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  • Localized Pain

    Hi,

    Does anyone have any localized pain? There is a quarter sized spot on my right side that is painful when I touch it. Almost like it is swollen underneath there under the pelvic bone. I have been unofficially diagnosed by my urologist with ICN. Won't know for sure until I have a cystoscope on April 19.


    But is localized pain in the bladder/crotch area a symptom that you all have?

  • #2
    My IC pain is in the bladder. It feels like it is burning. I also get Urethra Spasms.
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.



    Link to the ICN Patient Handbook:
    http://www.ic-network.com/handbook/

    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      I did.....

      Hello and !
      I started having horrible pain in one particular spot on my left side (down near my pubic bone) almost a year before my other IC symptoms of frequency, urgency, and pain after intercourse began. My pain was VERY localized at first and felt like a stab, but now I have bladder pain and burning, and pain in my vagina, behind my pubic bone, and in my groin and legs. I have PFD as well, it tends to be very common with IC. IC can be very tricky in that symptoms, triggers, pain, and level of pain/severity of symptoms differs with each individual. That is why for many of us it can take a long time and several Doctors before a diagnosis is reached. Good luck with your upcoming tests and let us know if you need anything! The ICN was a miracle to me right after my diagnosis. I was so scared and lost and I desperately needed the support and realistic tips I found here.
      By the way, have you checked out the patient handbook yet? That was very helpful for me. The diet is a good place to start for pain relief as well.
      Rachel
      DX's:
      IC; PFD; possible Fibromyalgia; IBS;

      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

      I've Tried:
      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
      Currently using:
      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

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      • #4
        Yes, I had localized pain only on the left side, pelvic area near the bladder, for several years. This was part of the reason I had trouble getting a diagnosis. Later the pain sort of spread out. I don't know why.

        Very localized tender points can also indicate fibriomyalgia. It's easy to find a web site that shows you where these tender points would be in a fibro patient. There are 18 or 19 of them, and if you have 11 or more, you get a fibro diagnosis. When I had mine done, I had pain on touch in places I never even knew hurt before. They don't even press hard.

        So, the answer is, I guess, yes that's probably normal for IC, but if you haven't been checked for fibromyalgia, it might be a good idea to do that.
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn
        ___________________________________________________

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


        On the Beach with IC

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        • #5
          It feels like most of my bladder discomfort is on the left side as well, extending down the left inside thigh and sometimes my foot as well.

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          • #6
            Rachel and Carolyn

            Well that makes me feel better. Not that you both have had localized pain, but that I am not the only one out there feeling this. I am going to go see my gynocologist tomorrow. I don't even know if I should be seeing him. I just felt since he's my home base for female issues I should make an appointment. And the fact that I plan on trying to get pregnant again hopefully in June. Wondering how this pain will fit into a pregnancy. Oh goodness!

            Thanks again!

            AnnMarie

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            • #7
              Thanks to anyone I didn't mention

              I love reading all the responses. I don't feel so alone anymore. My husband is clueless. He's trying to understand but I can tell he really doesn't because "I don't look sick". I check this site everyday just to feel connected and normal.

              Thanks to everyone who has responded

              ((((((((((((( HUGS!!!!! ))))))))))))))

              AnnMarie

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