Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Has anyone tried using a cath/ bag just to sleep? I am up 8-10 times every night and sleep deprivation has become a BIG issue!! Not only are my moods affected but my think process is also.
Thanks for any insight.
JOY
Personally, I would really like to see as many opinions as possible . I have never really had a bad reaction to a cath, so long as it is small enough not to bother my urethra.
To be honest all I want is a full night sleep ...it has been 3 years now and it is making me a wee bit wacko!!!!!!
JOY
Blessed Be!!
There is more to life than fighting IC!!!
Hi! Have you tried Elavil? It helps calm the bladder.......ends frequency (or slows it way down) and Lunesta? I take both and sleep the whole night thru every night. Good luck! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:
I would not use a cath unless it was absolutely nessasary. Just the thought of all the pain a cath would cause me makes me shrudder. That is my biggest fear, needing a cath. I could not tolerate the pain I dont think. Maybe ask your doctor about something to take to help you sleep. Have you ever tried ativan?
Jen
That's one of the good things I think about when I have a hydrodistention. I have a foley catheter overnight so I can get a full night of wonderful sleep. Have you asked your doctor about doing one at home occasionally?
Donna
Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
I am taking Elavil and sleep meds and I am still up every 60-90 minutes. And Donna you are right about a full night sleep after Hydro. I am goiing to ask my Dr. about this. I just wondered if anyone on the board has or had tried doing this to sleep a full night.
JOY
Blessed Be!!
There is more to life than fighting IC!!!
Tweet
Comment