has RA and her doctor has her on megadoses of Vitamin D, but my doctor says it's safe for anyone to supplement up to 400 mm/day. There's a nice calcium/D/Aloe supplement from Desert Harvest that is available on the ICN shop site, I think. You could try it and see if it helps at all. My mother is also unable to tolerate her tramadol, so she really suffers. I feel for you.

    Leave a comment:


  • PenguinK
    replied
    Well, I went to the rhumetologist on Monday. He said I have fibromyalgia and gave me a script for Neurontin. I read the side effects and decided it was too much like Lyrica (I had a horrible experience from it) and I don't want to take it.
    I want to try other options first. The physical therapist that I work for doesn't understand how he concluded that I have fibro just from my history and the trigger points. Could it be something else???? I'm so confused! I was happy to have a name put to the constant aching so that I could move forward on to easing the pain. I think my boss just doesn't understand fibro.

    I took home a "survival guide" for fibro and myofascial pain that we had at work. I want to read it and see what can be done before resorting to daily pain meds. I don't mind taking something when it's really flaring up, but I don't want to be on something daily that will make me fat, groggy and forgetful like the last one.

    Any help would be great!
    Thanks,
    KK

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  • PenguinK
    replied
    Thanks for all the input.
    I think Tamaral is Ultram. I don't think I'll be taking another of those. Last night I took a flexiril and it seemed to help a little to relax the muscles. I used to be on Lyrica for pain, but it made me horribly stoned and I gained over 20 pounds in a few short months. I couldn't think clearly. I didn't like that.
    I called my PCP, who referred me to a Rhumetologist. I couldn't get an appointment until March 29! The receptionist said to call back a few times a week to see if there were any cancellations earlier. I'll do that.

    I see my new Urogynecologist on Tuesday, Feb. 27, so maybe I can get some explainations there also.

    Luckily, I work for a physical therapist, so he will try some things to relieve the pain before I leave work today. I hope it helps.
    KK

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  • mela414
    replied
    Isn't Tramadol the generic for Ultram? I used to take half of an Ultracet, which is the same thing with tylenol. If I took half a pill it would take the edge off by making me a little buzzed.......but if I dared to take a second dose a few hours later I would be zonked! I would feel weird, dizzy, light headed for about 2 days so I decided to throw them out!
    I noticed that happening with percocet too so..........in the trash they went too! I guess I have become less tolerant to meds.
    My uro gave me Soma, which I think is along the same lines as Skelaxin, for PFD a few months ago and I started by taking a quarter of a pill and did ok so I now take half at night and it seems to relax me enough to sleep through the night and not wake up with any ill effects. If I need to take one during the day it makes me a little relaxed but at least I don't get the "drug over" that I did with those other meds. The soma has also been helping with my fibro, back and leg pain too. I guess it's keeping all the muslces relaxed.
    Now if I could find something for my irritable bowel, which has been horrible lately I'ld be ecstatic! Anyone have any ideas. My gastro guy gave me Pamine Forte which gave me terrible urinary retention.......what a nightmare that was.

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  • broken_smile
    replied
    Have you tried Skelaxin?

    Hi Everyone,
    I have alot of leg pain, knee pain, hip and joint pain and terrible pelvic pain along with low back pain. My doctor just put me on Skelaxin 800 mg every eight hours and I have been on it now going on three weeks and it has been working wonderful. Skelaxin is a skeletal muscle relaxant he put me on it for severe pelvic pain but also has helped low back and legs and knees. I had a small bit of nausea on the first two days but it past and I have not had anymore but I am the nausea queen. I will start pelvic physcial therapy on feb. 28th to help with pelvic pain. I have found the pelvic pain brings on the leg, knee and low back pain so I am hoping this is going to help too. Hope this could help someone.
    Love,

    Broken_Smile

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  • tigger_gal
    replied
    oh yes, and what the worst part is when my feet hurt.. I take flexeril and vicodine. I have Fibro, myofascial pain syndrom, and brutitis.

    It sounds like maybe your pain pill is too strong, can't you get something different? I wouldn't want to take them either if it made me feel like that.

    Leave a comment:

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