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  • Severe frequency

    Has anyone tried using a cath/ bag just to sleep? I am up 8-10 times every night and sleep deprivation has become a BIG issue!! Not only are my moods affected but my think process is also.
    Thanks for any insight.
    JOY
    Last edited by gypsyjoy; 03-20-2007, 06:36 PM. Reason: spelling
    Blessed Be!!
    There is more to life than fighting IC!!!

  • #2
    I personnally think caths make ic worse.

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    • #3
      Personally, I would really like to see as many opinions as possible . I have never really had a bad reaction to a cath, so long as it is small enough not to bother my urethra.

      To be honest all I want is a full night sleep ...it has been 3 years now and it is making me a wee bit wacko!!!!!!

      JOY
      Blessed Be!!
      There is more to life than fighting IC!!!

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      • #4
        Hi! Have you tried Elavil? It helps calm the bladder.......ends frequency (or slows it way down) and Lunesta? I take both and sleep the whole night thru every night. Good luck! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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        • #5
          I would not use a cath unless it was absolutely nessasary. Just the thought of all the pain a cath would cause me makes me shrudder. That is my biggest fear, needing a cath. I could not tolerate the pain I dont think. Maybe ask your doctor about something to take to help you sleep. Have you ever tried ativan?
          Jen

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          • #6
            That's one of the good things I think about when I have a hydrodistention. I have a foley catheter overnight so I can get a full night of wonderful sleep. Have you asked your doctor about doing one at home occasionally?

            Donna
            Stay safe


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            • #7
              I am taking Elavil and sleep meds and I am still up every 60-90 minutes. And Donna you are right about a full night sleep after Hydro. I am goiing to ask my Dr. about this. I just wondered if anyone on the board has or had tried doing this to sleep a full night.

              JOY
              Blessed Be!!
              There is more to life than fighting IC!!!

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