Tweet
Maybe because I'm newly diagnosed, but I've never seen an article in a magazine about IC! It is in the April edition of WOMAN'S DAY. It is a woman's story, but also talks about IC and how "rare" it is. I didn't think it was THAT RARE! Thank you.
-
Last edited by ICNDonna; 03-01-2007, 01:20 AM. -
Yeah, I saw the article too, and posted about it a few day ago. Though I hate that they said it was rare, I was thrilled to see an article about IC in a mainstream magazine. You know what they say, "Any publicity's good publicity!" So, I am glad we are getting some coverage! -
Originally posted by ihurttoo
Oh, I'm sorry to put up a post if you already did! I didn't see it anywhere. Thank you!Comment
-
smcclafferty
you will learn so much here.. I can't wait to go and read the artical.. maybe I can find it on line Thank you so much for the great information.
'The will of God will never take you where the Grace of God will not protect you.'
Comment
-
Oh, no! I didnt mean it like that!
I am glad you saw it too and also posted about it. The more people that see it, the better!! Hugs, Amy
Comment
-
To be honest with you I don't think it is all that rare. I think nobody could figure out what was happening to us and now doors are being open. And I thank God for Jill for opening this website and all the people who volunteer their time to help us through the hard times.
Hugs, TrishannComment
-
Im with you trishann.. I dont think its rare either, I think just most doctors treat it as something else...
Oh an Smcc thank you for the info..I am going to go buy mine today!Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Comment
-
At the time I was diagnosed thirty two years ago it was considered rare. For that reason, testing was also rare and few cases were actually diagnosed. It's still not a widespread disease, but definitely isn't what I would refer to as "rare." There have been a few articles in some magazines, but not a lot.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
While I agree that publicity about IC is great saying that it is a rare disease is not really helpful. Personally I didn't think the article was informative at all.Comment
-
I agree it wasn't very informative, I just was shocked to see an article on it...Originally posted by HGCComment
-
I get womans day magazine and don't think an April edition is out yet. Could you please tell me what edition it was in.
Thanks, NancyComment
-
Woman's Day, April 1, 2007. I have a subscription, so I usually get it before it is out on the market.Comment
-
smc
that was a quick response. I have a subscription too. Did you just get it in the mail? What does the cover look like?
thanks,
nancyComment
-
The cover is purple, and it has a bunch of chocolate browines and stuff on the cover...mmmm, wish I could have one...Comment
-
Ok I have a subscripton but still haven't received it in the mail! But I went out and bought it. I was a good article but there could of been more info on diet. I was a little upset that her diagnosis was so fast (Great for her) BUT not much on how long it can take for some to get the proper diagnosis.mom to 3 wonderful kids
IC symptoms 7/03,
hysterectomy 11/04,
prolapse cervix 7/07
diagnosed: IC 2007
IBS 2008Comment
Comment