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I wonder if tampons could be related to IC?

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  • I wonder if tampons could be related to IC?

    I was just sitting here thinking I wonder if there is a link?

  • #2
    It seems like everyone have their only opinion about IC but I also wonder about the tampons, but the thing is men also get IC. But I still think tampons can maybe cause injuries that can cause a problem. I wonder how many of us did use tampons. To me, that is a question to really think about.

    Hugs, Trishann


    • #3
      I've tried to use tampons and could never do it. Within five minutes of using one, I'd be in extreme pain. My stomach would get really queasy and I'd feel faint-horrible feeling!


      • #4
        I've read they can encourage infections by introducing bacteria. My friend's Dr. always told her to avoid them and I thought she was crazy but I later read that they can be problematic.


        • #5
          I never used tampons.. They always hurt to bad when I would try..So I just used the pads..

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

          Link to Patient Handbook:

          Diet Reference Sheet:

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


          • #6
            I never used them. Have never even tried them, but I still have IC.
            God grant me the serinity to withstand the days ahead!!!

            My myspace link...


            In Memory of My Father (Lawerence) 1/25/2007

            Interstim Sept 2001
            1st InterStim Removal May 2005
            2nd Interstim Implanted May 2005
            2nd InterStim Removed March 2007
            Hysterectomy 1999
            Tubes Tied 1997
            C-Section 1996

            Me and my kids

            Taylor (my daughter) Me and my daughter My son Cody and Taylor


            • #7
              I started being unable to use them when I became symptomatic. I used them for years before that. But within five minutes of applying one I'd being removing it frantically! I never knew why but now it all makes sense.


              • #8
                never used them never tried either.

                In my 6th grade health class we were told that you can get toxic shock syndrome from them and it killed a woman, ever since that day I had no desire to try them. It was bad enough dealing with the newness of a period let alone have to worry about when to take out a tampon.

                Im glad to see im not the only one that hasnt used them, a gyno i went to see recently kind of made fun of me for not trying them.

                Im sure like anything it could have contributed to IC for some.

                Lyme disease diagnosed 11/05
                vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
                IC diagnosed with hydro/cysto- may 17, 2006

                Over growth of lactobicilli found 8/07 treating with doxy.

                Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

                8/22/07- was able to get my first speculum exam, with pap

                Strep D found in bladder with United medical labs May 2006
                2 strains of strep in stool culture 9/06
                high Strep ASO titre found 10/06

                NEW MED

                Capsasin cream-once a day for 20min,
                BUt wont lie it does burn

                About to start valium supositories for PFD

                Trigger point injections- oct 07

                Current meds:
                Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
                Zanaflex 2mg
                IC and low oxalate diet, no sugar diet
                Xanax for appointments to help relax me since they cause so much pain

                Started PT 3/07, PT has really helped me in ways I never knew that it would

                Meds ive tried
                Soma- can barely tolerate half a pill
                Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
                Estradiol cream
                Urelle- caused worse bladder spasm and retention

                Various antibiotics for lyme which caused yeast and made the IC and VV worse

                waiting for the next chronic illness to pop up

                "Did you know?
                Every 15 seconds,
                a person is
                diagnosed with
                interstitial cystitis."
                Source: J. Dimitrakov, MD


                • #9
                  hummmm. thanks. wonder if its possible if a chemical used in making them or other products could activate something and possibly carry it somehow one of many things I guess we can ponder on.


                  • #10
                    I did use them in my younger age but I think like most of us now, it is almost impossible because of the pain issue. It seems like alot of things can irritate you if you have IC but it is not the main cause. I try to stay away from things that will bring more pain. I think that is the best thing we can do for ourselves for now.

                    Hugs, Trishann


                    • #11
                      The last time I had a period, which was Dec or something I think I used them but my symptoms were not as bad as they are now. I have no idea if I would be able to use one now. I'll have to check w/ my gyn to see when she wants me to stop the contious bc and have a period. I am not looking forward to that pain.

                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus


                      • #12
                        For those who do want to use tampons, there are chemical free brands that don't have bleach and other irritants in them. I still don't think I could use them, but don't need to try so I won't ever know.


                        • #13
                          no, i cant either now. i used to. it was easier playing sports years ago. when i didn't hurt all the time.


                          • #14
                            Never used them myself either. So I don't think that was the cause of my IC