No announcement yet.


  • Filter
  • Time
  • Show
Clear All
new posts

  • Flaring?

    Hi everyone! I feel so much more sane since finding this site. Right now I am in pretty contant pain, some aching, some sharp/burning/pinching, and I feel like I have to go to the bathroom all of the time... Is this a flare?

    Also, I have had the 'bathroom all of the time sensation for a while' and pain in my abdomen periodically before this, but 7 weeks ago, woke up with sharp pain in my abdomen, horrible pain. After a week of testing, and pain worsening with sitting up, my dr. discovered a hemmoraghic cyst on my ovary. When this healed and I was still having pain, dr. questioned me for a while, and then order a Potassium Sensitivity Test, and I passed with flying colors. My pain is holding steady at a 4-5, going to 6-8 with sitting, and activity for more than a few hours. The dr. told me to rest up for 4 more weeks....Is this typical for a first 'bad' flare that leads to diagnosis? If so, with elmiron 3x a day and diet change, in anyone's experience, when does this get better?

    IC -February 2007
    PCOS - August 2005
    Asthma and Allergies - 2003
    Depression - 1997
    Scoliosis/Sciatica/arthritis - 1997
    Hip Replacement -2001
    Possible IBS -2006

    Current IC meds:
    Elmiron, 100mg 3x's a day

    Other Meds:
    Metformin 850 mg/2x a day
    Singulair 10 mg/1x a day
    Albuterol and Advair
    Femara (infertility)

  • #2
    HI! It does sound like IC.....sorry to say. Sounds like you need to be on the prescription Elavil. It calms the bladder and frequency. Make sure you don't have a uti........some times that resembles IC flare ups. Watch what you eat.....follow the IC diet so you don't irritate your bladder more. Hope this helps and you feel better soon. Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo: